Stage 4 Need encouragement

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Comments

  • foxhd
    foxhd Member Posts: 3,181 Member
    #22
    Joe C said:

    I'm sorry to hear you and

    I'm sorry to hear you and your husband had to join this club.  The people on this site are very caring, helpful, and supportive.  I am also stage IV/grade IV and am going through consultations to treat mets in the lungs.  I met with Dr Voss @ MSK two weeks ago and have been in regular communication since.  He has been the most impressive doctor my wife and I have met thus far.  Intelligent, mindful of the patient, and thorough in his discussion.  He also persuaded us to see two other doctors:  Dr Walter Sadler @ U of Chicago and Dr David McDermott @ Beth Israel in Boston.  That says a lot about a doctor who can give such top notch referrals yet still keep up with the patient to further inform and guide.  You are in excellent hands.

    There is a lot of anxiety associated with cancer, as others have pointed out.  I don't know of a secret to keep yourself worry-free but I have found that associating with loved ones more relieves a lot of the pressure.  Connecting with new people as well.  Just jumping into life more has helped put things in perspective.  I hope you find what works to pull up when you hit your lows (we all hit lows now and then).  Don't be a stranger! :)

    Joe 

    stage 4

    Terrie, Stage 4 is not stage dead. Hang in there. Many of us are stage 4. And we are here telling you about it. Stay encouraged, learn and put up the good fight.There is hard work ahead. It does get done by many of us.

  • Terri065
    Terri065 Member Posts: 81
    #23
    Joe C said:

    I'm sorry to hear you and

    I'm sorry to hear you and your husband had to join this club.  The people on this site are very caring, helpful, and supportive.  I am also stage IV/grade IV and am going through consultations to treat mets in the lungs.  I met with Dr Voss @ MSK two weeks ago and have been in regular communication since.  He has been the most impressive doctor my wife and I have met thus far.  Intelligent, mindful of the patient, and thorough in his discussion.  He also persuaded us to see two other doctors:  Dr Walter Sadler @ U of Chicago and Dr David McDermott @ Beth Israel in Boston.  That says a lot about a doctor who can give such top notch referrals yet still keep up with the patient to further inform and guide.  You are in excellent hands.

    There is a lot of anxiety associated with cancer, as others have pointed out.  I don't know of a secret to keep yourself worry-free but I have found that associating with loved ones more relieves a lot of the pressure.  Connecting with new people as well.  Just jumping into life more has helped put things in perspective.  I hope you find what works to pull up when you hit your lows (we all hit lows now and then).  Don't be a stranger! :)

    Joe 

    Thank you for responding

    Thank you for responding. I didn't realize my husband was stage 4 until a day or two ago. The doctor told us he got everything so we weren't thinking stage 4.

    I have a lot of questions for Dr Voss. Knowing you and your wife were impressed with him makes be feel better. 

    Thanks again, Theresa

  • Terri065
    Terri065 Member Posts: 81
    #24
    foxhd said:

    stage 4

    Terrie, Stage 4 is not stage dead. Hang in there. Many of us are stage 4. And we are here telling you about it. Stay encouraged, learn and put up the good fight.There is hard work ahead. It does get done by many of us.

    Thank you Fox

    That was just what I needed to hear.

    If you don't mind me asking, do you still ride your motorcycle?

    I haven't said anything to my husband but I was wondering if there's any reason he shouldn't ride his motorcycle when he's finished recovering. 

     

    Thanks, Terri

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #25
    Terri065 said:

    Thank you for responding

    Thank you for responding. I didn't realize my husband was stage 4 until a day or two ago. The doctor told us he got everything so we weren't thinking stage 4.

    I have a lot of questions for Dr Voss. Knowing you and your wife were impressed with him makes be feel better. 

    Thanks again, Theresa

    Hi Theresa~Glad you found us!

    Hi Theresa~Glad you found us! WELCOME!!

    Just wanted to send you and your hubby a hug, a healing hug!!!!!

    Keep us informed as to how you both are doing. We're here for you

    and will walk along side of you if you want us to.

     

    HUGS, Jan

  • Terri065
    Terri065 Member Posts: 81
    #26
    Jan4you said:

    Hi Theresa~Glad you found us!

    Hi Theresa~Glad you found us! WELCOME!!

    Just wanted to send you and your hubby a hug, a healing hug!!!!!

    Keep us informed as to how you both are doing. We're here for you

    and will walk along side of you if you want us to.

     

    HUGS, Jan

    Thank you Jan :) 
    I

    Thank you Jan :) 

    I appreciate the support. 

  • firedude21
    firedude21 Member Posts: 52
    #27
    Terri065 said:

    Thank you Jan :) 
    I

    Thank you Jan :) 

    I appreciate the support. 

    Lots of hope

    Terri -

    I have been dealing with this curse for more years than I care to mention. I retired six years ago from a very long career on a municipal fire department. While still employed I had two kidney cancer surgeries. In the first one my left kidney was removed and I was fine for fourteen years.  Then it was my right kidney. I had a partial done to my right kidney and I was good for another ten years. After each of these surgeries I went back to work and back to riding my motorcycle.  I also enjoy camping and I am looking forward to a good season in the Sierras.  I woulld bet that your husband has many, many good years ahead.  My best to you and all on the board.

    firedude21

     

    p.s. - Does anyone know how to get spell check to work on this site? It works fine for me on others but not this one. Thanks. 

     

  • foxhd
    foxhd Member Posts: 3,181 Member
    #28
    Terri065 said:

    Thank you Fox

    That was just what I needed to hear.

    If you don't mind me asking, do you still ride your motorcycle?

    I haven't said anything to my husband but I was wondering if there's any reason he shouldn't ride his motorcycle when he's finished recovering. 

     

    Thanks, Terri

    motocycle

    Terrie, I have continued riding for almost 4 years since diagnosis. Currently I am on hold due to  blood clots in my arm. But I have my summer trips planned. There is no reason not to ride. In fact, I can think of many reasons to continue riding.

  • Terri065
    Terri065 Member Posts: 81
    #29
    foxhd said:

    motocycle

    Terrie, I have continued riding for almost 4 years since diagnosis. Currently I am on hold due to  blood clots in my arm. But I have my summer trips planned. There is no reason not to ride. In fact, I can think of many reasons to continue riding.

    Thank you Fox! 
    Wishing you

    Thank you Fox! 

    Wishing you many amazing road trips!

    Theresa

  • Terri065
    Terri065 Member Posts: 81
    #30
    firedude21 said:

    Lots of hope

    Terri -

    I have been dealing with this curse for more years than I care to mention. I retired six years ago from a very long career on a municipal fire department. While still employed I had two kidney cancer surgeries. In the first one my left kidney was removed and I was fine for fourteen years.  Then it was my right kidney. I had a partial done to my right kidney and I was good for another ten years. After each of these surgeries I went back to work and back to riding my motorcycle.  I also enjoy camping and I am looking forward to a good season in the Sierras.  I woulld bet that your husband has many, many good years ahead.  My best to you and all on the board.

    firedude21

     

    p.s. - Does anyone know how to get spell check to work on this site? It works fine for me on others but not this one. Thanks. 

     

    Thank you Firedude.
    I feel

    Thank you Firedude.

    I feel better after reading your post.

    Nice user name :)

  • Darron
    Darron Member Posts: 310 Member
    #31
    Stage IV for 2 years so far

    Just becasue you are stage IV doens't mean life is over.

    Please hit the link to my history for the details, but I had a 17 CM kidney turmor and 3.4 cm adrenal tumor on the opposite side back in 2012.

    As of this morning, I woke up on the correct side of the grass, and to my knowledge, I don't have any cancer that they could find in a scan.

    Since my diagnosis I have skied almost 100,000 vertical feet, played 70 or so rounds of golf (even broke par once), and had a mulligan for a hole in one (which apparently means absolutely nothing)....Oh yea, and besides scheduled treatments and scan, I have only missed two days of work due to cancer.

    Keep living and riding! even if they find cancer in the future, there are new treatements that give us all hope for a long future.

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #32
    Darron said:

    Stage IV for 2 years so far

    Just becasue you are stage IV doens't mean life is over.

    Please hit the link to my history for the details, but I had a 17 CM kidney turmor and 3.4 cm adrenal tumor on the opposite side back in 2012.

    As of this morning, I woke up on the correct side of the grass, and to my knowledge, I don't have any cancer that they could find in a scan.

    Since my diagnosis I have skied almost 100,000 vertical feet, played 70 or so rounds of golf (even broke par once), and had a mulligan for a hole in one (which apparently means absolutely nothing)....Oh yea, and besides scheduled treatments and scan, I have only missed two days of work due to cancer.

    Keep living and riding! even if they find cancer in the future, there are new treatements that give us all hope for a long future.

    Hats off to you Darren

    You're an inspiration! I confess I find it harder than you seem to. I seem to have picked up arthritus which means walking with a stick. Working full time wiped me out and I'm now working  part time hoping to increase my hours. I'm not giving up, but today is a bad day.

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #33
    Footstomper said:

    Hats off to you Darren

    You're an inspiration! I confess I find it harder than you seem to. I seem to have picked up arthritus which means walking with a stick. Working full time wiped me out and I'm now working  part time hoping to increase my hours. I'm not giving up, but today is a bad day.

    Hang in there,

    Hang in there, Footstomper!

    You have had a lot of challenges, and I marvel at you still teaching (not easy!) even part time! Each case is so individual and so different.

    Hugs

    Jojo

  • Terri065
    Terri065 Member Posts: 81
    #34
    Darron said:

    Stage IV for 2 years so far

    Just becasue you are stage IV doens't mean life is over.

    Please hit the link to my history for the details, but I had a 17 CM kidney turmor and 3.4 cm adrenal tumor on the opposite side back in 2012.

    As of this morning, I woke up on the correct side of the grass, and to my knowledge, I don't have any cancer that they could find in a scan.

    Since my diagnosis I have skied almost 100,000 vertical feet, played 70 or so rounds of golf (even broke par once), and had a mulligan for a hole in one (which apparently means absolutely nothing)....Oh yea, and besides scheduled treatments and scan, I have only missed two days of work due to cancer.

    Keep living and riding! even if they find cancer in the future, there are new treatements that give us all hope for a long future.

    Thank you Darron. 
    I feel

    Thank you Darron. 

    I feel like I wake up every morning thinking, crap it's not a bad dream. 

    Your post helped me to realize there are good days ahead. 

    Stay on the right side of the grass.  

    Theresa

     

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #35
    Jojo61 said:

    Hang in there,

    Hang in there, Footstomper!

    You have had a lot of challenges, and I marvel at you still teaching (not easy!) even part time! Each case is so individual and so different.

    Hugs

    Jojo

    Cheers Jojo

    Yesterday was a dark day. Seems the nature of Sutent with me. 2-3 days in and the world falls out of my bottom! Better now :-)

  • Terri065
    Terri065 Member Posts: 81
    #36
    Footstomper said:

    Cheers Jojo

    Yesterday was a dark day. Seems the nature of Sutent with me. 2-3 days in and the world falls out of my bottom! Better now :-)

    Glad to hear you're feeling a

    Glad to hear you're feeling a little better. Wishing you sunny days.

    God bless! 

    Terri

  • brea588
    brea588 Member Posts: 240
    #37
    stage 4

    I cant tell you anything about stage four but a lot of peop;e on here have and can and still push through to get better.  Only thing I can do for you is Pray for you and that I will every day.

  • Terri065
    Terri065 Member Posts: 81
    #38
    brea588 said:

    stage 4

    I cant tell you anything about stage four but a lot of peop;e on here have and can and still push through to get better.  Only thing I can do for you is Pray for you and that I will every day.

    Thank you Brea and God bless

    Thank you Brea and God bless you! 

    Theresa

     

     

  • Tbuck1971
    Tbuck1971 Member Posts: 50
    #39
    Your in the right place!

    Terri065, you came to the right place. These folks here on this site are awesome. You will see a tremendous amount of information and guidance from so many, freely giving of their time and knowledge. Some of us(mostly me) are uniquely unqualified to give any practical advice. However, I can agree with many here that tell you that things are going to be fine, that you need to monitor and get to your appointments for the CT scans and keep after your Dr and push them for advice, etc.  When you go to your appointments, I have found, obviously your husband will be there, but take good notes, if need be take someone else with you so another set of ears can be there ready to listen, write anything down, etc. 

     

    God Bless You and Your husband.  This wonderful group of fellow cancer fighters seem to always be ready to give such incredible advice!


    Take care


    Tom

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