Returning to work. Is there a common experience?
Is there any kind of common thread or expectation about returning to work? I am a High School History teacher, teaching everything from Ancient World to Ap classes in European and American studies as well as a bit of Philosophy. I have a reputation of working well with dificult students and so am rewarded by being given all the difficult students. I love the job tho'it is very stressfull and exhausting. I'm also an English expat, been living in the US since 1999.
So, A little history.
1st May 2013 started urinating blood. Consulted Doctor who found a lump on my kidney (why does no one use the word tumour?). By the end of the month they had removed the tumour and part of the vein. Surgery was long and I lost a lot of blood spent most of June in Hospital at the University of Maryland Medical Centre. Naturally, it being summer there was no work: good job because I was out of my mind on pain killers!
Diagnosed with stage IV metastatic renal cell carcinoma, I started a course of IL2 in August 2013 (one week on, one week off, one week on, 6 weeks recovery). Scan showed retreat in my tumours by about fifty %. I started my second round of IL2 in October with what my oncologist has called catastrophic near-fatal results, infected blood, pleurisy, colitus (in both colons) pneumonia. I was in the ICU and Cancer ward from the begining of October to thanksgiving. I had to learn to walk before I could leave.
I never felt that I had fully recovered from the surgery, and was naivly surprised how it effected the whole body. Coming home from the IL2 treatment was a chanllenge. I had daily physical herapy. I started walking, first with a walker and then with a cane, which I still use. Walking to the end of the driveway, then the end of the road, then round the block. Currently I take the dog for a walk of about a mile.
I returned to work, working half a day, in March and continued in that vein until the end of the school year in June.
With the new school year in August, I went back full time. I managed 1 full week. I worked four days the next week and was finished: unable to walk or work - its not unusual for a teacher to cover 10 miles walking in a working day. I started working 4 days a week, taking wednesday off.
This worked until I started stutent in September (37.5 Two weeks on , one week off). The inevitable diahrrea stopped me from getting to work reliably in the morning, I am now working half days again 5 days a week.
My Principal wants to know how long this is likely to last. I cant answer because I've never been in this position before.
Human resources want rid of me for taking too much time off sick. That much of that time was spent on the cusp of life and death is of no interest to them.
Naturally, all my sick pay is gone and my 1/2 income is being covered by the local sick bank from a one time only 'chonic and catastrophic' fund that runs out an june 2015
Is this experience familiar to anyone?
Any advice, re emloyment or finance?
Comments
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FMLA
I am so sorry you are going through this. My heart goes out to you. I don't know if this could apply to you but it's worth checking out. It's FMLA and here's a link to the website as it relates to cancer. I hope it helps.
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Good lord
Stomper,
My God, you have been through hell and back. Try to enjoy being here for the new year and stay positive...
I had a quick recovery after robotic nephrectomy; was out only 4 weeks however I work at a restaurant and they have NO benefits when it comes to time off, so I was on my own and researched quite a bit. There is long term disability through most states; not sure what state you're in but there is usually something for those who cannot work. You will obviously need forms filled out by doctor and such and rules are different from state to state... below I posted a link the American Cancer Society's page on insurance and disability and such. I am in PA and there is no short term disability or unemployment for my situation; it all has to be done through short term disability insurance through your employer (which mine didn't even know existed) and you have to research what your specific state allows. Obviously, you need to first come to the realization that you can't work anymore. Part-time employment can sink your chances of getting disability. It's a stupid, stupid system. But unfortunately, most states look at it as "all or nothing."
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Hi Stomper,jason.2835 said:Good lord
Stomper,
My God, you have been through hell and back. Try to enjoy being here for the new year and stay positive...
I had a quick recovery after robotic nephrectomy; was out only 4 weeks however I work at a restaurant and they have NO benefits when it comes to time off, so I was on my own and researched quite a bit. There is long term disability through most states; not sure what state you're in but there is usually something for those who cannot work. You will obviously need forms filled out by doctor and such and rules are different from state to state... below I posted a link the American Cancer Society's page on insurance and disability and such. I am in PA and there is no short term disability or unemployment for my situation; it all has to be done through short term disability insurance through your employer (which mine didn't even know existed) and you have to research what your specific state allows. Obviously, you need to first come to the realization that you can't work anymore. Part-time employment can sink your chances of getting disability. It's a stupid, stupid system. But unfortunately, most states look at it as "all or nothing."
You have beenHi Stomper,
You have been through quite the ordeal. Having to worry about your job and income on top of it all is not a great way to go. It is very sad that Human Resources does not worry about your well being. I work for a school board in Ontario and they have been fabulous about it all. I realize how fortunate I have been.
I obviously won't know much about benefits and disability in the States, but I do believe that Foxhnd has posted on here a couple of times about ways of getting Disability. Hopefully he will chime in here soon to give you that info. Already you have had a couple of helpful posts. Good luck to you, friend. Stay strong!
Hugs,
Jojo
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Thanks for your commentsJojo61 said:Hi Stomper,
You have beenHi Stomper,
You have been through quite the ordeal. Having to worry about your job and income on top of it all is not a great way to go. It is very sad that Human Resources does not worry about your well being. I work for a school board in Ontario and they have been fabulous about it all. I realize how fortunate I have been.
I obviously won't know much about benefits and disability in the States, but I do believe that Foxhnd has posted on here a couple of times about ways of getting Disability. Hopefully he will chime in here soon to give you that info. Already you have had a couple of helpful posts. Good luck to you, friend. Stay strong!
Hugs,
Jojo
Dont get me wrong. My Principal is very supportive, everyone I deal with is supportive. Its only when you get to that strata of management to whom I am just a number that I have encountered problems.
Obviously I am very worried about future finance and legal problems but I'm also rather disappointed in how slowly my recovery is proceeding. Is it normal? Is there anything that can be called normal in this situation?
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"common experience"Footstomper said:Thanks for your comments
Dont get me wrong. My Principal is very supportive, everyone I deal with is supportive. Its only when you get to that strata of management to whom I am just a number that I have encountered problems.
Obviously I am very worried about future finance and legal problems but I'm also rather disappointed in how slowly my recovery is proceeding. Is it normal? Is there anything that can be called normal in this situation?
Foot,
Unfortunately there is no "common experience" when you are dealt with Stage 4. The website provided by APNY gives a lot of suggestions. My understanding is that Stage 4 RCC provides a foot in the door for SSD benefits if you need them. You also have to wait 6 months from application for any SSD benefits even without a denial although I am sure you would rather work.
Icemantoo
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Timely topic for me anyway
I've been fortunate to have banked nine months of sick leave in my 42 years at the Library of Congress. So after my nephrectomy in Sept 2013 and IL-2 courses in 2014 I have spent much of 2014 working half-time. After recovering from the nephrectomy I felt better than I had in years and the IL-2 sessions put me out for about a month each time but otherwise I was on no medications and didn't feel any ill effects from my lung mets. But now that I've been on Votrient for two months even working two or three days a week has been about all I can handle.
I retire today with some 3 months of sick leave still on the books. So my new job for 2015 is fighting rcc full time.
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Good luck to you Thaxterthaxter said:Timely topic for me anyway
I've been fortunate to have banked nine months of sick leave in my 42 years at the Library of Congress. So after my nephrectomy in Sept 2013 and IL-2 courses in 2014 I have spent much of 2014 working half-time. After recovering from the nephrectomy I felt better than I had in years and the IL-2 sessions put me out for about a month each time but otherwise I was on no medications and didn't feel any ill effects from my lung mets. But now that I've been on Votrient for two months even working two or three days a week has been about all I can handle.
I retire today with some 3 months of sick leave still on the books. So my new job for 2015 is fighting rcc full time.
It was the second course of IL2 that did for me. I was supposed to be back at work by Thnksgiving and instead just about made easter! Frankly the idea of not working is horrible, even though I can also entertain myself with the guitar and mandolin - actually I found the latter very difficult when I got home from hospital: I lacked the strength in my fingers!
Enjoy your retirement. Will the Voltrient get less debilitating with time?
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I've read that some patientsFootstomper said:Good luck to you Thaxter
It was the second course of IL2 that did for me. I was supposed to be back at work by Thnksgiving and instead just about made easter! Frankly the idea of not working is horrible, even though I can also entertain myself with the guitar and mandolin - actually I found the latter very difficult when I got home from hospital: I lacked the strength in my fingers!
Enjoy your retirement. Will the Voltrient get less debilitating with time?
I've read that some patients stop having some of the more severe side effects and some side effects can be mitigated like hypothyroidism which might be why I'm fatigued. My TSH is quite high and I will ask the doc on 1/21 about that and whether I should be on synthroid.
I am on less than a full dose (800 mg is full) taking 600 one day and 400 the next. Last week was pretty good but this week it's really tough to eat anything. I am a guitar nut too and plan to play more in retirement. I just built a couple of cigar box guitars and played one at the Fredericksburg Blues Society acoustic jam a few weeks ago.
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