Trial Updates

dancnbear1 Member Posts: 86
edited September 2014 in Kidney Cancer #1

Well, I have now been in the trial for 7 months and as many of you know I never made it through the 4 initial treatments due to severe side effects. I was able to get into the maintenance program but unfortunately I had more side effects. To date my Thyroid is shot and I now have hypothyroidism and need to take supplements. My first adrenal gland was surgically removed and the second gland was effected by the infusion and no longer works. Got to say the side effects of that not working were rough. Was so dizzy I fell several times, past out once and was rushed to ER but now I have another supplement that seems to be working most of the time. Still have some fatigue and some dizziness due to the mtc infusuon, hypothyroidism, and adrenal issues but on the whole they are "managable".

Next CT Scan is late October so I keep my fingers crossed that all these issues will be worth it in the end. Based on my last CT scan (August) I have a 15% shrinkage from the first CT Scan done in Feb of 2014, which is not too bad considering the other possibilities.


Best of luck to all



  • foxhd
    foxhd Member Posts: 3,181 Member
    Good luck Dancnbear

    I'm betting on another 15% shrinkage. Go for it!

  • Darron
    Darron Member Posts: 310 Member
    foxhd said:

    Good luck Dancnbear

    I'm betting on another 15% shrinkage. Go for it!

    I'll see you 15%

    I'll see your 15% and go to 20%.

    Good luck!

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    I'm betting along with those

    I'm betting along with those other guys! Rough ride, but sure it was worth it.



  • danbren2
    danbren2 Member Posts: 311
    No calls, just raises!


         It seems we all have a little bit of a gambler in us, thats how we all survive! Hoping your next scan is a whole lot better then the last one!

                                                Prayers for good health,