Another New Member

NewHere · February 2015

Trubrit said:
Video journal
I started, along with a written journal, a video journal. Oh, it is so interesting to go back and watch them. I thought I was doing quite well during chemo, now I go back and I look like Hell. HA!

I used my iPhone (which is not a phone any more but a great camera) for my videos. I have them of me getting my port accessed, my chemo infusion, my blood infusion. Now it is all behind me (I hope) and the videos are 'fun' to watch.

Sue - Tru

Well I Usually Have My iPhone and iPad

With me, so maybe I will try your thing. Bought the iPad along to have photos of friends and family during the stay, some games, some music. Figure I will be bringing it to appointments also. Apparently it would have been real amusing to have video of me when I first woke up in recovery and then also when moved to the room. Glad it did not happen

I am now convinced I am going to need to sign up for MLB.tv, looks like I am going to have time to watch some more baseball than normal the next 6 months or so

NewHere · February 2015

sflgirl said:
Surreal, a great word
That is a perfect explanation for this new feeling. I am just a little ahead of you, had colon resection a month ago and had a port inserted two days ago and chemo starts tomorrow. I won't lie, it's a weird feeling but all the good support and info from the folks here that have experienced this makes it seem like the best idea.

Wishing you the best,

Andrea

Thank You

Seems to be the only word that makes sense. I am now about 10 days out of surgery and still not quite sure if anything in all this is real. It simply cannot be. Just so strange. And so quick.

Hope the chemo session went well for you. Guess we will both be here discussing things and helping others. Good board.

sflgirl · February 2015

NewHere said:
Thank You
Seems to be the only word that makes sense. I am now about 10 days out of surgery and still not quite sure if anything in all this is real. It simply cannot be. Just so strange. And so quick.

Hope the chemo session went well for you. Guess we will both be here discussing things and helping others. Good board.

The first chemo

Quite a long day, 10 hours at the hospital. They stuck a big needle in the port. Ask for the cold spray before the stick, it makes it very bearable. Others here told me to do that thankfully. They put me on Folfoxiri and Avastin. Wasn't really expecting that, thought is was going to be Folfox. The other two drugs added 3 hours to the infusion time. Got the pump last night with 5fu and now 24 hours in. Running a fever and not hungry. Thought I would feel better today but not in the cards for me I guess.

I'm with you, still can't figure out why. But there is no answer to that.

I go to Cleveland Clinic, here is a site that has been helpful to me as a novice. http://chemocare.com/chemotherapy/drug-info/default.aspx#.VOeWrDd0zIU

Best to you.

NewHere · February 2015

sflgirl said:
The first chemo
Quite a long day, 10 hours at the hospital. They stuck a big needle in the port. Ask for the cold spray before the stick, it makes it very bearable. Others here told me to do that thankfully. They put me on Folfoxiri and Avastin. Wasn't really expecting that, thought is was going to be Folfox. The other two drugs added 3 hours to the infusion time. Got the pump last night with 5fu and now 24 hours in. Running a fever and not hungry. Thought I would feel better today but not in the cards for me I guess.

I'm with you, still can't figure out why. But there is no answer to that.

I go to Cleveland Clinic, here is a site that has been helpful to me as a novice. http://chemocare.com/chemotherapy/drug-info/default.aspx#.VOeWrDd0zIU

Best to you.

Chemo

Someone else mentioned the Lidocaine and you mentioning this are both really helpful. Thanks.

I was initially thinking a couple of hours two days a week and now looking at what people are describing I was a bit too optimistic, I saw the pump issue mentioned elsewhere and it looks like part of the infusion is 22 hours on a pump. Will know more next week I hope.

Hope you feel better quickly and can adjust to this qucikly. Thank you for the link, added to my bookmarks.

Trubrit · February 2015

NewHere said:
Chemo
Someone else mentioned the Lidocaine and you mentioning this are both really helpful. Thanks.

I was initially thinking a couple of hours two days a week and now looking at what people are describing I was a bit too optimistic, I saw the pump issue mentioned elsewhere and it looks like part of the infusion is 22 hours on a pump. Will know more next week I hope.

Hope you feel better quickly and can adjust to this qucikly. Thank you for the link, added to my bookmarks.

Needle

This is pretty much what my needle looked like for the port. Nasty, don't you think!!!

If the port is in properly, the skin is really thin across the top of the port, and you just feel a little prick when it is inserted, so no big deal.

NewHere · February 2015

Trubrit said:
Needle
This is pretty much what my needle looked like for the port. Nasty, don't you think!!!

If the port is in properly, the skin is really thin across the top of the port, and you just feel a little prick when it is inserted, so no big deal.

It Is Funny

Kind of strange how some things make me go "Urgh" a bit more. I think that one does. I am also not really looking at my incisions and so forh. Kind of weird looking that one time I looked, going to wait again. Maybe when they dissappear a bit and I can start working out again I will take a look. The swelling and bloat is not pretty. LOL.

Another New Member

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