Dumping syndrome

jackflash22 · November 2014

For Peg tube users

just came home from hospital, iI was in for a week I was in agony all last week, my tummy looked as if I was four months pregnant...still is...I thought I had a spread of cancer but after ct scan and x rays they ruled it out but didn't know what it was until I mentioned to the dietician I get cold sweats shakes and other things when my stomach was at it's worse , she said I know what it is it's..dumping syndrome. It's when your stomach releases it's content into the small bowel at a rapid rate it causes shock. It's the fault of the diet maybe too much sugar, irregular feeding , not enough liquid.. It's easier for you to look it up than I can write but I thought I was dying the pains are agonising. I now have to go back to baby steps again and eat every hour but just 50 mils at time followed by 50 m flush, then an hour later a 100mls of water including my ensures I have to have 2 and a quarter of liquid each day. I'm still in agony and on painkillers. I was also severely dehydrated and constipated so have to take laxido twice a day. Hopefully this will sort me out. My bowel has an infection so I was advised to take friendly bacteria each day I'm having yakil. Please don't get this awful illness if your a PEG tubeuser.. I don't know how long this is going to take. Another thing is I retch to vomit and my throat is blocked that's awful too. Please be aware

lornal · November 2014

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Feel better soon. I'm glad that found what the problem is, and you can start recovering.

Lorna

wmc · November 2014

Oh Jackie take care.

Just one day at a time. Hopefully you will feel much better very soon.

Bill

ahollie · November 2014

My hunny suffered from that a

My hunny suffered from that a bit...we got him on keifer and that seemed to help ALOT and he did much better with that..maybe try it and see...i just added warm water with it when i gave it to him in his tube so he wouldnt have cramps!

CivilMatt · November 2014

sending some good mojo

JF22,

I am glad you got that figured out and I hope the solution provides relief.

Dumping will be added to my list of things to avoid.

Feel better, be better.

Matt

D Lewis · November 2014

The pump

Jackflash, do you use a 'pump' with your PEG tube? I found that I could not tolerate the feedings, as it was too much at a time and sickened me. My doctor set me up with a feeding pump, I was able to pour my jevity/ensure/shakes/water into a feeding bag on an IV pole and connect it to my PEG and the pump fed it through very slowly. At first, I set the machine so that it would take me an hour to pump a single small can of food, but later I was able to speed it up some, and finish a can in 1/2 an hour. It was a real help, and kept me from getting sick after every meal.

Deb

jackflash22 · November 2014

D Lewis said:
The pump
Jackflash, do you use a 'pump' with your PEG tube? I found that I could not tolerate the feedings, as it was too much at a time and sickened me. My doctor set me up with a feeding pump, I was able to pour my jevity/ensure/shakes/water into a feeding bag on an IV pole and connect it to my PEG and the pump fed it through very slowly. At first, I set the machine so that it would take me an hour to pump a single small can of food, but later I was able to speed it up some, and finish a can in 1/2 an hour. It was a real help, and kept me from getting sick after every meal.

Deb

Back in hospital

I did try the pump but it was too slow, I spent all day feeding. I went onto the syringe without the plunger and poured it in. I went home from hospital friday but was back in on the Monday. They now say it's a blockage.i don't get anything up or down gas builds up and the contents of my stomach just churned around for2 weeks. As I can't be sick or go to the lavie the stuff got rotten and I was retching and feeling sick continuously. Today after a conflab they put a drain on my stomach and the poisonous contents are pouring out and I don't feel sick anymore. Still haven't had bowels open for 'can't remember' They've solved the problem of sickness now they must solve the other. Last night at 3 in the morning they took me down for a ct scan in my bed still asleep. Haven't the results yet. So far I've had 4 X-rays and two scans. It's amazing what a come back I've made just not being sick all day. I will get back to my onc lady to see if I can get a pump. You can use them at night to feed so it saves time next day. ThAnx for advice.

Kritter · November 2014

jackflash22 said:
Back in hospital
I did try the pump but it was too slow, I spent all day feeding. I went onto the syringe without the plunger and poured it in. I went home from hospital friday but was back in on the Monday. They now say it's a blockage.i don't get anything up or down gas builds up and the contents of my stomach just churned around for2 weeks. As I can't be sick or go to the lavie the stuff got rotten and I was retching and feeling sick continuously. Today after a conflab they put a drain on my stomach and the poisonous contents are pouring out and I don't feel sick anymore. Still haven't had bowels open for 'can't remember' They've solved the problem of sickness now they must solve the other. Last night at 3 in the morning they took me down for a ct scan in my bed still asleep. Haven't the results yet. So far I've had 4 X-rays and two scans. It's amazing what a come back I've made just not being sick all day. I will get back to my onc lady to see if I can get a pump. You can use them at night to feed so it saves time next day. ThAnx for advice.

Hospital

Thank you for posting this to make users who have a PEG aware this could happen. I am just so sorry you had to find out the way you did. This has to be horrible for you, but it sounds like they are finally understanding and will have you home again soon and feeling much better. My prayers and lots of hugs to you! Kritter

debbiejeanne · November 2014

jf, so sorry you have been

jf, so sorry you have been thru so much but thank goodness they realized what it was and how to treat it. seems with cancer it is always something new. thank you for sharing so others will know what to watch for. i hope you are feeling much better very soon.

God bless you,

dj

debbiejeanne · November 2014

jackflash22 said:
Back in hospital
I did try the pump but it was too slow, I spent all day feeding. I went onto the syringe without the plunger and poured it in. I went home from hospital friday but was back in on the Monday. They now say it's a blockage.i don't get anything up or down gas builds up and the contents of my stomach just churned around for2 weeks. As I can't be sick or go to the lavie the stuff got rotten and I was retching and feeling sick continuously. Today after a conflab they put a drain on my stomach and the poisonous contents are pouring out and I don't feel sick anymore. Still haven't had bowels open for 'can't remember' They've solved the problem of sickness now they must solve the other. Last night at 3 in the morning they took me down for a ct scan in my bed still asleep. Haven't the results yet. So far I've had 4 X-rays and two scans. It's amazing what a come back I've made just not being sick all day. I will get back to my onc lady to see if I can get a pump. You can use them at night to feed so it saves time next day. ThAnx for advice.

WOW, jf, how awful! so sorry

WOW, jf, how awful! so sorry they were wrong and you're back in the hospital. I'm glad you are not feeling sick any more and I pray they find the correct answer this time. Wishing you the best results on the x-rays and scans. please let us know what they find out. keeping you in prayer.

God bless you,

dj

Dumping syndrome

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