Neuroendoctrine tumour

So sorry to hear this.  Were the problems you were having with your stomach/bowels related to these tumors?   Have you still been able to eat?

Glad they found it - and hopefully early.

Lorna

jackflash22 said:

linked

yes, all the problems I've been having since last November was because of the tumour. Dietians, my family and myself put it down to the formulas but it was because the tumour was gradually blocking my bowel. I couldn't take my formulas without severe pain and vomiting, nothing was going into my system, I lost weight until I was 7st.12 which is three stone underweight. I was admitted to hospital starving and dehydrated and a mineral loss. I then got pneumonia. From three weeks ago I'm a different person, I have no pain and no vomiting. I'm on a high calorie formula and a machine pumping in food all night, I have gained half a stone and feel great. The tumour I have rarely shows up on scans and biopsies, they found mine by chance, because I was so ill and they thought I had a twisted bowel or blockage so operated. I was lucky. You can go for years with the wrong diognosis  usually they say  it's IBS or the menopause as the tumour affects the hormonal system and you sweat at night and the face and chest flush hot and red. Other symptoms is tiredness, diarrhoea and pain And vomiting. A urine test can show SYMPTONS if they test for it.

Jackie I'm sorry to hear this and gled at the same time you stayed on top of it and they did find it. You lost quite a bit of weight and three stones is some weight. Very glad tou keep on this and they did find it what seems early. Good news the pain and the vomiting has stopped which will stop the dehydration as well. I know you have been in pain and had many problems for all these months, but it's comming to an end. There is finily, light at the end of that dark tunnel. I have always keept you in my thoughts and prayers and will continue to do so. You are a very strong person and are very aware of what your body is, or is not doing. That is why they were able to find it. May you stay healthy and always have a better tomorrow.

Bill

You have gone through so much in such a short period of time.  So glad that the doctors kept looking for what the issue was.  Sorry for the weight loss, glad that you are keeping nutrition in now.  Prayers coming your way.

What are the odds? I certainly hope and pray you get a break soon. When i was going through treatment I felt like I was constantly getting a prescription filled. One day I told the Pharmacist that I spent so much time and money there, they should name an isle after me. If you keep this up, the hospital should name a floor after you.

Please stay positive while we all hope and pray you kick some butt and move on.

Fingers crossed

      Jeff

phrannie51 said:

Wow....you have been

pulled through one knot hole after another.  The good news is, they finally know what has caused all the digestive problems, and are on the case, now....the largest tumor is gone, and you are feeling much better.  Sending prayers that the smaller tumors get removed and you hear nothing more from them.

You're a tough cookie, Jackie....I say that with admiration!

p

Hi Jackie, I am a Brit living in the US. I think you are trying to catch up with me on the multiple cancers. I was diagnosed in 2009 with laryngeal cancer and went through 3 cisplatin chemo's and 35 rads. In 2012 they found a small nodule in my lung that turned out to be cancer, not related to my throat, 2013 diagnosed with prostate cancer as well as 2 squamous cell skin cancers. 2014 stage 0 melanoma on my arm, had that removed, in  February had another small squamous skin cancer removed. In July of 2014 ENT said my throat cancer was considered cured. They check my lung every year and the prostate has not progressed, that too is the lowest stage you can get. So hang in there me old china good things will happen. Denis

So sorry to hear this. You know, judging by your post, you seem to be in good spirits. I'm so glad if this is the case.  I'll keep you in my prayers. 

jackflash22 said:

I'm in good spirits as you

I'm in good spirits as you say. After six months of misery with pain and vomiting blamed on my formulas I'm feeling on top of the world and gaining weight. The first day after the removal of the tumour I had no pain no sickness and was able to feed. From only managing to get one formula down a day followed by the pain and vomiting I now have three ensure 2 cal and 900ml of vial 1.5 overnight. About 2400 calories in 24 hrs. I've gained half a stone. I wish they had found the tumour six months ago. I will now be monitored 6 monthly. They say the tumours I have are very small and slow growing and while I'm doing so well they don't want to give me drugs that will give me side effects similar to my illness before. If they start to bother me then they will do something. Some people have these tumours all their lives only to be found at autopsies

Glad to hear you got them removed with no problems, it is always best to get them treated or removed as soon as you know they are there. Hopefully now you can heal from the surgery and start putting some weight back on.

Tim  

jf, I'm doing a happy dance for you in honor of the docs making you feel better and making you able to eat but my heart is broken that you now have another cancer.  you've been through so very, very much already.  you have already shown what a strong woman you  are and that you are a butt kicker and i'm sure this will be no different.  especially since you can now eat and gain some strength. i'm so sorry Jf and i'm praying for you to get strong and feel well.  i'm glad it is a very slow growing and I pray the tx will not do any additional damage.

God bless you jf,

dj 

jackflash22 said:

thank you Debbiejean and all

thank you Debbiejean and all the other well wishers. I'm beginning to want to do things again. Since I lost my Peter last month I've been in limbo. I now feel I want to learn something different, I've always had a need to learn new things and have done college adult courses. Now I'm raring to go again. While your mind is fully occupied you don't think of the 'nasties' in life. I'd like to do a full course of art and design...........

jf, you are such an inspiriation!  no matter what life throws at you, you refuse to let it take your spirit!  let us know when you start the art and design course and i for one look forward to seeing some of your work.  i pray you alwasy show life that it is YOU who is in charge of YOUR life!  live on my brave friend!

God bless you,

dj