The Rumor Was True - Sundance Was Full of $hit After All. (Updated below)

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  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #42
    Well our roaring Lion

    I had a long talk at the sky last night, well, not the sky really, I was calling on Jennie to see if she had any pull to help you through this latest trial and tribulation you are going through, I'm pretty sure if she can, help is on it's way.

    Reading about how you're doing just fills me with tears at your pain.  As for your body I've learned to quit looking at mine,  we both look like near concentration camp emancipated bodies I'm pretty sure from the description of yourself, I've decided just to do the best I can and quit agonizing Everytime the scale shows another set back, just do the best you can getting nutrition whether through TPN, or drinking tons of Boost or Ensure and try and get those calories.

    I love you as a friend, as a brother and as a fellow warrior in a struggle to survive and to survive and be able to enjoy life once again, I'm keeping that faith in you, that is what you will do, enjoy life again.

    Im glad you called hospice to get what you need right now, and that your CEA is lower (that is amazing) so get better, then get off hospice and feel the rays of sunshine warming your face as Spring slowly arrives your way, it just takes time.

    Hugs,

    Winter Marie

     

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #43
    herdizziness said:

    Well our roaring Lion

    I had a long talk at the sky last night, well, not the sky really, I was calling on Jennie to see if she had any pull to help you through this latest trial and tribulation you are going through, I'm pretty sure if she can, help is on it's way.

    Reading about how you're doing just fills me with tears at your pain.  As for your body I've learned to quit looking at mine,  we both look like near concentration camp emancipated bodies I'm pretty sure from the description of yourself, I've decided just to do the best I can and quit agonizing Everytime the scale shows another set back, just do the best you can getting nutrition whether through TPN, or drinking tons of Boost or Ensure and try and get those calories.

    I love you as a friend, as a brother and as a fellow warrior in a struggle to survive and to survive and be able to enjoy life once again, I'm keeping that faith in you, that is what you will do, enjoy life again.

    Im glad you called hospice to get what you need right now, and that your CEA is lower (that is amazing) so get better, then get off hospice and feel the rays of sunshine warming your face as Spring slowly arrives your way, it just takes time.

    Hugs,

    Winter Marie

     

    Wiinter

    just don't feel like I'm going to make it right no.  Can't eat or drink much and I'll probsbly end up starving to deat...I wonder if I'll make the year...

    im trying but so far it's not enough....the pain is winning the war...

    love/Craig 

  • Yolllmbs
    Yolllmbs Member Posts: 360 Member
    #44
    herdizziness said:

    Well our roaring Lion

    I had a long talk at the sky last night, well, not the sky really, I was calling on Jennie to see if she had any pull to help you through this latest trial and tribulation you are going through, I'm pretty sure if she can, help is on it's way.

    Reading about how you're doing just fills me with tears at your pain.  As for your body I've learned to quit looking at mine,  we both look like near concentration camp emancipated bodies I'm pretty sure from the description of yourself, I've decided just to do the best I can and quit agonizing Everytime the scale shows another set back, just do the best you can getting nutrition whether through TPN, or drinking tons of Boost or Ensure and try and get those calories.

    I love you as a friend, as a brother and as a fellow warrior in a struggle to survive and to survive and be able to enjoy life once again, I'm keeping that faith in you, that is what you will do, enjoy life again.

    Im glad you called hospice to get what you need right now, and that your CEA is lower (that is amazing) so get better, then get off hospice and feel the rays of sunshine warming your face as Spring slowly arrives your way, it just takes time.

    Hugs,

    Winter Marie

     

    You're an inspiration

    Craig,

       I wish all the cyber hugs and prayers would make things better. You've been so strong. I have you in my thoughts and prayers.  Youre messages are always welcomed. I just want to make things better. Hopefully hospice will find the balance to ease your pain. 

    Yolanda

  • wolfen
    wolfen Member Posts: 1,324 Member
    #45
    Yolllmbs said:

    You're an inspiration

    Craig,

       I wish all the cyber hugs and prayers would make things better. You've been so strong. I have you in my thoughts and prayers.  Youre messages are always welcomed. I just want to make things better. Hopefully hospice will find the balance to ease your pain. 

    Yolanda

    "My Texas Son"

    No way are you whining and "What the hey"? Do I need to come down there with my boots kick some of the bureaucrats back into line and refresh their memories about "do no harm"? I am so heartbroken for you as you endure all this while they tough it out on the golf course.

    JBG had a pain pump as well as Fentanyl patches. I believe the coctail included Dilaudid. It also was attached to her port, but was not heavy and cumbersome. Please be careful with the stuff, especially if you are on other meds such as Ativan. Too much of a good thing can make you really loopy.

    My heart is with you and Kim as you struggle through this never ending battle to acheve comfort. I'm glad that you have the Hospice team now to help you.

    Luv,

    "Mama"

  • Luv2lunch
    Luv2lunch Member Posts: 270
    #46
    Hi

    Hey there brother,

    Just wanted you to know we are still here thinking and praying for you and Kim. I'm so sorry for what you are going through. You have been through the ringer. I don't have any advice except to keep roaring. You have been there for us from day one. We are here for you also. Please hang in there. We love you.

    Linda and Miss Ellie (the cheerleaders :)

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #47
    seeing

    Craig, hope at least few more things go your way today.  Thanks for letting us "see" some of the action.  Makes it more pointed that we start early, work to keep control of the equipment, personnel and meds at home, and stiff the hospital on stacks of Benjis, when possible.  One thing I can promise my wife, we'll do chemo when and how we please.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #48
    Sorry

    Sorry about the surgery and all that you are going through.  Hoping that they can deal with the pain issue better for you and I'm sure, like you said, it has some modifications that you have to go through.  You are always in my thoughts.

    Kim

  • mom_2_3
    mom_2_3 Member Posts: 953 Member
    #49
    Craig

    It's truly breaking my heart how much you have been through.  I wonder how much can one man take and then I remember that you are no ordinary man.  You are a super hero and superheroes never give up.  Please hang in there as best as you can and take some small comfort knowing that so many of us around this country and world keep you in our thoughts and prayers.

     

    Peace, 

    Amy

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #50
    Annabelle41415 said:

    Sorry

    Sorry about the surgery and all that you are going through.  Hoping that they can deal with the pain issue better for you and I'm sure, like you said, it has some modifications that you have to go through.  You are always in my thoughts.

    Kim

    Meds

    morphibe (stwiched)

    fentanyl patches 200 mcg

    lidicaone 2 patches

    Liness tablet daily

    dexamethasone for inflammation

    discontinued:  Toratorl and dilaudid

     

    nurses all agree I'm on high doses from the regular folks.  Most would be down they said but my tolerance runs high.

    what a long day and night it's been...regular nurse showing today and apparently now a social worker.

    no major improvements to say over pills.  Surgeon visit consult next week if I can get there

    iven labeled a "crisis care"

    see you/Crsig 

  • danker
    danker Member Posts: 1,276 Member
    #51
    Sundanceh said:

    Linda

    Im on several patches right now.

    and I could not drink all of that so they inserted an NG tube twice - and second time I was awake...it hurt bad.

    thank you

    ng tube

    I too have had them inserted while awake.  No fun.  But we do survive it all.  Hang in there my friend.

  • danker
    danker Member Posts: 1,276 Member
    #52
    Sundanceh said:

    Meds

    morphibe (stwiched)

    fentanyl patches 200 mcg

    lidicaone 2 patches

    Liness tablet daily

    dexamethasone for inflammation

    discontinued:  Toratorl and dilaudid

     

    nurses all agree I'm on high doses from the regular folks.  Most would be down they said but my tolerance runs high.

    what a long day and night it's been...regular nurse showing today and apparently now a social worker.

    no major improvements to say over pills.  Surgeon visit consult next week if I can get there

    iven labeled a "crisis care"

    see you/Crsig 

    pain

    We would all take some of your pain to free you of it , if we only could! I pray your life becomes easier. Good luck to you!!!

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #53
    If you can, check in with us

    we're all thinking of you.

    Sending lots o' love~AA

  • geotina
    geotina Member Posts: 2,111 Member
    #54
    Craig:

    Sorry for the late response on this one.  I have been gone with my daughter on a short getaway.

    I am so sorry for what you are going through.   Words of comfort are all I can offer.  You have been through so much fighting this disease.   I hate seeing my dear friends suffer so very much, it is so unfair. 

    Again I am so very sorry for all you are going through.  

    Love and Hugs to you and Kim - Tina

  • hippiechicks
    hippiechicks Member Posts: 509 Member
    #55
    Awww Craig, wishing I could

    Awww Craig, wishing I could take some of this burden from you right now.  I am pleased to hear you were able to get some home help and a bit of relief from hospice, but this not getting TPN sorta baffles me.  I do not understand why this would not be used to help you with weight and strength.  It just does not sound right .. Maybe your surgeon could push it through for you?  I am sure they would want you to be nurished well for surgery? 

    And BTW, you get to whine if you want! Cry, scream, laugh, tell a joke or any other thing you want!  That's what friends, cyber or not are for!! :)

    It was great to see your post, and so sorry it took me so long to post .. but have been off line for a bit. 

    My thoughts, prayers and warm wishes to both you and Kim.  Please please keep roaring that roar ... my best to you. 

  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #56
    Oh dear

    Love you, Craig!! You've been such a rock to this community.

     

    *hugs*

    Gail

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