Phil64 Update

Phil64
Phil64 Member Posts: 838 Member
in Colorectal Cancer #1

All,

I've been very busy between work and treatments and a spring vacation.  I am continuing to receive Erbitux every two weeks and I'm continuing to deal with the Erbitux rash. I did skip a treatment for spring vacation and my skin did a little recovering in that time. But the rash is coming back on once again as my last treatment was on 4/16.

I am so saddened by the news of Craig's passing. He truly shared his heart on this forum.  Thank you Craig for sharing encouraging, insightful, and engaging stories with us all.  You once told me that if I write from my heart it will be good. And it was so obvious that is exactly what you did! You opened up your heart to us all and we are all the better for it.

You will be missed my friend!  Rest in peace!

My CEA continues to be "Under 1.0" since my 12/5/2014 surgery.  I just completed a CT scan this past Wednesday but don't have the official results as of yet.  The surgeon (follow-up visit) did look it over and reported that it looked clear to him. But he added that the radiologist will do a much more thorough review. So I'm waiting until next Thursday for the ofificial results during my oncologist appointment.

One downside of getting better is my appetite is back and I've gained back the weight I lost during surgery. I really need to watch what I eat!

Blessings to you all and hugs to you all during this sad time.

Sincerely your friend,

Phil64

 

blog: http://PScamihorn.me

 

 

Comments

  • danker
    danker Member Posts: 1,276 Member
    #2
    weight watching

    If I gave up drinking beer I think I would just wast away!  LOL

  • Phil64
    Phil64 Member Posts: 838 Member
    #3
    danker said:

    weight watching

    If I gave up drinking beer I think I would just wast away!  LOL

    I made sure to ask my

    I made sure to ask my oncologist (with my WIFE present) if I can have a beer now and then.  :-)  And I do have a beer now and then.  Not nearly as often as I might have in the past. lol

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #4
    Its really good to hear from

    Its really good to hear from you Phil and that things are looking positive for you. I was concerned and missed you. Have you ridden your bike yrt this spring. I have been riding several days a week. BTW I traded the Triumph in for a softail slik fls. I love it love love. I feel so free when I am riding.

  • jen2012
    jen2012 Member Posts: 1,607 Member
    #5
    Hi Phil , after I posted last

    Hi Phil , after I posted last night I went to your blog and was happy to see you are doing well and had a great vacation!  

  • Phil64
    Phil64 Member Posts: 838 Member
    #6
    janderson1964 said:

    Its really good to hear from

    Its really good to hear from you Phil and that things are looking positive for you. I was concerned and missed you. Have you ridden your bike yrt this spring. I have been riding several days a week. BTW I traded the Triumph in for a softail slik fls. I love it love love. I feel so free when I am riding.

    Harley

    I really want to get it out. But it has been cold in Michigan. I think some warmer days are heading my way and I will be on it... I know what you mean about feeling free. I need that feeling.

  • Phil64
    Phil64 Member Posts: 838 Member
    #7
    jen2012 said:

    Hi Phil , after I posted last

    Hi Phil , after I posted last night I went to your blog and was happy to see you are doing well and had a great vacation!  

    We did have a great vacation.

    We did have a great vacation. I wish every week could be vacation. But I guess it wouldn't be vacation without the work surrounding it. :-)

  • traci43
    traci43 Member Posts: 773 Member
    #8
    Glad to hear you're doing well

    Wow, a CEA < 1.  Thats awesome!  Hope it continues and you can continue to work and ride and take those vacations!  Traci

  • Yolllmbs
    Yolllmbs Member Posts: 360 Member
    #9
    I'm happy

    to hear you've been busy. Keeping you in my prayers. Two weddings is gonna be CRAZY. My daughters relaxed while I stressed !  Continue to be well.

     

    Yolanda

     

     

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #10
    You're the man!

    OK, I don't know if thats an expression over here or back home in England. 

    I am so happy to hear that things are going along smoothly with your CEA and look forward to your post this week saying that your scan results are good aswell. 

    I totally understand about the weight thing. Its a constant battle, when really it shouldn't be. But, if we enjoy food, then I think we should enjoy it. I have decided to have special food days. Saturday donut up the canyon. If I don't go up the canyon then no donut. Only English chocolate, which I get in Reno. A place I don't go often, so I don't get it often. Dessert only when my boys come over for dinner. Things like that seem to be helping me, as opposed to having something every day. 

    Its great to see your face here on the forum. 

    Hugs! 

    Sue - Trubrit

  • Easyflip
    Easyflip Member Posts: 588 Member
    #11
    I'm

    allowed two alcoholic drinks a day by my doc. He feels the alcohol cancer link has never been proven, he does prefer red wine to beer though. My largely vegetarian fish diet has kept my weight in check plus I don't have a sweet tooth. He also feels the sugar cancer link has not been established either. It's funny how we hear every opinion under the sun but no one knows for sure  what we should eat. I splurge every once in a while, I don't think it's that big a deal, especially on vacation! Gotta live right? And I do love food! Exercise is the best way to keep your weight down, everyone agrees about that and it's better for our overall health, but I'm lazy too! I think I'll skip the gym and go have a beer! Lol

    Easyflip/Richard

  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
    #12
    I take this as "NED", so this

    I take this as "NED", so this is really good news. I am always happy to see good news.

  • danker
    danker Member Posts: 1,276 Member
    #13
    Easyflip said:

    I'm

    allowed two alcoholic drinks a day by my doc. He feels the alcohol cancer link has never been proven, he does prefer red wine to beer though. My largely vegetarian fish diet has kept my weight in check plus I don't have a sweet tooth. He also feels the sugar cancer link has not been established either. It's funny how we hear every opinion under the sun but no one knows for sure  what we should eat. I splurge every once in a while, I don't think it's that big a deal, especially on vacation! Gotta live right? And I do love food! Exercise is the best way to keep your weight down, everyone agrees about that and it's better for our overall health, but I'm lazy too! I think I'll skip the gym and go have a beer! Lol

    Easyflip/Richard

    diet

    I remember a tale a chef told about loosing weight. He truly dietedd 29 days a month, but one a month he ate any and all that he wanted.That satisfied him, and he still managed to loose  the wieght that he wanted.  It's not how much, bur rather how ofte!!!

  • Phil64
    Phil64 Member Posts: 838 Member
    #14
    Trubrit said:

    You're the man!

    OK, I don't know if thats an expression over here or back home in England. 

    I am so happy to hear that things are going along smoothly with your CEA and look forward to your post this week saying that your scan results are good aswell. 

    I totally understand about the weight thing. Its a constant battle, when really it shouldn't be. But, if we enjoy food, then I think we should enjoy it. I have decided to have special food days. Saturday donut up the canyon. If I don't go up the canyon then no donut. Only English chocolate, which I get in Reno. A place I don't go often, so I don't get it often. Dessert only when my boys come over for dinner. Things like that seem to be helping me, as opposed to having something every day. 

    Its great to see your face here on the forum. 

    Hugs! 

    Sue - Trubrit

    Huggs back Sue.  Thank

    Huggs back Sue.  Thank you.

     

    Oh. In US/Detroit - where I'm from - we say "You the man!" :-)

     

     

  • Phil64
    Phil64 Member Posts: 838 Member
    #15
    Easyflip said:

    I'm

    allowed two alcoholic drinks a day by my doc. He feels the alcohol cancer link has never been proven, he does prefer red wine to beer though. My largely vegetarian fish diet has kept my weight in check plus I don't have a sweet tooth. He also feels the sugar cancer link has not been established either. It's funny how we hear every opinion under the sun but no one knows for sure  what we should eat. I splurge every once in a while, I don't think it's that big a deal, especially on vacation! Gotta live right? And I do love food! Exercise is the best way to keep your weight down, everyone agrees about that and it's better for our overall health, but I'm lazy too! I think I'll skip the gym and go have a beer! Lol

    Easyflip/Richard

    Thanks Richard.  I agree that

    Thanks Richard.  I agree that Exercise is key.  I just need to prioritize this. It's hard with having a 14 year old playing baseball three times a week and working 40 to 50 hours per week, and preparing the house for upcoming weddings and wedding showers, and needing to break out my lawn tractor this weekend (three acres of lawn to mow), and... Oh yah, I want to ride my Harley too... lol

    You know what I mean.

     

    I am good at EXCUSES???

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