Stage IV Signet Cell adenocarcinoma - advice?

lp1964 said:

Dear Michelle,

I am very sorry about your husband. I was diagnosed with rectal cancer at the same age. The good news that the treatment has started. Everybody says the worst part is the diagnisis and not knowing what's gonna hapen. As hard as it is to look at it this way, but cancer is not the end of the world. He is the same guy as he was, he just happens to be ill now. Gather a lot of information about chemo.

Diet, side effects, so you are prepared.

Laz

Thank you... we are very fortunate that he has a very upbeat and fun personality naturally, so he is handling all of this very well.... We've probably laughed as much as we have cried in the past few days. I am counting on his great attitude to get us through this.

Trubrit said:

You have come to the right place

We have members here with the same diagnosis. 

I am sorry that this has happened, and we all know the horror, fear and desperation that comes with the diagnosis. And then, believe it or not, it gets better. Once the initial shock passes, you get into the swing of things, and move along.

We really are a strong bunch of people, and we get along by knowing that we are the ones that will survive (regardless of wether or not we will be). 

Advice - A note book, positive attitude, meditation, happy friends and family and good music have been my constant companions and have helped my along this journey. Yes, there have been dark times, chemo was not fun and radtiation was nothing short of hell on earth, but I'm happy and I wish that for your husband, yourself and your kids. 

Visit us often.

Sue - Trubrit

Thank you Sue for your words of encouragement. I know things will be very hard, but he is SO worth it

I will keep you in my prayers also

marbleotis said:

Welcome and sorry you are here (I am stage 3B - Signet Cell)

Hi,

I am a stage 3b, signet cell, Dx'ed 1/13/12.  I too was 49! 

I will be NED (No Evidence of Disease) 3 years this January.

I had the same surgery your husband did (right hemi) and 6 months of Oxi / 5 FU chemo.

Do not read any info on the internet for signet cell dated prior to 2007 as much has really improved.

Signet cell is a different shape (signet like a gem) so the cells lay flatter.

It is great that you are getting all this planning done know.  Take a notebook to all Dr visits

There are quite a few of us "signets" on this site.  People will jump on and give you tons of great advise.

It is also ok to be upset, mad, angry or sad.  We are here to help you with all of that as we have all been there.  You might encourage your husabnd to post when he is up to it.

Again - welcome and sorry you are here but you came to the right place.

Thank you for sharing your story... I will keep you in my prayers that you stay disease free

janderson1964 said:

I am truly sorry about your

I am truly sorry about your husband and that your whole family has to go through this. It sounds like the doctors are doing all the right steps. I am not signet cell but I was diagnosed stage IV over 9 years ago and am still here so i hope the gives you a little comfort. There are so many new treatments on the horizon the name of the game to me now is keep surviving through any means possible until the next treatment is approved.

Thank you for sharing your story .....

i am so glad you are doing well.  keep fighting!