cyberknife a no go

Lou,

I met a women who has been in hospice for two years and others on this board have beaten the odds as well.  No doubt it does sound bleak from where you sit, it would to me.  I personally do not believe that anyone knows the day or time of our death.  I also believe that we should not let those others give us expectations.  I think that every one of us can only live each day to its fullest, which is what I think I am hearing in your post.  By the way...must have been nice to see the new grand babies.

Lou, please let us know how you are progressing.

fatbob2010 said:

Sad News Lou

Lou,

I met a women who has been in hospice for two years and others on this board have beaten the odds as well.  No doubt it does sound bleak from where you sit, it would to me.  I personally do not believe that anyone knows the day or time of our death.  I also believe that we should not let those others give us expectations.  I think that every one of us can only live each day to its fullest, which is what I think I am hearing in your post.  By the way...must have been nice to see the new grand babies.

Lou, please let us know how you are progressing.

Why not try Gerson or the Baja Rosorito Gerson Center.  Many patients post through a website asking for assistance and many get the money they need for their treatments. There are progrmS out there and people that have money but want to help. 

You  can google the official Gerson but this is the other one just a few miles from Gerson. Dr Vickers, who isn't the main doctor, worked for Charlotte Gerson. This is just a suggestion, can't gurantee anything but you really have to be committed for two years To follow Gerson diet. Some believe, some don't. But I will go, after the trial I am on.  It's expensive, luckily I have it and like I said others can raise the money. Dr vickers has these links.  So does  the Gerson Clinic. I have his cell phone number and email address if you want it  

http://youtu.be/GVYt7vP0ZL8

Are you in Ca, can you do the trial I'm doing?  Do you meet requirements? 

Hang in there, and try and stay strong. Hugs. 

I admire your attitude.  Courage and grace are all we can all hope for in the end. 

Linda

Go to an IR to see if they can ablate it.

I'm so sorry that you received this news.  You have been through this battle over and over again and now they are giving you a timeline.  Please see if you can get another opinion on this.  You have fought this so hard all these years and I've always been so proud of you continuing on.  The excitement you told about going to visit your first grandchild and then visiting the second.  You now have three.  It would be a wonderful thing if another doctor was sought out to give you a fourth grandchild to go visit.  My prayers are with you.  I've always followed you through your journey and want you to know that you are very much admired and such a value on this board

Hugs!  Kim

Annabelle41415 said:

I'm So Sorry

I'm so sorry that you received this news.  You have been through this battle over and over again and now they are giving you a timeline.  Please see if you can get another opinion on this.  You have fought this so hard all these years and I've always been so proud of you continuing on.  The excitement you told about going to visit your first grandchild and then visiting the second.  You now have three.  It would be a wonderful thing if another doctor was sought out to give you a fourth grandchild to go visit.  My prayers are with you.  I've always followed you through your journey and want you to know that you are very much admired and such a value on this board

Hugs!  Kim

I have lung lesions and liver lesions the plan was to do chemoembilization first then cyber knife. Radiologist shot down cyberknife said lesions were too small, had  cyber knife twice minimal shrinkage. I wish i'd had the  Cyberknife.  Now they won't do cyber knife because more lesions have grown. Guess I should have listened to my first oncologist.   Now I'm on the new trial, hope that knocks our the boogers, even if I do lose my hair again?  

Stay strong. Juice, take supplements. Stay away from processed foods, diary, and sugar, it's woeth a try. 

you can eat sweet potatoes, potatoes, salad, sauted greens, berries, carrotts,   Both cooked and juiced. Try to walk as much as you can. I do walk around the inside of my house and do stretchers.  Get some sun.

All  following keep coming up on Cancer summits and run for the cure, etc. 

turmeric

cayenne pepper  put on foods/soups/eggs

milk thistle

D3

B16

35% hydrogen peroxide food grade only and you need to dilute

iodine for fungus

oregano oil internally

digestive enzymes

Graviola  drops

Pau D 'Arco herbal Tea

Juicing greens

smoothie berries for a meal

eat raw veggies 

use lemon as dressing for salad, add herbs 

juice 4-5 3 organic carrotts and 3 granny apples  lot's of nutrients 

google these, see their worth for yourself  they keep coming up...

Yolllmbs said:

prayers

And warm wishes.  I'm sorry for your news.  My dad used to tell me the doctors are not God.  Only God knows your timeline.

 

Have faith,

Yolanda

Lou,  I am sorry that they can't do the cyber knife but I agree with Jeff..consider ablation. At some point, we may all hear that nothing more can be done but believing it is our choice. I wish for you strength and peace and many enjoyable years. 

CM

LOUSWIFT said:

Life in review

Well interesting day. I got a call from my primary care physician who after several years decided to take a look at my Thyroid. I take a 100 mg's everyday for years now. Now it seems that that isn't enough so now that I'm terminal he decides to worry about my thyroid lol. All my doctors say I'm anemic and no one cares about that. Then I get a call from my surgerical oncolongist nurse and they needed me to go to the lab today and get a CBC and a liver panel before our meeting tomorrow afternoon. Again lol...what differece does it make? I checked back with cyberknife as to why I had been turned down for the procedure. They don't like doing lymp nodes even though I have one node about an 1 1/2 inch size tumor near my small intestine. They didn't like that there were several lesions (unknown number for now) that didn't light up on my Pet scan on my liver but my oncolongist saw them when he opened me up last week and saw small lesions that he knows are cancer. Well at least my umbilical hernia got repaired. It was causing me some serious pain at times. So he closed up the five laposcoptic cuts he had made and then made about a 6-8 inch cut to reapair the hernia. My wife is of the mind that she wants me to be happy and only my demise accomplishs that. I'm wondering if she might be a lot happier than I. Well banged out some frustration and depression on the old keyboard and sorry to lay it out there on my friends. Take Care Lou

You come here and bang out all of the frustration you want to. Your friends here are here for that reason as well as other reasons. We are here to support and part of that support is listening. 

Don't give up, fight the fight and be as happy as you can be. We want you around for many a year. 

Good luck at your appointment tomorrow. Be sure and let us know what all goes on. 

Sue - Tru

LOUSWIFT said:

Promise broken

Well had my last meeting with a doctor today. I was sent to an Oncologist today. Apparently the gaggle of Oncologist; radiologists; and just plain doctors met about me yesterday. It was decided it is time for me to die. No it wasn't OBamacares 15 person conference who is decides who has value enough to live or die this was a hospital group. Anyway the oncolgists informed me they could try chemo some more which could delay my death but likely make the quality of my life very bad with what remains. The Cyberknife radiogist types decided that the size about 3 1/2 cm located so close to my small intestine and bladder would result in serious damage to those organs. Apparently, this cyberknife isn't as accurate as it is advertized and radiation will miss the mark. They feel this would make my chronic diarreha so bad that I might need to be hospitalized for dehydration and the inability to stop at all. After the meeting I don't really know why my surgerical Oncologist insisted I go see him. I have told everyone I would never do chemo again. Anyway they now want me to go see a palliative doctor. I guess his job is to address my symptoms increasing pain levels; liver failure; toxicity; diarrehea and vomiting. They  wanted me to go see him as soon as possible, I asked why the rush. Didin't I have a year to a year and a hald left. Apparently, that depends on which direction my tumor decides to grow....into bowel; into the bladder; into pancreas; who knows and maybe cancer will travel to my lungs or brain. Of course my wife went to pieces because she thought I had many months left and it could actually be about three months with at least several weeks of me being so sick and toxic that I don't know what's going on and can't control bodily functions. Then both my surgerical oncologist and this new oncologist both wanted me to come back in a couple of months just to see how I'm doing. I must admit I got a little angry. I asked them why? I'm going to die there is nothing you can do about it unless they need some additional BMW payments. My sureon refused to take out my tumor becuase he felt I could bleed to death on the operating table. This wasn't his choice. He should have spoken to my wife who would have told him to proceed as she and I discussed. She had my health care power and I would have preferred dying on the operating table then to let cancer kill me a day at a time. There was no reason for me to see an oncolgist since evryone knew I would not do chemo ever again. So why come back and see them in a few months.? Okay the palliative doctor sure. He will keep increasing my medications for pain until I'm so spaced out I don't know what's going on and whatever symptoms I may develop. My final advise to ong timers and newbies here. Never ever never trust your doctors do what's right for you. In the eleven years I'm been fighting cancer and being destroyed by all the great doctors treatments recommendations I found I would have been so much better maybe not facing death without the help of incompetent non-caring arrogant know it all professionals. Remember your value is your a billing number and your replacement (another cancer victim) is waiting around the corner. I recall the great treatments which cause my hands and feet to swell so badly I could not waer shoes; lost the nails of my hands and feet; had to wear gloves to type on a key-board (my job) ; learn to sleep on a toilet while you coninued to defecate while sleepng only interupted to vomiting into a basket; unable to eat or drink anything cold; damage to my liver and pancreas... and worst of all to lose your manhood as you must depend more and more on your family to care for you and do things that it was you used to do. So good luck to all. When a cop dies they have what's known as end of call. Dispatch calls your car number over all police radio frequences and after several minutes it is annouced there is no answer from officer. It is then announced this is his/her end of duty. Signifying the officers death. I spent 37 years in Law Enforcement and it will be an honor to have last call. Best of health to you all. Lou Swift doesn't answer he has reached end of tour.

I feel your anguish and weep for you.  I pray for you. May you be comforted. 

I do so hpoe that you stay here with us on the forum. You are cared about deeply. 

Cyber hugs, friend. 

Sue 

Well, it is what it is. Here is my salute to you and a thank you for your service, not only as a police officer but also as a member of this board. Best of luck and best wishes as you end this tour and I believe begin another. May the docs ease your pain.

Goodbye my friend.

Easyflip/Richard