HAS ANYONE

marycurbelo1204
marycurbelo1204 Member Posts: 73
in Breast Cancer #1

HAD RECURRENCES OF CA 6 MONTHS AFTER CHEMO?  Don't know why I haven't asked before.  I go to my Onco tomorrow and am in terror.  One thing she did tell me was that she was going to talk to me about perhaps having the port removed, if everything ok..

 

Mary

«1

Comments

  • SAvent
    SAvent Member Posts: 62
    #2

    I have not had any. Im three years clean now BUT I will say that the fear everytime its time to go back is very very real.

    Best of Luck

  • marycurbelo1204
    marycurbelo1204 Member Posts: 73
    #3
    Thanks

    Thanks for you comment.  I have 2nd stage Triple Negative Metastatic with clear lymph nodes.  Everything I feel, I think it's a recurrence.  If I have a headache, I think it's brain cancer, If I have diarrhea, omg I think its colon cancer, If I have a side pain, liver cancer and on and on.  I get tired of feeling this way but I can't help it.

     

    Mary

  • marycurbelo1204
    marycurbelo1204 Member Posts: 73
    #4
    SAvent said:

    I have not had any. Im three years clean now BUT I will say that the fear everytime its time to go back is very very real.

    Best of Luck

    GOD BLESS YOU

    3 years... awesome.  You OK though?  Nothing hurts?  I have neuropathy and lymphadema.

  • New Flower
    New Flower Member Posts: 4,294
    #5
    marycurbelo1204 said:

    Thanks

    Thanks for you comment.  I have 2nd stage Triple Negative Metastatic with clear lymph nodes.  Everything I feel, I think it's a recurrence.  If I have a headache, I think it's brain cancer, If I have diarrhea, omg I think its colon cancer, If I have a side pain, liver cancer and on and on.  I get tired of feeling this way but I can't help it.

     

    Mary

    Hi Mary

    Hi Maryy,

     Sorry, visiting oncologist is always stressful. I think you have been confused about terminology. Metastatic breast cancer is stage IV. If you were diagnosed with stage II it could not be metastatic

    Good luck with your appointment.

     

  • button2
    button2 Member Posts: 421
    #6
    New Flower said:

    Hi Mary

    Hi Maryy,

     Sorry, visiting oncologist is always stressful. I think you have been confused about terminology. Metastatic breast cancer is stage IV. If you were diagnosed with stage II it could not be metastatic

    Good luck with your appointment.

     

    New flower

    They called my Stage II cancer "metastatic" because it was in 9 lymph nodes. Maybe this was so they could get me Herceptin? (I'm cancer free now) I'm wondering because I live in Europe and maybe staging system different? Would lymph node involvement not be termed "metastatic" in the US?????

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #7
    I have no expericnce with

    I have no expericnce with Chemo but sending hugs and pixie dust

     

    Denise

  • New Flower
    New Flower Member Posts: 4,294
    #8
    button2 said:

    New flower

    They called my Stage II cancer "metastatic" because it was in 9 lymph nodes. Maybe this was so they could get me Herceptin? (I'm cancer free now) I'm wondering because I live in Europe and maybe staging system different? Would lymph node involvement not be termed "metastatic" in the US?????

    Staging

    US staging for breast cancer is different than other cancers. Lymph nodes involvement (positive nodes) does not constitute metastasis.

    metastatic breast cancer in US is stage IV when cancer has metastasized to other organs or lymph nodes distant from axilla.

    stage IV is a terminal disease which can be treated not cured.

    i hope it helps 

  • marycurbelo1204
    marycurbelo1204 Member Posts: 73
    #9
    OK Guys

    The reason why the Stage 2 metastatic is because of the threat of spreading and reacurrence.  Once and if it spreads to liver, brain, breast, lungs, it will be metastasized and it will be a stage IV (as per my oncologist).  Needless to say, the word metastatic scares the hell out of me... I went to Onco today and by the way I looked, doctors say I was ok.  She checked me and all seems to be ok.  I have blood work to do tomorrow, then I'll breath easy after the results come in.  Thank you once again for your kind words and support.  I told my oncologist that I am in this site and she thinks its awesome.

  • cati0314
    cati0314 Member Posts: 203
    #10
    marycurbelo1204 said:

    Thanks

    Thanks for you comment.  I have 2nd stage Triple Negative Metastatic with clear lymph nodes.  Everything I feel, I think it's a recurrence.  If I have a headache, I think it's brain cancer, If I have diarrhea, omg I think its colon cancer, If I have a side pain, liver cancer and on and on.  I get tired of feeling this way but I can't help it.

     

    Mary

    I understand

    Good Lord, I feel the same way.  Was on my way to ER today because of neuropathy in hands when onco's office called back to say they could fit me in.  I had been trying to readh him to check the lump I feel in my left flap.  could be fat or adhesions but of course I think it may be new cancer.  I feel the neuropathy could be from the radiatoin I had 4 yrs ago.  My bad diarrhea has convinced me I have colon cancer. I have apnt with gastro in Feb.  It just doesn't end.  The onco is sending me to a surgeon.  Just great....He'll want a biopsy and MRI I'm sure even if he suspects its adhesions or fat from the diep surgery.  And I will be terrified.   Please lets hang in there together!  I'm praying for you and feel that you will be just fine!

  • bonbondidit
    bonbondidit Member Posts: 116
    #11
    button2 said:

    New flower

    They called my Stage II cancer "metastatic" because it was in 9 lymph nodes. Maybe this was so they could get me Herceptin? (I'm cancer free now) I'm wondering because I live in Europe and maybe staging system different? Would lymph node involvement not be termed "metastatic" in the US?????

    Button2

    Hi Button2,

    I am Stage 3A and had 4 positive lymph nodes in my auxillary nodes but was not called metatastic. I am in the US.  Only if it's actually travelled into another area. That being said I can see that if it travels from the breast to and through other lymph nodes, I can see how your country could term it that way.  My staging was decided by the size and how many nodes were "involved."  The cut-off for stage 2 was 3 lymph nodes involved. Since I had 4 I was bumped up to stage 3A. "A" means NO METS were seen in other areas of my body.

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #12
    marycurbelo1204 said:

    OK Guys

    The reason why the Stage 2 metastatic is because of the threat of spreading and reacurrence.  Once and if it spreads to liver, brain, breast, lungs, it will be metastasized and it will be a stage IV (as per my oncologist).  Needless to say, the word metastatic scares the hell out of me... I went to Onco today and by the way I looked, doctors say I was ok.  She checked me and all seems to be ok.  I have blood work to do tomorrow, then I'll breath easy after the results come in.  Thank you once again for your kind words and support.  I told my oncologist that I am in this site and she thinks its awesome.

    any term associated with breast cancer - scares the

    hellll out of so many of us --  Recurrence, shoot let's not go down that flippin road.

    I agree,  our Oncologist appointments are scary enough --  then our blood is taken -- and we wait DAYS for results -- yep, hard to sit still and wait for those blood marker results.

    Peace, and Calm I wish for you as you await your blood test results.

     

    Vicki Sam

  • GlowMore
    GlowMore Member Posts: 789 Member
    #13
    marycurbelo1204 said:

    OK Guys

    The reason why the Stage 2 metastatic is because of the threat of spreading and reacurrence.  Once and if it spreads to liver, brain, breast, lungs, it will be metastasized and it will be a stage IV (as per my oncologist).  Needless to say, the word metastatic scares the hell out of me... I went to Onco today and by the way I looked, doctors say I was ok.  She checked me and all seems to be ok.  I have blood work to do tomorrow, then I'll breath easy after the results come in.  Thank you once again for your kind words and support.  I told my oncologist that I am in this site and she thinks its awesome.

    wrong word

    That word is not the right word Mary.....  I'm Triple Negative High Risk IDC Stage 3....I thought it was 3A at first then they said 3B..... they took 19 lymph nodes and 6 had Cancer cells..........they had me coming back every week for ages after the end of chemo/radiation and then every other week and then every month and there were CT Scans and Bone Scans and then PET Scans and Brain CATs etc etc ....but guess what?   I'M STILL HERE AND IT IS NOW TWELVE YEARS FROM THE END OF TREATMENT AND THIRTEEN YEARS FROM DIAGNOSIS  Cool   I would advise you NOT to think about the bad stuff if at all possible....think about what you have NOW....live your life NOW.... Prayers for Strength & Courage....  xxoo  Glo

  • marycurbelo1204
    marycurbelo1204 Member Posts: 73
    #14
    GlowMore said:

    wrong word

    That word is not the right word Mary.....  I'm Triple Negative High Risk IDC Stage 3....I thought it was 3A at first then they said 3B..... they took 19 lymph nodes and 6 had Cancer cells..........they had me coming back every week for ages after the end of chemo/radiation and then every other week and then every month and there were CT Scans and Bone Scans and then PET Scans and Brain CATs etc etc ....but guess what?   I'M STILL HERE AND IT IS NOW TWELVE YEARS FROM THE END OF TREATMENT AND THIRTEEN YEARS FROM DIAGNOSIS  Cool   I would advise you NOT to think about the bad stuff if at all possible....think about what you have NOW....live your life NOW.... Prayers for Strength & Courage....  xxoo  Glo

    wrong word

    Maybe I'm wrong, but she wrote it down.  Anyway, I had my blood work done today.  Metabolic test and something else.  My Onco does not want the blood work for markers.  She told me that lots of insurances are not paying that anymore.  Apparently they've had lots of "false positives" and it's very bad on patients.  This was today and I'm already way too anxious and nervous cause I have to wait for results (what the hell am I to do if those results are bad???  I don't know).  You guys are the bravest people I know.  I am so trying very hard to be brave but at the end of the day, I crumble.  I'll let you guys know when I get results.

    Love you guys,

    Mary

     

  • GlowMore
    GlowMore Member Posts: 789 Member
    #15
    marycurbelo1204 said:

    wrong word

    Maybe I'm wrong, but she wrote it down.  Anyway, I had my blood work done today.  Metabolic test and something else.  My Onco does not want the blood work for markers.  She told me that lots of insurances are not paying that anymore.  Apparently they've had lots of "false positives" and it's very bad on patients.  This was today and I'm already way too anxious and nervous cause I have to wait for results (what the hell am I to do if those results are bad???  I don't know).  You guys are the bravest people I know.  I am so trying very hard to be brave but at the end of the day, I crumble.  I'll let you guys know when I get results.

    Love you guys,

    Mary

     

    Tumor Marker CA 27-29 Blood Test

    Doesn't that just frost you when they tell you that the "Insurance company is not paying for this test anymore"  ??? ......Granted it may not be a test that is perfect....but it does give you a Guide Line over time and I felt ok with it over the last 13 years..........   But I will have to say that now I am an old lady...I don't believe it worries me as much as it once did....and my last one was a little elevated but we compared what has happened over the years and decided not to worry about it ....and we will see what it shows in a year.   I remember that terrible Fear Mary...but we cannot live with FEAR....we have to turn it over to God and let it go........or else we will go nutso.   I hope and pray you will be able to let go of the Fear as much as you can and reach for the Positive and the Good.........  sending a Big Hug and Love....  Glo

  • carkris
    carkris Member Posts: 4,553 Member
    #16
    GlowMore said:

    Tumor Marker CA 27-29 Blood Test

    Doesn't that just frost you when they tell you that the "Insurance company is not paying for this test anymore"  ??? ......Granted it may not be a test that is perfect....but it does give you a Guide Line over time and I felt ok with it over the last 13 years..........   But I will have to say that now I am an old lady...I don't believe it worries me as much as it once did....and my last one was a little elevated but we compared what has happened over the years and decided not to worry about it ....and we will see what it shows in a year.   I remember that terrible Fear Mary...but we cannot live with FEAR....we have to turn it over to God and let it go........or else we will go nutso.   I hope and pray you will be able to let go of the Fear as much as you can and reach for the Positive and the Good.........  sending a Big Hug and Love....  Glo

    I think what helps is that

    I think what helps is that time takes over and you are well, you dont worry as much. My first BC was in 1994, any lump, my eyes looked yello, i freaked. but as time went on and I even had tests for pain in my back hips etc.. . i am eworking on my second primary and I am bummed , but I dont deal with it the same as my first one. anyway it does get better.

  • MrsBob
    MrsBob Member Posts: 77
    #17
    Hi!
    I had a recurrence less

    Hi!

    I had a recurrence less than two years after chemo and then 12 years later :) It is so scary. I feel ok now because I am still being seen every couple months and I have bloodwork every month. My third time with bc was 2013 and Arimidex and xgeva took care of it and the Mets to my lungs was gone in a matter of a couple months. I take the Xgeva shot every three months and I think it has helped keep my spine and hip lesions under control.

    I had voluntary radiation on my spine lesion last November to see if it would take care of the stabbing pain I sometimes felt, and today I woke up to no pain. 

    Make sure your Onc answers all of your questions and you understand what they say. Take notes. I have a great nurse that I can call and ask questions if I have any. That helps. 

     

  • 1centyankee
    1centyankee Member Posts: 1
    #18

    Ladies, I feel humble reading your reports.   This is my second round with Cancer.   14 years in between.    I am having a double mastectomy Feb 6th.   No Chemo, No Radiation.   I am 67 and don't want to deal with this again.   I wish all of you ladies all the luck in the world.   I will be fine.   hugs and kisses

  • marycurbelo1204
    marycurbelo1204 Member Posts: 73
    #19
    1centyankee said:

    Ladies, I feel humble reading your reports.   This is my second round with Cancer.   14 years in between.    I am having a double mastectomy Feb 6th.   No Chemo, No Radiation.   I am 67 and don't want to deal with this again.   I wish all of you ladies all the luck in the world.   I will be fine.   hugs and kisses

    Oh my dear, I'm 62 and if my cancer recurs, I am going to fight until the end.  Lately I've been so paranoid, if my big toe hurts, I think I have feet cancer.  I'm having problems where I'll neet a colonoscopy.  I am scheduled for one on April 21st and my mind is already on colorectal cancer.  I can't shake this off either.

     

    Mary

  • GlowMore
    GlowMore Member Posts: 789 Member
    #20
    marycurbelo1204 said:

    Oh my dear, I'm 62 and if my cancer recurs, I am going to fight until the end.  Lately I've been so paranoid, if my big toe hurts, I think I have feet cancer.  I'm having problems where I'll neet a colonoscopy.  I am scheduled for one on April 21st and my mind is already on colorectal cancer.  I can't shake this off either.

     

    Mary

    Just Realized

    Hi Mary....just realized that way above when I said "wrong word" I was thinking of the word 'metastatic'

    ......because until it shows up in another place it has not metastasized.   But you know...if it is in the lymph nodes why doesn't that count as a metastasis?    It scares me too.   I had 6 lymph nodes that had cancer..........but so far it has not appeared anyplace else.  My odds of a new and completely different type of cancer are higher now than for the BC to show again..........because now I am an old lady....and now all the Scans and the chemo and the Radiation which did their good work 13 years ago....may cause me problems now.    You can't win and so it is best to just Live and try to let God take care of it....because the Fear is paralyzing.   I use Isaiah 41:10   A LOT..............   hugs and prayers for strength & courage.  Glo 

  • marycurbelo1204
    marycurbelo1204 Member Posts: 73
    #21
    GlowMore said:

    Just Realized

    Hi Mary....just realized that way above when I said "wrong word" I was thinking of the word 'metastatic'

    ......because until it shows up in another place it has not metastasized.   But you know...if it is in the lymph nodes why doesn't that count as a metastasis?    It scares me too.   I had 6 lymph nodes that had cancer..........but so far it has not appeared anyplace else.  My odds of a new and completely different type of cancer are higher now than for the BC to show again..........because now I am an old lady....and now all the Scans and the chemo and the Radiation which did their good work 13 years ago....may cause me problems now.    You can't win and so it is best to just Live and try to let God take care of it....because the Fear is paralyzing.   I use Isaiah 41:10   A LOT..............   hugs and prayers for strength & courage.  Glo 

    HAS ANYONE

    ANYBODY ABOVE TRIPLE NEGATIVE?  I AM...

     

    THANKS

    MARY

     

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