Sutent Update

Ok, 10-days down. On 50mg take late afternoon. Some issues with mouth/tongue but minor. Some issues with "movements" but they are minor and considering I had constipation for 7+ months on the clinical trial I am OK with how things are going now. Joint pain from the clinical trial is going away. Still have fatigue but considering my Thyroid and Adrenal Glands no longer work I guess I am doing OK. Yesterday I gave in to my body and took a 4 hour afternoon nap followed up by an 11 hour nap at night. I guess I was tired...lol

Did have a little episode of stress about a week ago which put me in ER with BP of 177/108. Not Sutent related. I think it was stress (seeing Doctor today) related and everything kinda came crashing down over a multi day period. Guess I need something to help me level out and let go of some of the stress. I am learning that it is better to give in and ask for the meds and take the meds instead of waiting till the last moment and having to see the Doctor--like today.

Since I started the trial about 11 months ago my lung mets have shrunk, my thyroid met is the same, 2 nodes that shrunk are now back to their orignal size, and I have a new node about 2cm. All in all I guess it wasnt a bad 11 months. Will have my first Sutent CT Scan in about 4 weeks and hoping for the best.

Finally, put 35 pounds on once I started the Adrenal meds and feel like ****. Need to try and get that weight off but I am told it wont be easy. Feel like I am waddling around when I walk....what do they say weebles wobble but they dont fall down.

DB