At witts end

DebbieG53
DebbieG53 Member Posts: 2
in Caregivers #1

Hi everyone glad to be here. Guess I just need to vent a little on being the caregiver to my husband. He has had MDS for 10 years and now it has progressed to RCMD. He has been getting transfusions which has now given him Iron Overload. Along with these diagnosis he also is type 1 diabetic and has emphysemia. He has developed a chronic cough. This cough is constant and I do mean constant! Along with this cough, he has developed a terrible breath smell to go along with it. I am at my witts end. He is on Vizada and Exjade along with all of his insulin and other medications. I am scared he has lung cancer. Finally there is a CAT scan scheduled for this week. Hopefully we will know more. Thanks for listening... 

Comments

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #2
    i'm sorry

    You have been through a lot.  I know you are exhausted.  Hoping you get good results this week, Debbie.  Let us know.

  • DebbieG53
    DebbieG53 Member Posts: 2
    #3
    Noellesmom said:

    i'm sorry

    You have been through a lot.  I know you are exhausted.  Hoping you get good results this week, Debbie.  Let us know.

    Thank you

    Thank you for your thoughts. My husband was hospitalized today because he couldn't breathe. At least he is getting care he needs. I hate to admit to this but it is a relief for me that he is not here right now...I think I needed a break. Thanks again for your thoughts.

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #4
    hospital

    Sounds like he is right where he needs to be.  Try to get some rest.

  • Tina Blondek
    Tina Blondek Member Posts: 1,500 Member
    #5
    DebbieG53 said:

    Thank you

    Thank you for your thoughts. My husband was hospitalized today because he couldn't breathe. At least he is getting care he needs. I hate to admit to this but it is a relief for me that he is not here right now...I think I needed a break. Thanks again for your thoughts.

    Hi DebbieSo sorry you are

    Hi Debbie

    So sorry you are going through a rough time caring for your husband. Glad to hear he

    was able to be admitted into

    the hospital. Yes, that is where he needs to be! I lost my dad in 2010 to esophageal/liver cancer and my mom in

    2013 to cardiac arrest. I was the sole caregiver for them both. My older brother lives in NJ, we are in Virginia. Do

    not feel guilty about feeling relieved.  I too, do feel this same way most days. Caregiving is such a huge job, especially

    on your own. Keep your chin up, have faith, and enjoy your break while you have it. All the best to your husband.

     

    Tina in Va

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