janderson update

Fight for my love said:

Hi Jeff, thank you for this

Hi Jeff, thank you for this update, sounds like everything is moving. You always impress me with the way you advocate yourself and how quickly you take action. Best luck with everything. I will keep praying for you and everyone else in the forum.

Thanks for keeping us in your prayers

Yolllmbs said:

Jeff

You're a perfect example of fighting for our treatments,  Advocating is so easy when it's for someone we love.  I admire you're strength in fighting for your own insurance and doctors.  My prayers and good wishes.

 

Yolanda

Thank you for your prayers and kind words Yolanda.

Brenda Bricco said:

Jeff, I am so excited that

Jeff, I am so excited that you are headed for the SBRT, it worked so well for my Husband on a very tricky tumor. The best part is that he said that the hardest part was stayingin the machine for the 45 minutes, but other wise no side affects at all. His first scan after treatment was clear, his next is this Thursday and will let you know when I know how it looks. His last CEA was at 9, wish it were lower but so grateful for where we are. You will be in my prayers. Also, did I see you mention some lab going up which was good (MCV) what is that?

The t cell treatment makes me think of a report I watched a couple of weeks ago about injecting the polio virus into tumors to get the immune system to attack tumors and was having great success. Have you heard anything about that, or anyone else?

Thanks for being such a pioneer for us all.

 

MCV (Mean Corpusal Volume) is part of CBC test. I am only doing Xeloda right now and there were a couple of studies that rising MCV was a good indicator that the Xeloda is working kind of like the rash with Erbitux or Vectibix. Karin is the person who is getting ready to do the T-cell trial. I have read about and followed the vaccines for over a year now. The problem with them along with a lot of these immunotherapies that are having great success is that the success rate is good for Melanomas and blood cancer but no so good for colon and other solid cancers. They are having to come up sith drug cocktails to go with the vaccines and immuntherapies to hopefully get a better response from colon cancer which is being studied and worked on. I believe the T-cell trial that I mentioned and that Karin is getting ready to start didn't look good for colon cancer initially but they have been tweaking it by harvesting the patients own tumor and T-cells. Modifying the T-cells to attack certain mutations found in the patients tumor and then injecting the T-cells back into the patient. This is true personalized treatment. It is kind of like letting a hound dog smell the scent from an article of clothing that a missing person was wearing so the dog can track the person.

It looks like we are on the brink of some exciting break throughs even for colon cancer. My oncologist said I just need to hang on for another few years. 

Annabelle41415 said:

Update

Thank you for the update and it sure sounds like like you have a lot going on.  I'm praying that all of your future treatments go great.  You sure are a positive person and love that you keep fighting for your rights.  Don't ever back down.

Kim

Thanks Kim. I feel that I am not just fighting for my rights but all of our rights living with cancer.

herdizziness said:

Thanks Jeff for the update

SRBT is something I'll be asking my oncologist about tomorrow.  As always I appreciate your I for and keeping us updated on how you are doing.

Winter Marie

I am approved for SBRT as stated above but the machine is down at the hospital I was approved at so I am playing the waiting game. In the meantine NIH contacted me and they are testing me for 5 different immunotherapies including the one TIL that Karin is doing. I am not saying it is time for me get on a trial yet but it is always good to test the waters and get as many irons in the fire as possible.