Having a lot of pain

brea588
brea588 Member Posts: 240
in Kidney Cancer #1

I am just very disappointed right now as I am in pain 24/7 on percocet and morphine tablet at bedtime for this hip pain.  I have trochanter bursitis that does not respond to cortisone injections and gluteal tears in right hip also.  Not a doc anywhere will do surgery on me.  The last one I met 3 months ago said if my lung doc can get me off steroids for 4 months he would do surgery on my hip.  He had me to go to physical therapy for almost 3 months, had two cortisone xray guided shots in hip and no relief.  So i seen him for check up this past week and he said since I did not respond to injections he couldnt do surgery on my hip.  Ask him what I was supposed to do and he said I dont know.  Im ready for wheel chair but simply refuse it until I absolutely cant walk.  He is sending me to another ortho doc in another part of state to see if he can help me.  THen I seen onc this past week and she was very upset that urologist done u/s instead of ct scan of kidney.  She is going to give him a call. Said I was high risk cancer in kidney and colon and actually just anywhere.  My colon polyps this year she said was the worse ones to have.  Had cell changes from adenomas to serratd adenomas which she says is a cancer that spreads quickly if not found very early.  Last year if was found early and hadnt spread of the regular adenomas.  She told me of cell changes of biopsies of esophagus and stomach also changed since last year.  Now I go this thur for mri of lumbar spine and pelvis see of anything there to be causing some of hip pain. Then i will have ct of chest, abd, and pelvis in about 2 weeks.  I feel so bad all the time.  I did opt for a cane and walker for now.  Just need some prayers and good vibes from you all.  Im hoping somewhere there will be a doc to operate on my hip.  Just keep me in your thoughts.  Thanks  Sue

Comments

  • Djinnie
    Djinnie Member Posts: 945 Member
    #2
    You are in my prayers!

    Sue what awful news I felt sure you were going to get the help you needed, I am sorry you are having to deal with so much pain and worrying factors. I will be keeping you at the forefront of my daily prayers.I hope the new ortho doctor can offer you some better news to hang your hat on. I can't imagine how much stress you are under at the moment.  There has to be a way to navigate safely through all this Sue, you are strong and persistent I feel hopeful you will find it. You are in my thoughts!

     

    Djinnie xx

  • APny
    APny Member Posts: 1,995 Member
    #3
    Djinnie said:

    You are in my prayers!

    Sue what awful news I felt sure you were going to get the help you needed, I am sorry you are having to deal with so much pain and worrying factors. I will be keeping you at the forefront of my daily prayers.I hope the new ortho doctor can offer you some better news to hang your hat on. I can't imagine how much stress you are under at the moment.  There has to be a way to navigate safely through all this Sue, you are strong and persistent I feel hopeful you will find it. You are in my thoughts!

     

    Djinnie xx

    My thoughts and prayers are

    My thoughts and prayers are with you. I'm so sorry you're going through all this and are in such pain. Do use the cain and walker and keep weight off your hip as much as possible. I hope you get some relief soon!

  • donna_lee
    donna_lee Member Posts: 1,045 Member
    #4
    APny said:

    My thoughts and prayers are

    My thoughts and prayers are with you. I'm so sorry you're going through all this and are in such pain. Do use the cain and walker and keep weight off your hip as much as possible. I hope you get some relief soon!

    Wish you weren't

    a pain in the butt.  So sorry to hear about the troubles and hope a solution can be found soon.

    With a smile and hug,

    Donna

  • foxhd
    foxhd Member Posts: 3,181 Member
    #5
    donna_lee said:

    Wish you weren't

    a pain in the butt.  So sorry to hear about the troubles and hope a solution can be found soon.

    With a smile and hug,

    Donna

    I think

    about you often. My pain has me near the end of my rope. But it isn't in a weight bearing extremity like yours. I hope you know how much I care. Hang in Brea.

  • brea588
    brea588 Member Posts: 240
    #6
    foxhd said:

    I think

    about you often. My pain has me near the end of my rope. But it isn't in a weight bearing extremity like yours. I hope you know how much I care. Hang in Brea.

    thank you

    I think of you often too and hope the best for you too.  The pain can make you feel like you are at the end of your rope sometimes.  I never slept much at all last night or any night really. But the pain meds do help, just concerned about addiction also.  But i guess just have to do what you have to do . LOL  thanks for your reply.

  • foroughsh
    foroughsh Member Posts: 779 Member
    #7
    So sorry to hear you're in

    So sorry to hear you're in pain.you're in my prayers. Take care

  • brea588
    brea588 Member Posts: 240
    #8
    Djinnie said:

    You are in my prayers!

    Sue what awful news I felt sure you were going to get the help you needed, I am sorry you are having to deal with so much pain and worrying factors. I will be keeping you at the forefront of my daily prayers.I hope the new ortho doctor can offer you some better news to hang your hat on. I can't imagine how much stress you are under at the moment.  There has to be a way to navigate safely through all this Sue, you are strong and persistent I feel hopeful you will find it. You are in my thoughts!

     

    Djinnie xx

    thank you sweet lady

    Dginnie thanks for reply it means a lot to know others care.  I certainly know you are going through it right now, perhaps much worse than I, and I pray for you each day. I am just trying to find  doc interested enough to fix my problem.  Im complex case not an easy fix with all my health problems.  But I will get the cane and walker tomorrow to try to prevent falls.  Thanks again for thinking of me.

  • brea588
    brea588 Member Posts: 240
    #9
    foroughsh said:

    So sorry to hear you're in

    So sorry to hear you're in pain.you're in my prayers. Take care

    thank you

    Thank you very much.  Prayers appreciated.  Hopefully pain will get better someday.

  • brea588
    brea588 Member Posts: 240
    #10
    donna_lee said:

    Wish you weren't

    a pain in the butt.  So sorry to hear about the troubles and hope a solution can be found soon.

    With a smile and hug,

    Donna

    I wish I wasnt Donna lol

    such a pain in the butt LOL.  I am a complicated case and these ortho docs just dont want to take the time to deal with me.  Anymore if its not simple to fix you often get pushed from one doc to another just like i am right now.  Thanks for smile and hug.

  • brea588
    brea588 Member Posts: 240
    #11
    APny said:

    My thoughts and prayers are

    My thoughts and prayers are with you. I'm so sorry you're going through all this and are in such pain. Do use the cain and walker and keep weight off your hip as much as possible. I hope you get some relief soon!

    Apny thank you

    Apny thank you for your thoughts and prayers.  I will use the cane and walker to see if helps.  I almost fell this morn and my hubby said you better be getting that walker. I will tomorrow.  THanks again.

  • Phredswife
    Phredswife Member Posts: 162
    #12
    Sending prayers

    Thinking of you brea and praying you feel better soon. Hugs Melissa xox

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #13
    Oh Sue, I am so sorry for all

    Oh Sue, I am so sorry for all that you are going through. Constant pain can become very debilitating and also taint your outlook on life. You seem to be hanging in there quite well in spite of it all. It sounds like you have had a lot of doctors' opinions....but I was talking to a friend last night about his father-in-law who had a lot of problems with his spine, and had a stem cell transplant. Now I have no idea whatsoever if it would help you in your situation, but I just thought I would put it out there. It cost about $7500 - not guaranteed to help. But it did help him. I think he said it was a day surgery type of thing.

    I will keep you in my thoughts and prayers.

    Big hugs

    Jojo

  • angec
    angec Member Posts: 924 Member
    #14
    Sue, hate to hear of all of

    Sue, hate to hear of all of the pain and issues you are facing. I am  praying for some relief for you and that someone will operate on that hip for you. There are so many new options with those types of surgeries, maybe the doc can recommend someone.  Wishing you the best!  Hugs!

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