Cea

Girl2
Girl2 Member Posts: 27

How much is a cea supposed to drop initially on chemo?

Can this happen where it drops 1 round and goes back up? My dad's cea was 65 befor chemo , 80 after round 1 and 55 after round 2. 

But I'm wondering if this 1 drop really means anything ?especially as previous irinitecan had not worked .

Comments

  • John23
    John23 Member Posts: 2,122 Member
  • sflgirl
    sflgirl Member Posts: 220 Member
    John23 said:
    Thanks for your information

    Enlightening.  I had a surge so I hope it's true!  Things are going relatively well for me.

  • Girl2
    Girl2 Member Posts: 27
    sflgirl said:

    Thanks for your information

    Enlightening.  I had a surge so I hope it's true!  Things are going relatively well for me.

    Hi

    Hi thx .

     

    i noted from your profile biggest problem is can't eat . My dad's having the same . he's on oxyplatin and as he can't eat , he is losing lot of weight . How are you overcoming this ?

  • sflgirl
    sflgirl Member Posts: 220 Member
    Girl2 said:

    Hi

    Hi thx .

     

    i noted from your profile biggest problem is can't eat . My dad's having the same . he's on oxyplatin and as he can't eat , he is losing lot of weight . How are you overcoming this ?

    Trouble eating

    Well since I, and most people, get sensivity to cold from Oxy, I drank a lot of room temperature Ensures.  You have to eat/drink even when you're not hungry.  You kind of have to be dedicated to eating without hunger.  After the cold sensitivity lessened I started putting chocolate Ensure in a blender with frozen fruit (raspberries,).  And that was good too.

    Try to remind your dad to eat cause it's really easy to forget.  I just ldecided in the moment what to eat, never could plan anything because what sounded good yesterday didn't sound good today.  Very difficult for a caregiver I'm sure.  Hopefully he's in the frame of mind to want to succeed.  

    Best to you and your dad, tell him I'm pulling for him.

    Andrea

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    sflgirl said:

    Trouble eating

    Well since I, and most people, get sensivity to cold from Oxy, I drank a lot of room temperature Ensures.  You have to eat/drink even when you're not hungry.  You kind of have to be dedicated to eating without hunger.  After the cold sensitivity lessened I started putting chocolate Ensure in a blender with frozen fruit (raspberries,).  And that was good too.

    Try to remind your dad to eat cause it's really easy to forget.  I just ldecided in the moment what to eat, never could plan anything because what sounded good yesterday didn't sound good today.  Very difficult for a caregiver I'm sure.  Hopefully he's in the frame of mind to want to succeed.  

    Best to you and your dad, tell him I'm pulling for him.

    Andrea

    Try to remind your dad to eat

    Try to remind your dad to eat cause it's really easy to forget. - sflgirl

    I totally agree with this.  I'm an eater. I like food. But there were days when I was on treatment, that I would look at the clock, it would be 4 pm and I realized I hadn't eaten all day. I know there is a gland in the brain that controls hunger (Dr. Oz told me), and I can only imagine that the chemo messes with that. 

    So, it may not always be that the food tastes bad, or makes you feel sick, you just plain forget about eating. 

    Ensure is a good option when you can't tolerate solid food. I used to make my own version, as I don't trust much that comes in a bottle.

    Sue - Trubrit

  • Girl2
    Girl2 Member Posts: 27
    Trubrit said:

    Try to remind your dad to eat

    Try to remind your dad to eat cause it's really easy to forget. - sflgirl

    I totally agree with this.  I'm an eater. I like food. But there were days when I was on treatment, that I would look at the clock, it would be 4 pm and I realized I hadn't eaten all day. I know there is a gland in the brain that controls hunger (Dr. Oz told me), and I can only imagine that the chemo messes with that. 

    So, it may not always be that the food tastes bad, or makes you feel sick, you just plain forget about eating. 

    Ensure is a good option when you can't tolerate solid food. I used to make my own version, as I don't trust much that comes in a bottle.

    Sue - Trubrit

    You are all so corRect . He's

    You are all so corRect . He's not forcing himself at all .

     

    and so losing lot weight . Its like he was much better before the chemo but then I'm also

    worried that could it b the cancer spreading that's doing all this  :(

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    Girl2 said:

    You are all so corRect . He's

    You are all so corRect . He's not forcing himself at all .

     

    and so losing lot weight . Its like he was much better before the chemo but then I'm also

    worried that could it b the cancer spreading that's doing all this  :(

    Cancer spread

    So far, everything you have said about your dad's condition, corresponds to chemo side effects. 

    For the most part, Cancer doesn't spread so much during treatment. Hopefully the tumours shrink away to nothing, sometimes they stay around, and sometimes they spread. Lets just say, that sometimes all the chemo does is contain the spread, or growth.

    Try not to spend your time worrying. I know, that is hard. I had to LEARN not to worry. It took practice. Worrying will not change the situation, and if your father knows you are worrying, then it won't help him. He needs to know you are there for him in a positive way. 

    Here is something that worked for me. Give it a try, if you think the worry is consuming you. It may or may not work, as we are all different, and have to find what works best for us as individuals. 

    At the beginning of my treatments, I would go to bed and all the worry would unleash. I would get to the point where I thought my head was going to explode. I could not go on that way. I decided that I would allow myself 10 minutes of worry, of all the morbid, horrendous thoughts of death and leaving my children. I would cry. I would ask why. I would get angry sometimes. And then, when the 10 minutes was up, I would put on a CD of relaxing music, or a guided imagry CD, and let it all go. It worked for me. It works for me today. 

    Just an idea.  Remeber, your dad needs to focus on himself and not worry' about you worrying yourself at every trun. 

    I am glad that you found this forum. I know you will gain allot of strenght and knowledge from the wonderful people here. 

    Sue - Trubrit

  • Girl2
    Girl2 Member Posts: 27
    Trubrit said:

    Cancer spread

    So far, everything you have said about your dad's condition, corresponds to chemo side effects. 

    For the most part, Cancer doesn't spread so much during treatment. Hopefully the tumours shrink away to nothing, sometimes they stay around, and sometimes they spread. Lets just say, that sometimes all the chemo does is contain the spread, or growth.

    Try not to spend your time worrying. I know, that is hard. I had to LEARN not to worry. It took practice. Worrying will not change the situation, and if your father knows you are worrying, then it won't help him. He needs to know you are there for him in a positive way. 

    Here is something that worked for me. Give it a try, if you think the worry is consuming you. It may or may not work, as we are all different, and have to find what works best for us as individuals. 

    At the beginning of my treatments, I would go to bed and all the worry would unleash. I would get to the point where I thought my head was going to explode. I could not go on that way. I decided that I would allow myself 10 minutes of worry, of all the morbid, horrendous thoughts of death and leaving my children. I would cry. I would ask why. I would get angry sometimes. And then, when the 10 minutes was up, I would put on a CD of relaxing music, or a guided imagry CD, and let it all go. It worked for me. It works for me today. 

    Just an idea.  Remeber, your dad needs to focus on himself and not worry' about you worrying yourself at every trun. 

    I am glad that you found this forum. I know you will gain allot of strenght and knowledge from the wonderful people here. 

    Sue - Trubrit

    sue, thanks so much . ur

    sue, thanks so much . ur right u need to stop this worry as it's driving me mad . I hve a 5 year old and a 11 month old and sometimes i feel my head will explode .

    initially he was a stage 3 and then disaster mets arrived ! Also 1 chemo already failed , irinotecan , and now I think none can work and also seeing these effects it's horrible and I think what's going on . I hate how much weight he has lost cuz of appetite issues and drehydration on top.

  • NewHere
    NewHere Member Posts: 1,428 Member
    Girl2 said:

    Hi

    Hi thx .

     

    i noted from your profile biggest problem is can't eat . My dad's having the same . he's on oxyplatin and as he can't eat , he is losing lot of weight . How are you overcoming this ?

    Not Sure If You Saw My Answer

    To this question (eating) in the other thread from yesterday, but it as others said

     

    ##########

     


    I am also losing weight and not eating much, more so during the first week.  It may be something where you may have to remind or encourage him to drink more, paritcularly if he was not one to drink much water to begin with.  During the chemo I am behaving the same way, not horribly nauseaous, but more not motivated to eat or drink.  I also think I am eating a lot (pigging out :) ) during my good weeks, but still dropping weight.  

    Find some things that appeal to him on both the drink and food side.  Even when I am in my not hungry phase, I will have some ginger snaps or small muffins.  That breaks into my general apathy.  Also som general carbs like mac and cheese or pasta.  It is strange, but starting to eat a bit gets me to eat a bit more.  But without a doubt eating and drinking less overall, and weight loss seems to come with chemo.

    Maybe some others have some tips for eating and drinking.

    Try not to worry too much and ask the docs about what may help with the issues.  

  • Girl2
    Girl2 Member Posts: 27
    NewHere said:

    Not Sure If You Saw My Answer

    To this question (eating) in the other thread from yesterday, but it as others said

     

    ##########

     


    I am also losing weight and not eating much, more so during the first week.  It may be something where you may have to remind or encourage him to drink more, paritcularly if he was not one to drink much water to begin with.  During the chemo I am behaving the same way, not horribly nauseaous, but more not motivated to eat or drink.  I also think I am eating a lot (pigging out :) ) during my good weeks, but still dropping weight.  

    Find some things that appeal to him on both the drink and food side.  Even when I am in my not hungry phase, I will have some ginger snaps or small muffins.  That breaks into my general apathy.  Also som general carbs like mac and cheese or pasta.  It is strange, but starting to eat a bit gets me to eat a bit more.  But without a doubt eating and drinking less overall, and weight loss seems to come with chemo.

    Maybe some others have some tips for eating and drinking.

    Try not to worry too much and ask the docs about what may help with the issues.  

    Appetite

    Great thanks for all your advice x

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    Girl2 said:

    Appetite

    Great thanks for all your advice x

    I lost weight and found that

    I lost weight and found that I just wasn't interested in food. Things that I used to crave no longer appeal to me or very little. I now eat because I have to, not because I enjoy it. The odd thing also tastes funny, not like it used to.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member

    You'll find that results are different from one test to the other and even sometimes during the same day.  They can fluctuate consistently and going down is a good thing.  If they keep rising that is when the doctor will take more precautions, but you need to have readings that are consistently up for concern.  Hope things continue downwards.

    Kim