Liposarcoma

bmscan
bmscan Member Posts: 37
in Sarcoma #1

Liposarcoma...  Just common enough to be known by the medical field, but rare enough not to be understood by most in the medical profession. 

I have been visiting this webiste since 2007, but find CURRENT discussions regarding liposarcoma rare...  I am hoping that this discussion will start some information flow.

I have survived 8 Liposarcoma tumors.  First in 1998 right shin.  Last in 2011 left pelvic.  Presently cancer free.  Still doing scans every 6 months.  (My story - click on my name and go to my Experessions.  It is a bit lengthy, but is humourous and positive.)

Please reply with any factoids you may know ...for those experiencing Liposarcoma.  Positive statements are most welcome.

Comments

  • swcoody
    swcoody Member Posts: 3
    #2
    Hi

    The first line of your post strikes me... Liposarcoma isn't understood by most medical proffesionals, so is it possible to go undetected even after x-rays and an mri..I have had both done and they still are puzzled. If you wouldn't mind, please read my post under the sarcoma discussion. "Well Differentiated Liposarcoma" and tell me what you think.

     

     Hope this message finds you well! 

    Thanks!

    Sarah

  • bmscan
    bmscan Member Posts: 37
    #3
    swcoody said:

    Hi

    The first line of your post strikes me... Liposarcoma isn't understood by most medical proffesionals, so is it possible to go undetected even after x-rays and an mri..I have had both done and they still are puzzled. If you wouldn't mind, please read my post under the sarcoma discussion. "Well Differentiated Liposarcoma" and tell me what you think.

     

     Hope this message finds you well! 

    Thanks!

    Sarah

    Can't Find Said Discussion...

    Sorry, but I can't find (your post or) "Well Differentiated Liposarcoma" ...even in a search.  Grrr.  This site NEEDS help!

    Anyway, in my initial dealings my general practioner took an x-ray and was smart enough to recognize that I needed a specialist.  Then the orthopedic doctor explained things, and when he later looked at the MRI results felt I needed a "specialist" in liposarcoma to verify(!) and referred me.  That new orthopedic doctor knew some about liposarcoma (but not a lot).  He performed a surgical biopsy to make sure...  THEN we knew what it was.

    If they can't tell for sure, then a biospy (by surgey or by needle) is needed.  They need to get a sample under a microscope to really tell.

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