ct scan results

angelsnls
angelsnls Member Posts: 67

Well results are in.
Plueral-based metastasis in right upper lobe reduced slightly in maximal dimension from 22mm to 19mm. Left upper lobe metastasis reduced in size from 8mm to 5mm. Multiple other pulmonary metastases show similar reduction in size. Medially at right costophrenic sulcus a metastasis is again noted. This has reduced in AP dimension from 24mm to 17mm. I am suspicious of residual pulmonary embolism in branches of left lower lobe pulmonary artery. Essentially stable right paratracheal and superiormediastinal adenopathy, allowing for scanning differences. Static necrotic gastro-oesophagael lymphnode.
Abdomen /pelvis: Diffuse hepatic steatosis. Gallstones. right radicalnephrectomy. Recurrence in nephrectomy bed. Tumourthrombus/contigous invasion into IVC noted again. A soft tissue deposit sandwiched between diaphragmatic crus and IVC appears slightly smaller subjectively. Trace of free pelvic fluid. Nil else noted.
Skeleton: unremarkable 
Opinion: slight improvement in pulmonary lesions and retroperitoneal adenopathy as detailed above. Persistent pulmonary artery filling defect and IVC invasion.

What are others opinions on this results, I know it is a good thing that the lung mets etc are shrinking but I seem to be looking at this filling defect and IVC invasion as a big problem, am I right to worry about this.

Treatment options at the moment is to continue with the pazopanib also having daltoparine injections every day, see oncologist in 8 weeks and get another ct scan in 3months.
Thanks for any input

Comments

  • Allochka
    Allochka Member Posts: 1,060 Member
    It's definitely great that

    It's definitely great that metsare shrinking! As for nefrectomy site recurrence - have you checked this with your doctors? Are they worried about it? 

    Anyway, see how many members on this board have Stage 4 and deal with it very well! You will continue fighting, and we'll be here to support...

  • angelsnls
    angelsnls Member Posts: 67
    Allochka said:

    It's definitely great that

    It's definitely great that metsare shrinking! As for nefrectomy site recurrence - have you checked this with your doctors? Are they worried about it? 

    Anyway, see how many members on this board have Stage 4 and deal with it very well! You will continue fighting, and we'll be here to support...

    Thank you for your reply, the

    Thank you for your reply, the nephrectomy site recurrence was first mentioned 2scans ago, (wasn't mentioned in last scan) then it was only possible recurrence and radiotherapy was spoken about but the decision to wait was taken by my MDT team, I see oncologists nurse on 29th may for a prescription for pazopanib then I have another ct scan in June and see oncologist at end of June, should I be asking questions about this filling defect and also the invasion of the IVC ( don't know which questions I should be asking) macmillan nurse says that lung mets shrinking is a very good sign, I know this and I just have this nagging feeling about the recurrence,IVC and pulmonary filling,

    Sorry I am rambling now thanks for any advice

    Please give some advice stage 4ers I have been reading your posts and really value your and everyones advice.

    Love to you all a scared angela xx

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    angelsnls said:

    Thank you for your reply, the

    Thank you for your reply, the nephrectomy site recurrence was first mentioned 2scans ago, (wasn't mentioned in last scan) then it was only possible recurrence and radiotherapy was spoken about but the decision to wait was taken by my MDT team, I see oncologists nurse on 29th may for a prescription for pazopanib then I have another ct scan in June and see oncologist at end of June, should I be asking questions about this filling defect and also the invasion of the IVC ( don't know which questions I should be asking) macmillan nurse says that lung mets shrinking is a very good sign, I know this and I just have this nagging feeling about the recurrence,IVC and pulmonary filling,

    Sorry I am rambling now thanks for any advice

    Please give some advice stage 4ers I have been reading your posts and really value your and everyones advice.

    Love to you all a scared angela xx

    Hi Angela,
    I am not a stage

    Hi Angela,

    I am not a stage 4....but I think you should investigate more about IVC and all those other things.

    Another really good site with kidney cancer patients is Smart Patients. You will definitely get some answers there!

    Keep us posted!

    Hugs

    Jojo

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    Jojo61 said:

    Hi Angela,
    I am not a stage

    Hi Angela,

    I am not a stage 4....but I think you should investigate more about IVC and all those other things.

    Another really good site with kidney cancer patients is Smart Patients. You will definitely get some answers there!

    Keep us posted!

    Hugs

    Jojo

    Angela, although I am not

    Angela, although I am not Stage IV, I can let you know how I feel for you and what you are going through. I know you are scared as so much seems to be uncertain right now. Have you called your doctor with your concerns and questions?

    Stay tuned as others will help you. In the meantime, I am sending you calming, healing thoughts. When I feel I have little to no control I say the Serenity Prayer. Do you know it? Basically asking for help and serenity to accept the things you cannot change, the courage to change the things I can, and the wisdom to know the difference. I used to keep saying that until a peace would come over me.. it works..hope it does for you as well.

    Yes, good you came here to ask for information and support. Now may you consider Smart Patients and others here who will know more than I do.

    In the meantime, I feel connected in spirit my dear..

    Sending you healing vibes and serenity to replace your fears. You need ALL your energy to fight this fight.

    Gentle hugs, Jan

  • angelsnls
    angelsnls Member Posts: 67
    Jojo61 said:

    Hi Angela,
    I am not a stage

    Hi Angela,

    I am not a stage 4....but I think you should investigate more about IVC and all those other things.

    Another really good site with kidney cancer patients is Smart Patients. You will definitely get some answers there!

    Keep us posted!

    Hugs

    Jojo

    Thank you jojo61
    Sending love

    Thank you jojo61

    Sending love and hugs to you 

    Angelaxx

  • angelsnls
    angelsnls Member Posts: 67
    Jan4you said:

    Angela, although I am not

    Angela, although I am not Stage IV, I can let you know how I feel for you and what you are going through. I know you are scared as so much seems to be uncertain right now. Have you called your doctor with your concerns and questions?

    Stay tuned as others will help you. In the meantime, I am sending you calming, healing thoughts. When I feel I have little to no control I say the Serenity Prayer. Do you know it? Basically asking for help and serenity to accept the things you cannot change, the courage to change the things I can, and the wisdom to know the difference. I used to keep saying that until a peace would come over me.. it works..hope it does for you as well.

    Yes, good you came here to ask for information and support. Now may you consider Smart Patients and others here who will know more than I do.

    In the meantime, I feel connected in spirit my dear..

    Sending you healing vibes and serenity to replace your fears. You need ALL your energy to fight this fight.

    Gentle hugs, Jan

    Awe Jan that is so lovely, I

    Awe Jan that is so lovely, I will try the serenity prayer and thank you so much.

    Angela xx

  • angelsnls
    angelsnls Member Posts: 67
    update

    hi everyone just to let you all know, I emailed my oncologists nurse and I got a good reply, the filling defect is being treated with daltoparine injections as they are thinking it is a blood clot in the pulmonary artery, and the IVC invasion slightly decreased in the last scan so radiotherapy will be a future option if needed. So all in all everything is shrinking yay just have to stick a needle in my stonach everyday forat least 3 months probably 6 months. 

    Thank you everbody for listening 

    Love to you all

    Angela xx

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    angelsnls said:

    update

    hi everyone just to let you all know, I emailed my oncologists nurse and I got a good reply, the filling defect is being treated with daltoparine injections as they are thinking it is a blood clot in the pulmonary artery, and the IVC invasion slightly decreased in the last scan so radiotherapy will be a future option if needed. So all in all everything is shrinking yay just have to stick a needle in my stonach everyday forat least 3 months probably 6 months. 

    Thank you everbody for listening 

    Love to you all

    Angela xx

    That sounds good, Angela. I

    That sounds good, Angela. I must admit some of it is a bit Greek to me....but shrinkage is always good!

    Hugs

    Jojo

  • brea588
    brea588 Member Posts: 240
    angelsnls said:

    update

    hi everyone just to let you all know, I emailed my oncologists nurse and I got a good reply, the filling defect is being treated with daltoparine injections as they are thinking it is a blood clot in the pulmonary artery, and the IVC invasion slightly decreased in the last scan so radiotherapy will be a future option if needed. So all in all everything is shrinking yay just have to stick a needle in my stonach everyday forat least 3 months probably 6 months. 

    Thank you everbody for listening 

    Love to you all

    Angela xx

    hi

    Sounds like things are reducing some and getting a little better.  Good for you!  Yeah you will be getting blood thinner in the shots for the blood clots to dissolve and prevent othes from forming.  Praying for you.

  • angelsnls
    angelsnls Member Posts: 67
    Jojo61 said:

    That sounds good, Angela. I

    That sounds good, Angela. I must admit some of it is a bit Greek to me....but shrinkage is always good!

    Hugs

    Jojo

    Hi jojo I think everything's

    Hi jojo I think everything's a lot Greek to me most of the time, lots of love

    Angela xx

  • angelsnls
    angelsnls Member Posts: 67
    brea588 said:

    hi

    Sounds like things are reducing some and getting a little better.  Good for you!  Yeah you will be getting blood thinner in the shots for the blood clots to dissolve and prevent othes from forming.  Praying for you.

    Thank you brea588 sending you

    Thank you brea588 sending you love and hugs 

    Angela xx