Can someone explain how the CEA numbers work?
In 2012 when I had the cancer come back after my first surgery, my CEA was 4.3. After my second surgery (cancer free) it was a 3.7, it then went to 3.5, then 3.8, then 3.7 and now 4.0. It's in the normal range which is 0-5.0 however when I had cancer I was at 4.3 so I don't get it. Should I be concerned that it is now at 4.0? I have heard people say that their number is a 26 or 45 (and I've heard some say 250) so I know 4.0 is an excellent number. I just want to make sure it's an excellent number without cancer present.
Comments
-
What I understand
I can only say what my Oncologist says and he wanted mine to be under 3.0 after my liver surgery. If it didn't drop below 3.0 he would have me back on the chemo.
Now, that is my Oncologist, and we all know they differ to the extreme.
And you know that for some people, CEA is not a good indicator. For me it seems to be, but for you, it could be different.
When do you go and see the Oncologist again?
Good luck!
Sue - Trubrit
0 -
My CEA WAS OVER 2,000 when first diagnosed
Since I've had it down to 2.0 aftwr surgery but now it has been rising and chemo's not working and up to 204 right now. My CEA has always been a good indicator for me, but it isn't for everyone Unfortunately.
Winter Marie
0 -
I have seen the high numbers
I am wondering when people are saying 26 or 45 they are missing decimal point or different scale somehow?
My CEA was 8.5 (scale 0.0-5.0) about 10 days before my surgery. With a pretty large tumor and heavy lymph node involvement (over half of 20 that were taken). I started dropping, last test was 3.9 for me. Smoking of any type can boost it also. Not sure where I saw the reference, but people on medicial marijuana can get the bump. I am not sure how long it takes to leave from either the cancer being removed or cessation of smoking or how much triggers it. For instance, a cigar on New Year's Eve? How long does it boost and last? (A bit tangential to your question, but somehing I have not seen anything about.)
Real good question.
0 -
Guess It Was Not Decimal Pointherdizziness said:My CEA WAS OVER 2,000 when first diagnosed
Since I've had it down to 2.0 aftwr surgery but now it has been rising and chemo's not working and up to 204 right now. My CEA has always been a good indicator for me, but it isn't for everyone Unfortunately.
Winter Marie
Hope things goes well for you with this rise. I was thinking the numbers mentioned were so high, that I was missing something along the way.
0 -
my husband's cea was always
my husband's cea was always low like 1.7 and 2.1 when he was first diagnosed. until he had recurrence, his number started to go up. CEA is a weird thing, in my husband's case, it was not an indicator the first time, but it became an indicator the second time. I also know for some people it is never an indicator.
0 -
No decimal pointNewHere said:I have seen the high numbers
I am wondering when people are saying 26 or 45 they are missing decimal point or different scale somehow?
My CEA was 8.5 (scale 0.0-5.0) about 10 days before my surgery. With a pretty large tumor and heavy lymph node involvement (over half of 20 that were taken). I started dropping, last test was 3.9 for me. Smoking of any type can boost it also. Not sure where I saw the reference, but people on medicial marijuana can get the bump. I am not sure how long it takes to leave from either the cancer being removed or cessation of smoking or how much triggers it. For instance, a cigar on New Year's Eve? How long does it boost and last? (A bit tangential to your question, but somehing I have not seen anything about.)
Real good question.
The numbers can go extrodinarily high. Just take Winter Marie's numbers; over 2,000 at one point.
My highest was 36 at diagnosis, and up to 19 when I had my liver tumour.
Sue - Trubrit
0 -
That's whyNewHere said:Guess It Was Not Decimal Point
Hope things goes well for you with this rise. I was thinking the numbers mentioned were so high, that I was missing something along the way.
That is why I was given the "death" sentence, they felt I had a week or two of life left. My oncologist remains amazed. My actual count was 2,634 if I remember rightly. Chemo is what turned things around and then the surgeries (they said I would never have) have kept me going these past 5 years.
Winter Marie
0 -
0
-
Wowherdizziness said:That's why
That is why I was given the "death" sentence, they felt I had a week or two of life left. My oncologist remains amazed. My actual count was 2,634 if I remember rightly. Chemo is what turned things around and then the surgeries (they said I would never have) have kept me going these past 5 years.
Winter Marie
I am so glad it all worked out. Amazing.
0 -
Try not to follow it too closely
My husband's 2nd oncologist (GI Specialist at much larger facility) told us CEA is only a good indicator about half the time. My husband's CEA never went over 10, but while he was inpatient last January and a large tumor was growing in his small intestines (and misdiagnosed as constipation) his CEA actually dropped. We stopped worrying about it after that. Of course, fools at previous hospital did not help at all and he had to wait 10 days for surgery there. 2nd oncologist said they take the CEA into account with several other factors.
Linda
0 -
And off I go
Today (April 15th) I have my blood draw and my CEA checked. In fact I'm I am off out the door in 15 minutes.
Its always a little unnerving. I know I can go and pick up my results in a couple of days, but this time I may wait until my appointment on the 22nd. - I said that last time, and ended up picking up my results and reading them. I'm terribly impatient. I did it this time last year, and was crushed when my CEA had jumped 10 points. I knew that was bad news, and I had rather the Doctor told me. Oh well. We shall see what I do this time. -
So, CEA, here I come.
Sue - Trubrit
0 -
Good luckTrubrit said:And off I go
Today (April 15th) I have my blood draw and my CEA checked. In fact I'm I am off out the door in 15 minutes.
Its always a little unnerving. I know I can go and pick up my results in a couple of days, but this time I may wait until my appointment on the 22nd. - I said that last time, and ended up picking up my results and reading them. I'm terribly impatient. I did it this time last year, and was crushed when my CEA had jumped 10 points. I knew that was bad news, and I had rather the Doctor told me. Oh well. We shall see what I do this time. -
So, CEA, here I come.
Sue - Trubrit
Sue! I'm sure you'll be fine. Keep us updated and enjoy this beautiful day!
Easyflip/Richard
0 -
Wow that's insane. I mean Iherdizziness said:That's why
That is why I was given the "death" sentence, they felt I had a week or two of life left. My oncologist remains amazed. My actual count was 2,634 if I remember rightly. Chemo is what turned things around and then the surgeries (they said I would never have) have kept me going these past 5 years.
Winter Marie
Wow that's insane. I mean I read that bigger tumors present bigger numbers and so that all makes sense but still that number is insane.
0 -
I saw that, thanks John. I'mJohn23 said:I saw that, thanks John. I'm two years out from the surgery and I didn't fit in this category either. Mine went lower. What I'm taking is I am not a good candidate for CEA having any value. I'm just going to not worry about it at all. I have two scans coming up in July, I'll just wait for those to be my indicator.
0 -
Oh darn Sue, well let's hopeTrubrit said:And off I go
Today (April 15th) I have my blood draw and my CEA checked. In fact I'm I am off out the door in 15 minutes.
Its always a little unnerving. I know I can go and pick up my results in a couple of days, but this time I may wait until my appointment on the 22nd. - I said that last time, and ended up picking up my results and reading them. I'm terribly impatient. I did it this time last year, and was crushed when my CEA had jumped 10 points. I knew that was bad news, and I had rather the Doctor told me. Oh well. We shall see what I do this time. -
So, CEA, here I come.
Sue - Trubrit
Oh darn Sue, well let's hope for a low, low, low CEA!!!!!!!!!!!!!!!!!!!!!!!!!!
I'm just going to ignore my CEA going forward unless it is alarming. 4.0 is definitely not alarming. I have two scans in July, I'll just wait for those and get on with living. It really is beautiful out.
0 -
Helen321 said:
Oh darn Sue, well let's hope
Oh darn Sue, well let's hope for a low, low, low CEA!!!!!!!!!!!!!!!!!!!!!!!!!!
I'm just going to ignore my CEA going forward unless it is alarming. 4.0 is definitely not alarming. I have two scans in July, I'll just wait for those and get on with living. It really is beautiful out.
CEA is supposedly a goodCEA is supposedly a good indicator for me because it was elevated pre-op to 7.8 and retuned to 1.0 post op. I am 5 years out and it hovers around 5.0. Scans clear. Go figure. It seems to me it is best believed coupled with scan.
Good luck Sue and Helen. You're right, Helen, getting on with living, whenever we can, is a very good option.
CM
0 -
Good luck!Helen321 said:I saw that, thanks John. I'm
I saw that, thanks John. I'm two years out from the surgery and I didn't fit in this category either. Mine went lower. What I'm taking is I am not a good candidate for CEA having any value. I'm just going to not worry about it at all. I have two scans coming up in July, I'll just wait for those to be my indicator.
Standard scans (not “pet scans”) are the way to go!
(don’t let them scare you into treatments you don’t need)
Good luck; I wish you well!!!
John23
0 -
CEA
hi, my CEA count was 18 when diagnosed stage III, after they took 10 lbs at three different places and half my colon, it remains at approx. 1.1 I did decline the chemo/ radiation at the time. I was told up to 5 is Normal.
strange the difference in U.S. All.
0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 397 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 539 Sarcoma
- 730 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards