MtX's to brain...scared out of my wits

menright
menright Member Posts: 256 Member
in Colorectal Cancer #1

I have not been on this board in a while.  Fighting the battle and just now discovered colon cancer metasticies to the brain 5ea tumors, one is 2.5cm in size with swelling causing left side motor function issues.

 

As you may imagine, this takes the battle to a new and scary level.  Brain involvement was known possible but did not seem likely.  Six years in I thought I was in a chronic disease phase with a slow growing cancer.  Not anymore!

 

My progression has been, colon to liver to lung and now brain.  Anyone out there with similiar progression?  I would love to hear your story, looking for some encouragement.

 

Keep up the good fight as I will too.

 

Mike

Comments

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #2
    Dear Mike

    I am sure you are scared out of your wits. What devestating news! 

    I can't help you with the question about brain mets. I know they are rare for CRC patients, and I am so very sorry that you are facing yet another battle. 

    All I can do is pray or send massive good thoughts your way. I read your profile page; you are a fighter for sure, and you will fight this. I can't even begin to imagine the awfulness of it all. 

    Come visit us often. We can't cure you but we can support you. 

    Blessings!

    Sue - Trubrit

  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #3
    Mike

    I wish I could help, but there isn't much I can tell you, however, my neighbor who has been NED for over 15 years (stage IV colon cancer, he had my same oncologist, found all this out after I found out I had colon cancer) fell in his house 8 weeks ago, his grandson found him and he was taken to the hospital where they decided to do a CT scan of his brain to make sure he didn't hurt anything when he fell (he is 78 years old) they found numerous tumors in his brain one was very large which they cut out  that week, (it was what was affecting his motor skills) he then went to physical therapy for two weeks and had radiation to the rest of the tumors.  I know 8 weeks isn't a lot to go by, but he is doing well, walking around seemingly fine.  

    Will be hoping for nothing but the best,

    Winter Marie

  • Luv2lunch
    Luv2lunch Member Posts: 270
    #4
    Sending good thoughts

    Hi Mike,

    I don't know anything about that but wanted to say Mom and I will be praying for you. I'm sure you are scared (I would be also). Try and stay strong. There are many here who will keep you in our thoughts.

    Take care,

    Linda and Mom

  • fatbob2010
    fatbob2010 Member Posts: 467 Member
    #5
    Rare

    Mike,

    Maybe I missed it in your OP but, what were the symptom that led to the discovery of the metastasis to the brain?  My Oncologist told me that braim mets from mCRc is rare and not something I should worry about.  Matter of fact to date a full body including skull has been deferred.  So I have nothing to offer from the medical experience side of my cancer journey except to tell you how scary the thought of mets to the brain is for me.  

    You've been at this for a while and know that this is a rollercoaster of emotional drain with slow climbs full of hopefullness.  Followed by hideous feelings of falling as the roller coaster tram gets to the top of the climb.

    Try to take it one day at a time if you can.

    Best wishes,

    Art

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #6
    Dear Mike

    I am so sorry for this new complication for you.

    In the years I have been coming to the board, there have been several folks who had brain mets.  The progression you mention is I beleive what they had.

    If I remember correctly, one had full brain radiation while another had gamma knife surgery several times.  I am not sure what else may be available. 

    Wishing you best results with whatever you try.

    Hugs,

    Marie who loves kitties

     

  • lp1964
    lp1964 Member Posts: 1,239 Member
    #7
    Dear Mike,

    I am very sorry for the bad news. Probably some targeted radiation will be one of your options.

    Laz

  • menright
    menright Member Posts: 256 Member
    #8
    herdizziness said:

    Mike

    I wish I could help, but there isn't much I can tell you, however, my neighbor who has been NED for over 15 years (stage IV colon cancer, he had my same oncologist, found all this out after I found out I had colon cancer) fell in his house 8 weeks ago, his grandson found him and he was taken to the hospital where they decided to do a CT scan of his brain to make sure he didn't hurt anything when he fell (he is 78 years old) they found numerous tumors in his brain one was very large which they cut out  that week, (it was what was affecting his motor skills) he then went to physical therapy for two weeks and had radiation to the rest of the tumors.  I know 8 weeks isn't a lot to go by, but he is doing well, walking around seemingly fine.  

    Will be hoping for nothing but the best,

    Winter Marie

    brain mets

    We have been here on this site along time together.  Thanks for the note and especially the story of your friend.  Brain met survival stories are what I desperatelyy need.

     

    Mike

  • menright
    menright Member Posts: 256 Member
    #9
    Lovekitties said:

    Dear Mike

    I am so sorry for this new complication for you.

    In the years I have been coming to the board, there have been several folks who had brain mets.  The progression you mention is I beleive what they had.

    If I remember correctly, one had full brain radiation while another had gamma knife surgery several times.  I am not sure what else may be available. 

    Wishing you best results with whatever you try.

    Hugs,

    Marie who loves kitties

     

    brain mets

    Thanks!

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    #10
    lp1964 said:

    Dear Mike,

    I am very sorry for the bad news. Probably some targeted radiation will be one of your options.

    Laz

    I'm sorry, I have no

    I'm sorry, I have no information for you. I just wanted to say that I'm sorry you're going through such a tough time and have had such a scary diagnosis. I sincerely hope it will turn out okay. Prayers for you.

  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #11
    Mike

    Mike,

    It is good to hear from you but I am very sorry for the reason you are writing.  I do not have answers but want you to know we are here for you as you go forward.  You have been an amazingly strong fighter during these years.  My prayers are with you.

    Aloha

    Kathleen

  • manwithnoname
    manwithnoname Member Posts: 402
    #12
    menright said:

    brain mets

    We have been here on this site along time together.  Thanks for the note and especially the story of your friend.  Brain met survival stories are what I desperatelyy need.

     

    Mike

     



     
    Hyperbaric oxygen

     



     

    Hyperbaric oxygen treatment improved neurophysiologic performance in brain tumor patients after neurosurgery and radiotherapy

     

    "A remarkable finding of the current study was the relatively favorable survival of the patients with brain tumors,

      who survived for an average of almost 8 years after HBOT despite unfavorable histology."



     






  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #13
    Hey Mike

    update on my 78 year old neighbor.  His daughter had him staying at her house after he got out of the hospital cooking for him and everything since he lives alone. She would make trips over here to his house so he could get things etc., and I was able to see how he was doing several times a week as we'd spend half an hour talking when he came over 

    On Monday due to his recovery from surgery and his radiation being over, he has moved back home, alone, and is driving and doing well.

    Just wanted to update you. And am wondering how you are doing getting your mind wrapped around your diagnosis and what the game plan is.

    Winter Marie

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #14
    menright said:

    brain mets

    We have been here on this site along time together.  Thanks for the note and especially the story of your friend.  Brain met survival stories are what I desperatelyy need.

     

    Mike

    too modest

    Tony (MWNN) has more info and posted radically improved brain scans at Colonchat about his family's cancer experience with HBOT.  I don't know anybody that has put more effort into finding various technical ways to slay the beasts than Tony.  I think he's on to something good.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #15
    Sorry

    I'm sorry for your recent prognosis and really can't give you any info.  There have been some on the board that have experienced this and I'm sure they will help you more.  My thoughts and prayers to you.

    Kim

  • Yolllmbs
    Yolllmbs Member Posts: 360 Member
    #16
    Annabelle41415 said:

    Sorry

    I'm sorry for your recent prognosis and really can't give you any info.  There have been some on the board that have experienced this and I'm sure they will help you more.  My thoughts and prayers to you.

    Kim

    Brain tumors

    are scary. i had benign brain tumors a few years ago. They were removed with gamma knife. While it wasn't cancer it was unnerving. My prayers and good thoughts. 

     

    Yolanda

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