2 Days Left !!
I only have 2 days left. One more Cisplatan and radiation tomorrow and then one last rad on Friday. Last week I was hospitalized for 2 days from dehydration and at the end of my rope.
Mainly I have thrush, peeling neck skin (lizardish). I am without a feeding tube and have survived on Ensure.
This last 7 weeks have been hell. More emotional than physical for me.
I don't want to look back.
I want:
To taste ice cold water, frosted flakes in ice cold milk, fruit, any fruit! I cannot taste anything or distinguish if it is cold or hot.
All in all this treatment was horrific but somehow I have made it to the end.
I cannot thank all of you enough for all of the encouragement and advice you have given me along this journey.
You have lifted me up in only ways that other survivors can. Thank you again.
Love,
Shell
Survivor, Stage 4 metestatic tonsil cancer
Comments
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You Go Girl!
Good for you Michelle. Such a strong lady to have made it this far. You will be enjoying that ice cold water before you know it. I was taking all my water through the tube and woke up in the middle of the night once and just wanted to drink it. It was the best feeling! I guzzled it and it was probably the first time I felt a sense of normal coming back into my life.
I too was hospitalized a few days before my last radiation. I wonder how common that is. I was sodium defficiant and it made me feel feverish and very sick.
Oh, and how wonderful you are craving fruit. That is the one thing that continues to feel so good going down my throat.
Hang in there! Thinking of you.
Shirley
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More Advice
I went through the same process/treatment 5 1/2 years ago for my stage 4 left tonsil, and just want to remind you (as I know you've been instructed), that this living hell isn't over for about another month or two. Get ready to just sleep, and slowly.....slowly begin to feel like a human being again. Cram as many calories as you can daily stand down your throat. When not sleeping, get up and move....walk around the block....lift some weights, and some resistance excercies. The fight is coming, and your sole job from now till around the 1st of the year is to get back to being somewhat normal. This fight is not just physical, so exercise the emotional and mental aspects of your daily routine. Don't let that damn depression set in. The entire experience changed me, and I "think" I'm a better 67 yr. old male. My weight gain has stayed the same the last 3 years, much more patient, running 3.1 miles every third day, eating pretty much whatever I want, but very slowly. Water being always nearby is a constant. You will come out of this somewhat different, but pat yourself on the back and give yourself a huge hug, because you will always be known as a survivor.
Larry
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MokiMoki said:Yuppie!
I am so happy for you! CONGRATS!!!!!!
I hope you're doing okay! I've been thinking about you.
Shell
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Shell, that is amazing!! i'm
Shell, that is amazing!! i'm so happy for you! very soon your time will belong to you again and then soon you will be back to eating and living life. the hardest part for me was also emotional. you're right, it's HELL but somehow we make it through. congrats 2 days early. i can't wait to hear you ring the bell. i'll wait until you do that to do my happy dance :0) going thru this type of tx really shows us how damn strong we really are!! you're on your way now, Shell!!
God bless you!
dj
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We new you could..........
I knew you could get through it, one day at a time. Keep up the fluids and eat anything you can as well. The next month or two your still cooking so get rest and you will S L O W L Y get better, then back to the new normal. Remember only today matters...... And Ring that Bell LOUD.
Bill
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almost there
Shell,
So emotionally you are ready to finish. I can Ensure that you will finish rads laying down. In celebration of you not looking back, I will take you up on the Frosted Flakes.
Did you buy a H&N clock for recovery, they are accurate, but slow.
Early congratulations for Friday.
Matt
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One day left!!
WHOO HOO!! By tomorrow the rads will be over and you'll be on the road to getting better. You can start taking back you life again. Congratulations Shell....I'll be listening for that bell.
p
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THANK YOUShell_7801 said:Moki
I hope you're doing okay! I've been thinking about you.
Shell
I am pretty stable and 7 treatments left!!!!!
I am sure you are going to recover very quickly and go back to enjoy life at the fullest!
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finished today
Shell, congratulations on completing the treatment. We all know how tough it was and to get that behind you is a great accomplishment! I have my 18 month post checkup the first week of December and before you know it you'll be a year out and this will all be a distant memory.
I had a lot of issues with Thrush as well and hopefully the doctor has you on the right meds to get it under control.
Give yourself a couple of weeks to get all the chemo and radiation out of your body and you will start to recover slowly but surely. Your taste should come back in a month or two and I remember my sweet taste was the last to come back and my wife and i were are Chick-Fil A and I could taste the sweet tea! I was so happy!
Congratulations again on finishing! Emotionally and physically draining but that is now all in the past... The best part of life is yet to come!
All the best,
Keith
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