Starting study drugs tomorrow

mtmom
mtmom Member Posts: 59
in Breast Cancer #1

Not exactly sure how I feel...nervous because of what lies ahead and glad to be starting. I will be in a study program starting tomorrow. The study is focusing on Fulvestrant, Everolimus, and Anastrazole and how effective they are together. Everolimus and Anastrazole will be the two drugs that are the blind part of the study...I can get both drugs, one drug and one placebo, or two placebos.  Any one been down this road and have some words of wisdom? Things I should be asking?

Thanks and blessings,

~Mtmom

Comments

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #2
    NO advice...sending good

    NO advice...sending good thoughts your way and pixie dust too.

  • New Flower
    New Flower Member Posts: 4,294
    #3
    disneyfan2008 said:

    NO advice...sending good

    NO advice...sending good thoughts your way and pixie dust too.

    Good luck with the study

    wishing you minimal side effects and good efficacy against cancer.

    Hugs

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #4
    Checking back in to see how

    Checking back in to see how things are going?

  • Pixie Dust
    Pixie Dust Member Posts: 424 Member
    #5
    Prayers for you

    Mltmom, just wanted you to know prayers are heading your way that this new study drug will do wonders for you. ((( PRAYERS)))  Pixie

  • mtmom
    mtmom Member Posts: 59
    #6
    disneyfan2008 said:

    Checking back in to see how

    Checking back in to see how things are going?

    Update

    Started treatment last week. Felt like a little kid getting two shots in the butt! Next time I'm bringing my own fancy band-aids :)

    I caught a cold, recovering from a small collapse on my lung, and am fighting an infection in my shoulder. So, I'm not really sure what is just being sick and what is from the drugs. Those silly hot flashes...or slow smolders as I call them...sure came back with a vengenance. That I do know is a side effect.

    The protocol is to get the Fulvestrant the 1st (done) the 15th, and the 28th, then every 28th day after that. The everolimus and anastrazole are daily pills. It is weird not knowing if I'm getting these drugs or not. We pretend I am and then watch labs and side effects. There is one other woman around here that is on the same study and I am the 86th person nationwide. I am hopeful that they will gain a lot of information from this study. I am grateful for the many women and men that have gone before and blazed some pretty rough trails to get us where we are today. Always hopeful for a cure. :)

    Many blessings,

    ~Marge

  • GlowMore
    GlowMore Member Posts: 789 Member
    #7
    mtmom said:

    Update

    Started treatment last week. Felt like a little kid getting two shots in the butt! Next time I'm bringing my own fancy band-aids :)

    I caught a cold, recovering from a small collapse on my lung, and am fighting an infection in my shoulder. So, I'm not really sure what is just being sick and what is from the drugs. Those silly hot flashes...or slow smolders as I call them...sure came back with a vengenance. That I do know is a side effect.

    The protocol is to get the Fulvestrant the 1st (done) the 15th, and the 28th, then every 28th day after that. The everolimus and anastrazole are daily pills. It is weird not knowing if I'm getting these drugs or not. We pretend I am and then watch labs and side effects. There is one other woman around here that is on the same study and I am the 86th person nationwide. I am hopeful that they will gain a lot of information from this study. I am grateful for the many women and men that have gone before and blazed some pretty rough trails to get us where we are today. Always hopeful for a cure. :)

    Many blessings,

    ~Marge

    You Are Special

    WOW....you are something super SPECIAL girl............getting all that new stuff and being the #86....  I have always loved the number 86....which added equals 14 and then FIVE.....and we all know that FIVE is a really magic number.... so hang on to it...   And hang on to your wonderful attitude and keep us posted with all this new magic stuff they are passing out ok?  YOU are the Trail Blazer NOW....    Prayers for good results........ Gloria

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