Semi-Colon Roll Call

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Comments

  • Twymer
    Twymer Member Posts: 6
    lcarper2 said:

    Roll CAll
    Hi from Tulsa Oklahoma 62 yr old female suffered for 3 yrs with pain had a colonostpy (sp) july 2009 removed 3 precancerous polops ,still had very bad pain they did a c-scan and 2 hrs later in hospital surgery to remove a soft ball size tumor on my colon and the entire colon was removed along with 34 nodes 19 cancerous been on Xeloda 3000 my 2x aday for 4 months 4 more to go. Last c-scan showed NED. Stage3 with no other organs involved no bag of any kind. pooper shooter works fine.

    Me Too!
    Hello all. Its been great reading everybody's stories.
    I am a 37 year old wife and mother. I got diagnosed with stage IIIB Colon Cancer (2 out of 26 lymph nodes affected) and 6 inches less colon in June 2009.(My friends and family always told me I was full of it) Now I believe them. Just finished my folfox (yuck). I am now addicted to ice cream because I couldnt have it while on chemo (neuropathy). I am just curious how many stage 3b's there are here and what has been there experience. I have had 2 pet scans that show clear. Should I take a sigh of relief? Is it all gone? Or is it just waiting to come out again when I least expect it to?
  • Kathi E-H
    Kathi E-H Member Posts: 1
    jenalynet said:

    Oregon
    Hi,
    I live in Banks, Oregon (11 years now) but was born and raised in PA. I was diagnosed Oct. 2005 Stage 4 with liver mets. I am currently on Folfri because cancer is back with a frenzy. I am still fighting the fight and will do so unless quality of life goes downhill. I am looking forward to going to the egg hunt with my grandsons this Saturday..life is good, God is good. Hugs, Audrey.

    Hi from Oregon
    Hi, Jenalynet. I live in Hillsboro (3 miles down sunset Hwy from you) and am a colon cancer survivor. I hear about lots of same in Oregon but have never found actual contacts! What a great site!! How are you doing? I am going in for my first CAT scan after reconnect last fall. Maybe we can meet for a cuppa coffee?
  • C Dixon
    C Dixon Member Posts: 201
    spongebob said:

    2 4 1... 411
    Here's the 411 on us two...

    SpongeBob:

    Diagnosed Stage 3 CRC (thanks to HNPCC/Lynch Syndrome) in July of 2001 - age 36

    Right hemicolectomy, removed 26"
    Treated weekly with 5-FU/Lukovorin for 6 months

    Currently NED for - GOSH! - 7 years

    Married (to usakat) in May 2007

    Currently living in Charleston, SC but moving to Key West, FL this summer


    usakat:

    Diagnosed Stage 3 CRC (also thanks to HNPCC/Lynch Syndrome) on 5/17/2006 - age 42

    Right hemicolectomy, removed 19"
    Treated w/ Oxaliplatin/Xeloda/Lukovorin for 6 months

    Currently NED for 2 years

    Married (to SpongeBob) in May 2007

    Currently living in Charleston, SC but moving to Key West, FL this summer

    Charleston!
    I'm from there but live in Columbia now. I still miss it and go home every chance I get!

    C Dixon
  • msccolon
    msccolon Member Posts: 1,917
    C Dixon said:

    Charleston!
    I'm from there but live in Columbia now. I still miss it and go home every chance I get!

    C Dixon

    Charleston!
    My daughter still lives in the area, so I go visit as often as possible! Funny, I knew someone that used to go to the same church as we did and her name was Catherine Dixon!
    mary
  • C Dixon
    C Dixon Member Posts: 201
    msccolon said:

    Charleston!
    My daughter still lives in the area, so I go visit as often as possible! Funny, I knew someone that used to go to the same church as we did and her name was Catherine Dixon!
    mary

    What church?
    My sister in law is Katherine Dixon. Haha.
  • karguy
    karguy Member Posts: 1,020
    Roll call
    Hi, I was dx. on 3/10/08,stage 3 going on stage 4.Have been NED since july 08.Had surgery 7/16/08,and have a permanant colostomy bag.They removed the tumor,attached to tail bone,appendix,and 11 lymph nodes.Aurora,Colorado.USA.
  • msccolon
    msccolon Member Posts: 1,917
    C Dixon said:

    What church?
    My sister in law is Katherine Dixon. Haha.

    Grace Lutheran
    and that's totally how she spells her name!
    mary
  • SpouseDx0108
    SpouseDx0108 Member Posts: 20
    Husband
    My husband was dxed 01/08. He's now stage IV, mets to lungs and "belly" (whatever that means). 1st Resection/Colostomy 03/08; first round of chemo and radiation 02/09; bowel resection 11/09; now starting second round of chemo. Had his first treatment two weeks ago. Went back yesterday for second treatment but was unable to receive because of lab work (kidney functions). Try again next week. We live in Kentucky, USA.
  • 5678dance
    5678dance Member Posts: 39

    Husband
    My husband was dxed 01/08. He's now stage IV, mets to lungs and "belly" (whatever that means). 1st Resection/Colostomy 03/08; first round of chemo and radiation 02/09; bowel resection 11/09; now starting second round of chemo. Had his first treatment two weeks ago. Went back yesterday for second treatment but was unable to receive because of lab work (kidney functions). Try again next week. We live in Kentucky, USA.

    My Story
    I was diagnosed 11/03/09. I had changes in bowel habits for over a year, but between Hurricane Ike flooding my house, my crazy travel schedule, lousy eating habits & way too much stress, my GP thought I had a terrible case of IBS wen I went in to complain of new stomach issues I was having.

    I had both a colonoscopy & endiscopy at the same time. While I do have some upper GI issues, the cancer was the priority. I was 90% blocked in my colon by a tumor! They had to use a pediatric scope to finish! How do you walk around with that much blockage, and not have any of the regular symptoms???

    I also had a precancerous section in my colon. The docs all agreed that the whole colon should come out, as I had over 150 polyps! I cosr a double resection. I was staged III, and had 2 of 29 lymph nodes with cancer cells, and am now on my 9th of 12 chemo treatments.

    I live in a little town just northwest of Houston, called Tomball, Texas. I am very greatful that I have a cancer clinic just a few blocks from my house, and the doctors all come from MD Anderson. I feel pretty lucky about that!

    Kathi
  • sdfanrang
    sdfanrang Member Posts: 1
    I love this thread as it is a

    I love this thread as it is a "summary" of survival!Wink

     

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    [Content removed by CSN Moderator]

  • Trubrit
    Trubrit Member Posts: 5,643 Member
    sdfanrang said:

    I love this thread as it is a

    I love this thread as it is a "summary" of survival!Wink

     

    ____________________

    [Content removed by CSN Moderator]

    Curious

    I am curious about this post. I will not be opening the link, just in case. 

  • kmygil
    kmygil Member Posts: 876
    Present

    Dx'd 2006 stage 2b colon; dx'd 2007 stage 1 uterine; currently NED 8 and 7 years, respectively.  Buford, GA, USA.

  • marbleotis
    marbleotis Member Posts: 720 Member
    Here You Go

    Dxed: 1/13/12

    Surgery: Right hemi choloectomy (ascending colon) followed by 6 months of 5fu and Oxi

    Stage: 3B, signet cell

    Current Status: NED (3-years on 1/31/15), alive and very happy to be that way!

    Neuropathy - still in hands and feet, chemo brain and a little wobly at times

    NC. USA

    Next....................................

  • TxKayaker
    TxKayaker Member Posts: 176

    Here You Go

    Dxed: 1/13/12

    Surgery: Right hemi choloectomy (ascending colon) followed by 6 months of 5fu and Oxi

    Stage: 3B, signet cell

    Current Status: NED (3-years on 1/31/15), alive and very happy to be that way!

    Neuropathy - still in hands and feet, chemo brain and a little wobly at times

    NC. USA

    Next....................................

    April 2009 - Surgery to

    April 2009 - Surgery to remove tumor Stage IIIC -- 6 month chem ... Ned 5 years now ....due a scope this month..

     

  • RickMurtagh
    RickMurtagh Member Posts: 586
    sans colon here

    Rick, 54

    DX III two tumors Feb 09

    Chemo/rad March 09

    Ileo June 09

    FOLFOX July 09

    Takedown April 10 (failure!)

    Mets to the sacrum and presacral area March 11 - NOT

    Chronic infection of sacrum that looked like cancer (including a blockage and bone loss)!

    Permanent ileo April 11

    almost 6 years NED!

    happy to be alive!  6 grands and counting!

     

    you know 6 years means a lot to me because statistics suck.  my oncologst was a researcher at sloan kettering prior to entering private practice.  he said, concerning statistics, (i was concerned about skipping my last two chemo infusions because of nueropathy) ether you are on one side of the line or the other, to the left you die, to the right you live!  i am on the right side of the line!  yay!  ofc course if you start counting NED from the end of treatment (my last chemo was jan 27, 2010), i am only almost 5 years NED.  since they took my whole colon i am going with that date. who the hell needs a colon!?!?  not this guy!

  • Helen321
    Helen321 Member Posts: 1,439 Member
    Love this

    You rock Scouty, now these are the posts that I love to see.  I know there are a lot of Stage IV survivors but they don't come on much. 

     

    Dxed 2/2012 stage I, first surgery was a bust, finished stage III, chemo/rad and second surgery success, permanent ostomy but still kickin', currently NED 22 months, Queens, NY

     

  • Helen321
    Helen321 Member Posts: 1,439 Member
    I just realized this post is

    I just realized this post is very old.  Makes me sad because I saw someone I thought had passed and I thought OMG she hasn't but sadly, she has.  This post is from 2009 but I think it's a great record of all those who have been on this board.