Uterine carcinosarcoma, MMMT, survivors ...I would like to from you

Ardnasnit said:

JS Baby Sister,
I will be

JS Baby Sister,

I will be praying for both You and your sister.

Sandra

I still feel bad because we let JS down initially.  Will you please share with her that we are keeping  her ( and you, too) in our hearts.  I hope they are keeping her comfortable  so the rest of the time you have together can be cherished.  Be strong. Come talk to us anytime.  Someone is almost always here.

Ro10 said:

JS baby sister

i am so sorry to read about your sister taking a turn for the worse.  I pray for peace and comfort for both of you.  Feel free to come back and vent any time.

My heart breaks for you and your family.  I will keep you in my prayers.  That's gotta be tough and unbearable at times.  I, too, pray that they keep her comfortable or try something maybe it a long shot.  I'll pray for a miracle.  I hope that time is spent well.  It's hard to put into words how to tell someone how you feel in times like these.  Thank you for trusting your sorrow and inner most thoughts with us.

Jeanette

nolib1966 said:

hospital

We are all being taken care of in Escondido, CA. 2 of our brothers,1 sister in law and I joined my super star brother in law and another sister in law yesterday.   We are from Alaska and Washington.  My strength is leaving to drive down today from home with at least one of my daughters. If not 2.

My nephews are such strong loving men. They are in their 40s but the love they have for their mother reeks of the 3yr olds that would go crying to her when they would be hurt. The pain they are feeling, we are all feeling, is that life as we know it , will never be the same. And they feel so sad and mad that they can't make this hurt go away for her. I don't know how to help them through this, I don't know if I'm strong enough, or if I will be able to find the words to make this easier for them to get through this utter catastrophe. 

Our family suffered a huge blow in December when we lost another sister to this God awful cancer family.  She passed from complications of lung cancer. And now this. Our family started out with 8 siblings. 4 boys, 4 girls. We have lost 2 of the 4 girls and I am hanging on to the hope that the 1 sister we have left will wake up just long enough to say she knows we're here and she knows she is not alone. I am so afraid she doesn't know we are here still fighting the fight as best we can from the side lines. I'm so afraid she thinks she's alone. I guess I'm just so afraid. 

I must apologize to you all. I know this blog is to pass knowledge onto the next generation of fighters we have coming, and believe you me, there will be more, I just want them and you all to know you are not alone. The fight will go on, my prayer is that some of the research monies that are given, go to this type of cancer.  Carcinosarcoma, this is one Bad Mamma Jamma. 1 in100,000 get this type. And in less than a year, it has taken a very active healthy woman, who by the way, never smoked, or drank in excess, was by all accounts over the top happy and healthy and this S O B has drained her of everything. Her laugh, her wisdom, her gardening her entire life. The one thing this Devil cannot take is her spirit. This I will not and can not allow. When her individual battles are over the fight will continue until 1 day this war will be won! !!

Thank you all for your time, strength, your well wishes and most of all for fighting the fight. When we are all born we know that no one gets out of this alive. I just don't have the words to express my most sincerest respect for the fighters and the cheerleaders. I don't understand why this happens to certain people but as long as you know, now and always YOU ARE NOT ALONE. Just when you think your alone, turn around and look at your footprints.  As you started this journey. Their were 2 sets.  Yours and His. In the end He will carry you, if you let him. Please let Him.

My family would like to thank you for accepting our sister into this super elite group of understanding, loving people. It helps to know none of us are alone. 

JS Sister

We Peach Sisters stick together and we care about each other.  This board isn't only for knowledge, it's for heartfelt sadness or gladness, whatever the case may be.  I, too, was full of life, healthy etc., when I was diagnosed with UPSC (another rare Uterine cancer).  I am sure that JS knows that family is with her.  As close as you guys are, SHE KNOWS she's not alone.  I pray for all of you.  I can't imagine losing my mother or my sister but understand losing loved one's (aunt and friend) to cancer.  There's a unique connection between mother and son, I can see it with my mother and brother.  I think you are truly amazing, that you have such a close knit family.  You are going to be ok JS Sister, when you need to be strong, you will.  When you need to say something, the words will come out.  I see the faith in you and know God will keep you safe in His arms through this and He will carry your sister with the love of a Father carrying his daughter.  We on earth will suffer a terrible loss, but JS will have no more pain and that is a blessing.  You are a blessing JS sister.  Keep posting.  Come here whenever you need a shoulder or a safe place to vent.  You have alot to offer this group as well as this group helping you.  Please keep connected.

Jeanette

nolib1966 said:

hospital

We are all being taken care of in Escondido, CA. 2 of our brothers,1 sister in law and I joined my super star brother in law and another sister in law yesterday.   We are from Alaska and Washington.  My strength is leaving to drive down today from home with at least one of my daughters. If not 2.

My nephews are such strong loving men. They are in their 40s but the love they have for their mother reeks of the 3yr olds that would go crying to her when they would be hurt. The pain they are feeling, we are all feeling, is that life as we know it , will never be the same. And they feel so sad and mad that they can't make this hurt go away for her. I don't know how to help them through this, I don't know if I'm strong enough, or if I will be able to find the words to make this easier for them to get through this utter catastrophe. 

Our family suffered a huge blow in December when we lost another sister to this God awful cancer family.  She passed from complications of lung cancer. And now this. Our family started out with 8 siblings. 4 boys, 4 girls. We have lost 2 of the 4 girls and I am hanging on to the hope that the 1 sister we have left will wake up just long enough to say she knows we're here and she knows she is not alone. I am so afraid she doesn't know we are here still fighting the fight as best we can from the side lines. I'm so afraid she thinks she's alone. I guess I'm just so afraid. 

I must apologize to you all. I know this blog is to pass knowledge onto the next generation of fighters we have coming, and believe you me, there will be more, I just want them and you all to know you are not alone. The fight will go on, my prayer is that some of the research monies that are given, go to this type of cancer.  Carcinosarcoma, this is one Bad Mamma Jamma. 1 in100,000 get this type. And in less than a year, it has taken a very active healthy woman, who by the way, never smoked, or drank in excess, was by all accounts over the top happy and healthy and this S O B has drained her of everything. Her laugh, her wisdom, her gardening her entire life. The one thing this Devil cannot take is her spirit. This I will not and can not allow. When her individual battles are over the fight will continue until 1 day this war will be won! !!

Thank you all for your time, strength, your well wishes and most of all for fighting the fight. When we are all born we know that no one gets out of this alive. I just don't have the words to express my most sincerest respect for the fighters and the cheerleaders. I don't understand why this happens to certain people but as long as you know, now and always YOU ARE NOT ALONE. Just when you think your alone, turn around and look at your footprints.  As you started this journey. Their were 2 sets.  Yours and His. In the end He will carry you, if you let him. Please let Him.

My family would like to thank you for accepting our sister into this super elite group of understanding, loving people. It helps to know none of us are alone. 

JS Sister

JS Sister. 

May God hold you and your family in His loving hands as you travel this horrible journey.  As a warrior or loved one, you are always welcome here to vent, laugh, and too often, cry.  You and your family are in peoples thoughts and prayers and will not be forgotten. 

It may not seem as though your sister doens't know you are there, but I believe she does.  When you are surrounded by love you know it, and it gives your the peace you need at any hour.

God bless you all.

nolib1966 said:

Her Journey

I have thought long and hard to find the words. I usually have no problem with that ,however they just won't come. If I am honest in my logical mind, I would have to say I'm so happy the pain for my sister is gone, she is at peace, she is with our other sister who left just 10 short months ago. But the truth is I'm not logical right now. I am completely and utterly heart broken. Her spirit was released and relieved on Saturday October 4,2014. My nephews and Super Star Brother in law, well the strength and love they have shown is totally incredibly. We were blessed to have 3 of our 5 siblings here with her,2 of our brothers and myself. I was talking with her, the last words she heard were the words I always said "Connie, I love you, your not alone. "  Then 2 breaths later she was released on her journey to a better place. 

I would again like to thank this forum for the opportunity to share, get the word out about Volitrin, I hope if given sooner could have been the answer for her. So any of you peach sisters out there talk with your chemo doctor to see if it could be right for you. 

Well ladies I will close with my usual words.  You are not alone. Keep fighting the fight and win each battle one day at a time, then one day this war will be won! 

You are not alone, repeat this several times a day. Then believe it. You are not alone. 

JS BABY SISTER

Sending my deepest sympathy.  I too have experienced the loss of  two siblingS.   It is not easy, but I took comfort in knowing I was there for them at the end.  They too knew they were lived and not alone.  Sending peace and comfort to you and your family.  Nobody   especter you to be logical.  We totally understand your broken heart.

nolib1966 said:

Her Journey

I have thought long and hard to find the words. I usually have no problem with that ,however they just won't come. If I am honest in my logical mind, I would have to say I'm so happy the pain for my sister is gone, she is at peace, she is with our other sister who left just 10 short months ago. But the truth is I'm not logical right now. I am completely and utterly heart broken. Her spirit was released and relieved on Saturday October 4,2014. My nephews and Super Star Brother in law, well the strength and love they have shown is totally incredibly. We were blessed to have 3 of our 5 siblings here with her,2 of our brothers and myself. I was talking with her, the last words she heard were the words I always said "Connie, I love you, your not alone. "  Then 2 breaths later she was released on her journey to a better place. 

I would again like to thank this forum for the opportunity to share, get the word out about Volitrin, I hope if given sooner could have been the answer for her. So any of you peach sisters out there talk with your chemo doctor to see if it could be right for you. 

Well ladies I will close with my usual words.  You are not alone. Keep fighting the fight and win each battle one day at a time, then one day this war will be won! 

You are not alone, repeat this several times a day. Then believe it. You are not alone. 

JS BABY SISTER

Dear JS Baby Sister:

As hard as it must be, thank you for sharing JS's journey with us.   I am saying a special prayer for "Connie" and also for you and the rest of your family to help get you through this.   Please stop in from time to time to let us know how you are doing.

I am deeply sadden for your loss.  Sending comforting hugs to you.

Kathy

nolib1966 said:

JS Sister

While the kitchen seems a bit empty with 7 people in it, we are trying to take one day at a time. When that appears to be too much we try one hour and I'm sure you are all aware of the rest of that saying.

I am quite humbled at the response we have gotten from this forum. You are all so encouraging while fighting your own individual fights. We pray for you, we pray you stay strong, we pray for your cheerleaders, we pray for doctors to find the RIGHT treatment for you, together we pray.  Remember always you are loved, respected and most of all you are not alone. 

Please accept my offer as a cheerleader for all of you. I feel maybe if some of you might be a little light on backers you should have at least one person to remind you that YOU ARE NOT ALONE. And if this forum could vote to have a cheerleader I am throwing my hat in the ring. I have experience, I don't need to be in the same room, city or state. I try to be a good at listening, praying and just being around for virtual hugs.

Even if this resume is rejected, my family and I are so appreciative of your acceptance, encouragement and never ending prayers and support. 

Thank you all for this opportunity to meet all you peach sisters, while we are not blood, we are sisters in the fight. 

JS BABY SISTER

 

I, for one, would love for you to be a cheerleader.  You are apart of this sisterhood.  I don't think we can have enough cheerleaders.  Thank you for sharing with us.  However, we want you to come back to us when you need a cheerleader or a shoulder to cry on in the loss of Connie.  This board is great for virtual hugs.

Jeanette

debrajo said:

Js

I second what Jeanette said!  You ARE hired!  We need a cheer leader at times , even if it's to tell us to quit whining and start fighting!  Welcome on board and feel free to jump in at any time and kick  tail if need be!  Best, Debrajo

It has taken me a minute to try to adjust to the changes in my life. One day at a time, slowly I think Im getting back to normal, what ever that is. Then all of a sudden I'm not. Believe it or not, this discussion board helps me and I hope it helps you too.

Now, back to the subject at hand.  Who needs what? Virtual hugs all around,hey you over there in the corner, get over here, get this hug. You are not alone! !! I promise, even in the darkest of times, even if you think you are the only one who has felt this bad, sad, sick, alone or just lonely with a room full of people. Trust me, this is the place to be. If you're new, after your first blog, you are a peach sister. We can help you, but you need to make the first move.  Once you're ready and only then, can the warmth of this room help you. 

I know some people monitor for a while before blogging. My sister did, but once she/we started it got easier. We can't tell you when it'll be right for you but know when it is you'll be welcomed with open arms, advice and loving companionship.

I also promise, from that point on, you will NOT BE ALONE.  This awful thing called cancer, sometimes plays with your mind as well as your body. So when you think your alone, and no one cares, come home to this site. You will find here, the same battles you are fighting may have been won by someone who is already here to offer what worked for them. It may or may not work for you but until you try you won't know. Or maybe you can help someone else with your experience. 

Please remember you are not and will not be alone. I feel that was one of the most important things my sister learned. I can not tell you how much this site helped her and me.

I will close now, with my famous last words, YOU ARE NOT ALONE.  With much respect for all.

JS Sister