Anyone had an APR after reoccurrence

pializ
pializ Member Posts: 508 Member

 anyone?

Comments

  • lp1964
    lp1964 Member Posts: 1,239 Member
    Dear Friend,

    My surgery was APR for rectal cancer. Have any questions?

    Laz

  • pializ
    pializ Member Posts: 508 Member
    lp1964 said:

    Dear Friend,

    My surgery was APR for rectal cancer. Have any questions?

    Laz

    Thanks Laz

    how long did it take you to recover from surgery? I know we are all different. It's 50/50 it's come back. Awaiting scans and EUA. Very scared

  • lp1964
    lp1964 Member Posts: 1,239 Member
    pializ said:

    Thanks Laz

    how long did it take you to recover from surgery? I know we are all different. It's 50/50 it's come back. Awaiting scans and EUA. Very scared

    Hard to say.

    The surgery was in October of 2013. I had some complication with the wound so they had to do a repair in December. I started chemo  and that kind of dominated the way I felt and recovering from the surgery was secondary. for me it was a big surgery because they took one of my abdominal muscles and folded it into the space where the rectum used to be to prevent the intestines sinking into the pelvis and help to close the wound on the bottom.

    in 4 months I felt ok and by last September perfect.

    i hope this helps and good luck.

    Laz

  • Ouch_Ouch_Ouch
    Ouch_Ouch_Ouch Member Posts: 508 Member
    It can't hurt to call..............

    Sloane-Kettering is running a study for people with recurrent anal cancer: "Patients must either not want or be able to have major cancer surgery."

    http://www.mskcc.org/cancer-care/trial/14-104

  • pializ
    pializ Member Posts: 508 Member

    It can't hurt to call..............

    Sloane-Kettering is running a study for people with recurrent anal cancer: "Patients must either not want or be able to have major cancer surgery."

    http://www.mskcc.org/cancer-care/trial/14-104

    Thanks

    Laz, that is helpful thanks

     

    OOO

    i live in the UK

     

    As long as it's a local reoccurence, & not spread further, I will handle the APR, but this not knowing time is just the pits........

     

    thanks again

  • TraceyUSA
    TraceyUSA Member Posts: 316
    Sorry you are going through this, Pializ!

    If I may ask, what has you feaing a reoccurrence?

    Thoughts & Prayers,

    Tracey

  • Ouch_Ouch_Ouch
    Ouch_Ouch_Ouch Member Posts: 508 Member
    pializ said:

    Thanks

    Laz, that is helpful thanks

     

    OOO

    i live in the UK

     

    As long as it's a local reoccurence, & not spread further, I will handle the APR, but this not knowing time is just the pits........

     

    thanks again

    Sorry.

    NOW I remember that you are a Brit. "Chemo-brain" is real and lives!

  • pializ
    pializ Member Posts: 508 Member
    TraceyUSA said:

    Sorry you are going through this, Pializ!

    If I may ask, what has you feaing a reoccurrence?

    Thoughts & Prayers,

    Tracey

    Tracey, when I saw my oncologist this week she did DRE procedure and could feel a growth at the original tumour site. Awaiting examination under anaesthetic on 20th, plus ct and mri scans to know exact situation. I finished treatment 25th January 2013. I am not scared of APR, but if it's gone further than original site, only chemo then in Wales. Treated as palliative care and considered terminal. Scared??? More than a little. Can't eat, sleep, & working is a trial. Thank goodness I have a few days off over Easter

  • jcruz
    jcruz Member Posts: 379 Member
    pializ said:

    Tracey, when I saw my oncologist this week she did DRE procedure and could feel a growth at the original tumour site. Awaiting examination under anaesthetic on 20th, plus ct and mri scans to know exact situation. I finished treatment 25th January 2013. I am not scared of APR, but if it's gone further than original site, only chemo then in Wales. Treated as palliative care and considered terminal. Scared??? More than a little. Can't eat, sleep, & working is a trial. Thank goodness I have a few days off over Easter

    pializ

    I am so sorry that you are going through this waiting and worrying.  I think I'd be jumping out of my skin if I were in your shoes.  I am going to keep you in my thoughts through this month.  I wish you didn't have to wait so long for the EUA.

    Janet

  • lp1964
    lp1964 Member Posts: 1,239 Member
    pializ said:

    Tracey, when I saw my oncologist this week she did DRE procedure and could feel a growth at the original tumour site. Awaiting examination under anaesthetic on 20th, plus ct and mri scans to know exact situation. I finished treatment 25th January 2013. I am not scared of APR, but if it's gone further than original site, only chemo then in Wales. Treated as palliative care and considered terminal. Scared??? More than a little. Can't eat, sleep, & working is a trial. Thank goodness I have a few days off over Easter

    Don't be afraid!

    Here I am the example that even after all this horror and APR surgery I'm in one piece and prospering. I work full time and despite of daily challenges doing great. Cross the bridge when you get there. I'm praying for you for the best outcome.

    Laz

  • TraceyUSA
    TraceyUSA Member Posts: 316
    pializ said:

    Tracey, when I saw my oncologist this week she did DRE procedure and could feel a growth at the original tumour site. Awaiting examination under anaesthetic on 20th, plus ct and mri scans to know exact situation. I finished treatment 25th January 2013. I am not scared of APR, but if it's gone further than original site, only chemo then in Wales. Treated as palliative care and considered terminal. Scared??? More than a little. Can't eat, sleep, & working is a trial. Thank goodness I have a few days off over Easter

    PiaLiz

    You are not far ahead of me, I finished treatments March 14, 2013.  In January I had all my 2 year exams including a EUA with high resolution scope.  I thought it'd be a routine have a look and tell you all is ok exam.  Instead when I woke up I was told they did a biopsy.  I was totally freaked out and feared the worst.  After worrying the weekend and most of Monday, I got the results, which thankfully, turned out to be nothing more than inflammation.  I'm sorry you have to wait so long for the tests.  I hope that it turns out to be nothing more than scar tissue and inflammation.  You will remain in my thoughts & prayers. 

  • pializ
    pializ Member Posts: 508 Member
    TraceyUSA said:

    PiaLiz

    You are not far ahead of me, I finished treatments March 14, 2013.  In January I had all my 2 year exams including a EUA with high resolution scope.  I thought it'd be a routine have a look and tell you all is ok exam.  Instead when I woke up I was told they did a biopsy.  I was totally freaked out and feared the worst.  After worrying the weekend and most of Monday, I got the results, which thankfully, turned out to be nothing more than inflammation.  I'm sorry you have to wait so long for the tests.  I hope that it turns out to be nothing more than scar tissue and inflammation.  You will remain in my thoughts & prayers. 

    The waiting game

    thank you for your kind words. It's not easy trying to keep it all together is it whilst we wait? I try to practice mindfulness & sometimes that helps. Also keeping myself busy with tasks to achieve. A 'to do' list helps with that. But other times I just go down that dark route. & boy does that get dark. 

  • mp327
    mp327 Member Posts: 4,440 Member
    pializ said:

    The waiting game

    thank you for your kind words. It's not easy trying to keep it all together is it whilst we wait? I try to practice mindfulness & sometimes that helps. Also keeping myself busy with tasks to achieve. A 'to do' list helps with that. But other times I just go down that dark route. & boy does that get dark. 

    pializ

    I want you to know that I am thinking of you as you tread water, waiting for answers.  It is so difficult to play the waiting game.  You are definitey in my prayers.

    Martha

  • pializ
    pializ Member Posts: 508 Member
    mp327 said:

    pializ

    I want you to know that I am thinking of you as you tread water, waiting for answers.  It is so difficult to play the waiting game.  You are definitey in my prayers.

    Martha

    Martha

    thank you