MISSING----DEBRAJO, CULKA, TIGERS DO BOUNCE, NORMA2, BONNIEP, SARA ZIPORA, NANCIEB, TEAMKELLY, LIZ G

Hi! I'm here, too!

I troll our site everyday to see how everyone is doing, but it is hard to hear stories of how long & difficult some of your journeys have been. I still feel blessed to have gotten off with Stage 1a, grade 1 cancer with no further treatment needed. However, it seems to make it more heart wrenching when you read what others are still experiencing...or the ones who fought such a hard battle and lost!

I am dealing with a heart condition that has caused me far more trouble than the cancer did, but at least the treatments are not as difficult...at this point!

I think it was wonderful of Nempark to bring missing members to everyone's attention. I often wonder what has happened to the adies who posted frequently when I was diagnosed like Dr. Beila, Sara Zippora and others. You hope they have just moved on or like DebraJo have other things going on....(DebraJo, I am praying for you as you were one of favorites when diagnosed especially with all you were dealing with family-wise!)

Anyhow, I am here & hope Nempark's post will result in posts from other missing members!

Kathy

thanks for asking. Just going through a lot of crap financially, once again finding myself jobless and it is not fun job hunting at 62. I have to make some drastic changes in my life pretty quick while I still have some savings.  I may have to sell my home and go somewhere cheaper than California and I can start a new career as a store greeter :-). still NED as far as I know but plenty of other non-life threatening but life interfering conditions that prevent me from de-stressing by hiking with  friends from meetup. i seem to have developed exercise induced asthma and the inhaler doesn't help at all.

DebraJo and kathy. I am sorry to hear you are having health issues. I hope everything turns out ok.

i check in occasionally but don't post unless I have something that I really feel is important.

nancy

Thanks Connie. The financial stuff is very stressful but I know I will get through it in the future. I am a survivor in more ways than cancer.

I guess I don't post because the other ladies seem to have more experience and knowledge than I do and answer the questions better than I ever could. Also, I think it part of wanting to get on with my life. When I was going through chemo and was hairless, family and friends would call me to talk about my cancer. I told my family that I'd love to chat about our kids and other things but my cancer was off limits as a conversation topic.  I would be on a hike with a meetup group and complete strangers would want me to tell them all of the details about my cancer. I told someone that I should answer that I wouldn't ask the person about his or her hemorrhoids and they should leave me to enjoy a day in the outdoors wihere I could forget my disease.

 This is just the way I am. It's not the right way or the wrong way. Everyone is different.

I'll try to check in more frequently. I just want to be careful not to be negative while I am getting through this latest unemployment crisis. I did learn about a program called keepyourhome.org where California will make up to 18 months of mortgage payments on behalf of unemployment recipients. A woman I know just got accepted. That may be an option for me as well. And the phone has been ringing constantly with staffing agencies wanting to submit me for contract jobs although I am not a good fit for a large percentage. So I am trying to remain optimistic.

A few more weeks and I`m hitting 7 years. So far I`m healthy, but I was like that even BC (before cancer), didn`t see my family doctor for over a year, oncologist? Well I can`t remember, maybe 4-5 years. But with stage II, grade 3 UPSC, clear cell and endometroid I`m doing everything possible to keep myself healthy.

Teamkelly said:

Still Alive & KickingI

Thanks for the roll call. Kelly is still moving forward, she is on her 4 th or 5 th treatment, starting a new clinical trial for Uterine Sarcomas with the Sarcoma Clinic in Santa Monica. she has had another recurrence in her brain, but they used CyberKnife again and for the moment that is clear. she walks around with tumors in her stoMach and lungs but you would never know it. She still works out and walks, as well as vacations in between whatever treatment they have her on at the moment.  She is an amazing woman as all of you are!  I am going to try to post a picture of her and her doctor, she ran into him today in Starbucks.

God bless you all!

 

I thought as I was reading the roll call, how much I miss hearing from Jazzy. She was such an inspiration and is  missed. Just wanted to remember her in this roll call.

How nice to see your 'all points bulletin', it couldn't have come on a better morning!

i too have been remiss in not writing, for the most part, as others have said, missing those who were there, and fought so hard to the end.  It is also heartbreaking for me, and others I guess too to see the Newbeies and feel theiranoc, pain, and the sense of déjà vu or maybe PTSD (Post Traumatic Stress Disorder) is strong.

With gratitude to God I am still here, it will be five yrs in July.

adenocarcenoma Mixed,Clear and differentiated Stage IV B, given an 'expiration date' of 4-6 months if chemo didn't help. Which it didn't, made tumors on four rounds of various chemo combinations. Was never NED, never in remission. Statisticaly if you have recurrance within 12 'mo of primary, then lights out at 12 months. DONT BELIEVE STATISTICS!

Had five rounds Radiation imrt 26-28 times each round. That spot on work helped. Chemo killed me but didn't do nada for cancer.

Sooo, Anti Cancer Book, David Servan Schreiber, undocumented stuff, excersize, one glass red wine a day,72%or more dark chocolate cube, Family, work, swimming, and praying.

Did DNA testing of tumors to cross check them against DNA of chemo, but had too many mutations (100+) for that to work. (An embarrassed Doc told me about mutations, I said: "Doc of I had these before chemo and radiation my kids would really have been very funny looking, so mutations are all due to cancer, chemo and rad treatment!"

Also checked various cancer centers treating various mutations, but would have needed to cut myself up in pieces to be treated all over USA and Europe simultaneously and then, no one place could do it.

Soo went OFF CHEMO of my own volition THREE YEARS ago. Docs hate me, as they ''do' chemo., found one that will follow me and neither of us are Lemmings! Can't do more radiation as I have been rejected because area in question radiated too many times. Will do surgery to roto rooter build up of tumors, to minimize the number of growing ones for the time being.

Your post came just as I wasp brooding Results of yesterday's PET,get them every three or four months as that is only thing that shows anything, ca125 8-15 NORMAL! Ha!

Results show the siX  tumors I had four months ago now  are 10 tumors, a new little mass 1.5mm on lung, but nine in pelvic place Thank God not in vital organs.

My prayer for us all is may Passover signify that bad buggers will 'pass over' us, and Easter will bring Renewal.

Keep on fighting, Living is the best Revenge,

Power to the Sistehood,

Sara

2015-04-01

Sara Zipora said:

Checking in

How nice to see your 'all points bulletin', it couldn't have come on a better morning!

i too have been remiss in not writing, for the most part, as others have said, missing those who were there, and fought so hard to the end.  It is also heartbreaking for me, and others I guess too to see the Newbeies and feel theiranoc, pain, and the sense of déjà vu or maybe PTSD (Post Traumatic Stress Disorder) is strong.

With gratitude to God I am still here, it will be five yrs in July.

adenocarcenoma Mixed,Clear and differentiated Stage IV B, given an 'expiration date' of 4-6 months if chemo didn't help. Which it didn't, made tumors on four rounds of various chemo combinations. Was never NED, never in remission. Statisticaly if you have recurrance within 12 'mo of primary, then lights out at 12 months. DONT BELIEVE STATISTICS!

Had five rounds Radiation imrt 26-28 times each round. That spot on work helped. Chemo killed me but didn't do nada for cancer.

Sooo, Anti Cancer Book, David Servan Schreiber, undocumented stuff, excersize, one glass red wine a day,72%or more dark chocolate cube, Family, work, swimming, and praying.

Did DNA testing of tumors to cross check them against DNA of chemo, but had too many mutations (100+) for that to work. (An embarrassed Doc told me about mutations, I said: "Doc of I had these before chemo and radiation my kids would really have been very funny looking, so mutations are all due to cancer, chemo and rad treatment!"

Also checked various cancer centers treating various mutations, but would have needed to cut myself up in pieces to be treated all over USA and Europe simultaneously and then, no one place could do it.

Soo went OFF CHEMO of my own volition THREE YEARS ago. Docs hate me, as they ''do' chemo., found one that will follow me and neither of us are Lemmings! Can't do more radiation as I have been rejected because area in question radiated too many times. Will do surgery to roto rooter build up of tumors, to minimize the number of growing ones for the time being.

Your post came just as I wasp brooding Results of yesterday's PET,get them every three or four months as that is only thing that shows anything, ca125 8-15 NORMAL! Ha!

Results show the siX  tumors I had four months ago now  are 10 tumors, a new little mass 1.5mm on lung, but nine in pelvic place Thank God not in vital organs.

My prayer for us all is may Passover signify that bad buggers will 'pass over' us, and Easter will bring Renewal.

Keep on fighting, Living is the best Revenge,

Power to the Sistehood,

Sara

2015-04-01

You made my day!!!  I have been soooo worried about you.  I really feared the worst.  Thank you, thank you for letting us know you are still in the fight.

i well understand your comments in the second paragraph.  Sometimes I just have to not come here or not post but after a few days, I find myself back.  My course has so far been a walk in the park compared to many so I feel a bit guilty even piping up.

keep getting your revenge

Sara Zipora said:

Checking in

How nice to see your 'all points bulletin', it couldn't have come on a better morning!

i too have been remiss in not writing, for the most part, as others have said, missing those who were there, and fought so hard to the end.  It is also heartbreaking for me, and others I guess too to see the Newbeies and feel theiranoc, pain, and the sense of déjà vu or maybe PTSD (Post Traumatic Stress Disorder) is strong.

With gratitude to God I am still here, it will be five yrs in July.

adenocarcenoma Mixed,Clear and differentiated Stage IV B, given an 'expiration date' of 4-6 months if chemo didn't help. Which it didn't, made tumors on four rounds of various chemo combinations. Was never NED, never in remission. Statisticaly if you have recurrance within 12 'mo of primary, then lights out at 12 months. DONT BELIEVE STATISTICS!

Had five rounds Radiation imrt 26-28 times each round. That spot on work helped. Chemo killed me but didn't do nada for cancer.

Sooo, Anti Cancer Book, David Servan Schreiber, undocumented stuff, excersize, one glass red wine a day,72%or more dark chocolate cube, Family, work, swimming, and praying.

Did DNA testing of tumors to cross check them against DNA of chemo, but had too many mutations (100+) for that to work. (An embarrassed Doc told me about mutations, I said: "Doc of I had these before chemo and radiation my kids would really have been very funny looking, so mutations are all due to cancer, chemo and rad treatment!"

Also checked various cancer centers treating various mutations, but would have needed to cut myself up in pieces to be treated all over USA and Europe simultaneously and then, no one place could do it.

Soo went OFF CHEMO of my own volition THREE YEARS ago. Docs hate me, as they ''do' chemo., found one that will follow me and neither of us are Lemmings! Can't do more radiation as I have been rejected because area in question radiated too many times. Will do surgery to roto rooter build up of tumors, to minimize the number of growing ones for the time being.

Your post came just as I wasp brooding Results of yesterday's PET,get them every three or four months as that is only thing that shows anything, ca125 8-15 NORMAL! Ha!

Results show the siX  tumors I had four months ago now  are 10 tumors, a new little mass 1.5mm on lung, but nine in pelvic place Thank God not in vital organs.

My prayer for us all is may Passover signify that bad buggers will 'pass over' us, and Easter will bring Renewal.

Keep on fighting, Living is the best Revenge,

Power to the Sistehood,

Sara

2015-04-01

it isn't so good to see your post.  I am glad you are surviving and thriving.  I know you have had many problems.  I am glad you are still fighting.  I agree that we need " the bad buggers" to pass over us.  Wishing everyone a Happy Easter.   

Please keep us posted as you "Live for the best Revenge".  In peace and caring.  May you reach that 5 year anniversary in July.