Roll Call For UPSC only

Judemo said:

Very sorry to hear about the loss of your daughter

Hi molimoli, I am so sorry to read about your loss and your other heavy burden your carrying alone.  Please know you are NOT alone here.  We care about you and please keep us posted on how your doing ok? I feel supported by these wonderful people on this discussion board and I hope you will too.

Hi Judemo, thanks for your kind words ,I will post after my 4months post surgery  scans are done on the 28th  of August, keeping fingers and toes crossed.I am comforted by the posts.

NoTimeForCancer said:

molimoli, I can't imagine

molimoli, I can't imagine what it feels like to lose a child.  I am so sorry to hear this and pray for you and your daughters.

As far as your treatment, UPSC is very agressive, and at Stage 3 you can definitely fight and beat this devil, but it would probably involve the treatment.  As the other ladies say, the treatment is doable, it is scary, but you will amaze yourself. 

If I can make a suggestion, I don't know your family dynamics, but you certainly didn't chose any of this but maybe your daughters would like to help you with this.  If you work perhaps your company has an Employee Assistance Program (EAP) who can help you find those words. 

You have a full plate, more than most, and I wish you peace.

NoTimeForCancer,

Thank you for your prayers and suggestion , it's much appreciated.  I just can't imagine any consoling words that I could use the moments after my sentence in which I  would have disclosed to them my own death sentence. I have spent 5 months convincing myself that the later they know is the better for them,less time to worry,less time to put their lives on hold  while they hold their breaths waiting. 

At this point I simply can't imagine where they'll get the strength from,simply can't.

Re: family,we were a team of 4 girls, my 3 girls and I,we were each others support group, my eldest was 34 years old ,[we were each others best friend] with a boy of 1year and 8 months and was pregnant ,immediately after the aneurysm  while she was clinically dead the baby was delivered by c.section. the 2 young kids lives with their dad I am the doting grandmother and hoped to see them through university as I did my 3 girls.-- now this.

My 2nd daughter had a baby girl 6 days before her sister's death,[ this we were all celebrating ]  She lives with her family 4 hours away from  where I live, visits often, begged me to stay well for her daughter and the 2 boys. [as she ,like me,developed the paralysing fear of sudden death] I promised her with a reassuring  hug and a kiss that I'll be there until her daughter and the boys  at least finish school. I needed the tears to stop flowing so that promise did the trick.--now a trick indeed.

My last daughter had just finished university and was so very proud that she made her sisters  very proud ,she was spoiled rotten by us all, most of all she didn't have a mom and 2 sisters she had 3 mothers  --then that.

She finds temporary rescue from the pain by travelling abroad to new places often,vowing to live her life quickly with no encombrances.She begs me to travel with her, minimize my grieving and  "start living again" .  I never fail to agree with her ,I never fail to promise her that I will, in just a little while, i'd say ,all the while knowing that I am giving an empty promise, grief is now my friend.  

 Grief in itself became my comforter.Cancer found me  in the arms of grief and maximized that which it found.

I Don't and won't fear Cancer,I can do Cancer, sometimes I see Cancer as My rescuer from grief .My fear is disclosing and unwittingly putting my children on a death watch journey,arresting their lives all over again ,what if they befriend grief as I do?  How can I ? I keep asking myself.  The posts are encouraging and gives me hope of some extended time so my mind is open, Thanks to all.

It happened to Me said:

molimoli

So sorry to hear about the loss of your 34 year old daughter.  UPSC is scary and doable.  I am UPSC stage 3A and am now 7 months NED (No Evidence of Disease).  We thought my cancer was contained in the uterus but after surgery, the doctor said he found a pea sized nodule at the back of my pelvis.  Pathology revealed it had spread.  Chemo. was ordered and the doctor didn't think that radiation would benefit me.  I had 6 rounds of Carbo/taxol.  It was tough but to me it was worth it.  UPSC is an aggressive sneaky cancer.  Please weigh out all your options.  There are so many women who were stage III and IV with uterine cancer that are still with us.   Also, as a daughter, I would want you to tell me even though I just lost a sister.  The more support you have, the better you are.  They need their mom and you need your daughters.     That's just my opinion as a daughter.   I was never blessed with having children.  This disease won't beat us.  We are WOMEN, hear us ROAR.   Best wishes.  I will be praying for you.  If you aren't comfortable with your doctor's options, get a second opinion.  Please read the threads on this board, these women are so knowledgeable and they have so many experiences and encouragement to share.  They have been through what we are going through.  Take care.

Jeanette

To It happened to Me

Hi Jeanette,

Thanks to the Creator that you are ROARING at this awful Cancer ,I hope it never comes back for all of you that have NED.

I hear you from the daughters point of view , I came with an open mind and very much appreciate the imput.

I must confess that the treatment and its side effects are more frightening to me than the actual Cancer .I guess it's because I am feeling no discomfort now and except for 2 episode of spotting a year apart  I have had no problem . but reading and learning from this site I am confident that in a little while I will be looking out through clearer windows and will be able to make informed decisions about my care moving forward,

I have post op. scans to do in the next week ,I will keep you all posted as I get the results.

Thanks for your prayers.  Please read reply to  No Time For Cancer ,

Abbycat2 said:

To molimoli

Your post yesterday to NoTimeForCancer brought tears to my eyes.  I understand your hesitancy in telling your daughters about your cancer at this point in time.  Your situation is a difficult place to be, but please don't give up hope!  I remember reading a study in which it talked about the long term survival of women with UPSC stage IVB.  These women were alive and well with no evidence of disease ten years after their diagnosis!  Someday, years from now, I look forward to reading one of your post in which you talk about your daughters and grandchildren and your shared lives.  I pray that you maintain a sense of hope and that you find peace. 

Take good care of yourself, molimoli,

Cathy 

MoliMoli,

Don't count this as a death sentence.  It's not.  It's a bump in the road of life.  The best way to beat this is to get the help, get the encouragement, get the nutrition, exercise.  Laugh often, live life and enjoy what you have.  You have two daughters and grandchildren that love you.  Enjoy each moment of talking on the phone, laughing with your grandchildren etc.     That is the one thing that I have learned.  To enjoy each day, and to laugh often.   We may have cancer, but cancer doesn't have us.    There's always HOPE.  

I will be praying for you.  You are strong, you are a survivor.

kansasgal said:

UPSC 1A in 2009 - and Hi, Deanna!

In 2009 just before my 64^th birthday, I noticed a slight bit of spotting. It looked a bit like café au lait. My PCP did a PAP showing cells suspicious of endometrial cancer. A biopsy the next month showed the presence of endometrial adenocarcinoma cells. A month later, shortly after my TAHBSO with only 9 lymph nodes examined and a clear pelvic wash, my pathology report listed Grade 2 endometrial adenocarcinoma at Stage 1B. The gyn/onc indicated no need for further treatment. 

When I returned to the gyn/onc for a 1-month check-up, I was given a REVISED pathology report which added to the previous report the presence of Grade 3 UPSC cells at Stage 1A. The gyn/onc recommended beginning chemo in a couple weeks. I did lots of research in a very short time, contacted several doctors I knew, and traveled to another state for a second opinion with a specialist in UPSC. He recommended adding brachytherapy to the chemo. I met with a local onc/radiologist to decide on radiation or not. I had 6 rounds of carbo/taxol chemo given at 3-week intervals. Immediately following round 3, I started 3 rounds of brachytherapy. I was able to get all 6 rounds of chemo with no breaks in the every 3 week schedule. I remain NED.

Several abdominal hernias just above my navel began to appear about a year after my surgery. They are quite large now and look like a single lump a bit larger than a large grapefruit.

This year I have had a low grade fever and exhaustion since January. After many doctor visits and lots of testing, a fistula appeared from my colon to the upper vaginal area which was confirmed by CT. The CT showed no evidence of any cancer. A colonoscopy found extensive diverticular disease (I have had this for at least 20 years), and no polyps. I am scheduled for an ileostomy with bowel resection plus hernia repair. There is the possibility of having a reversal of the ileostomy next year, but there are no guarantees. 

I am sure the radiation to the upper vaginal vault is a contributing factor to the fistula development, but I have many other factors, too. If I had it to do all over again, I would still choose adding brachytherapy to the chemotherapy.

I read the boards almost every day but do not post as often as I once did.

Hugs to you all from Sally in Kansas.

 

DEANNA – What a thrill to hear from you! I often think of you and am delighted to hear you are still doing well! I echo Ro in hoping that your marriage has brought you joy!

So good to hear from you, too.  Again, I recall reading your old posts when I was in treatment two years ago.  You were one of the members when this was just a tiny club.  I've been feeling a little sad lately because there are so many new ladies.  If we could only make this disease go away.

Bythe way, I was born in Salina 68 years ago.

molimoli said:

To debrajo

Thanks for the welcome, Since my diagnosis in April,2014, I have not had the courage to tell my 2 adult daughters who live away from home , therefore I am travelling a lonely road so appreciate this site more than anyone can imagine.

My 2 girls  and I are still dealing with the unexpected death of my 34 year old daughter. [aneurysm]  I can't bear to give them this horrible news about me and UPSC so I have decided to Not Cry Out Loud,it's a daunting task though.

Thanks for all of you.

 

I am sorry about your daughter ....i lost my daughter in July of this year at 33 to cancer (mmmt) and nothing is worse than losing a child. I hope things go well for you and that you go into remission.

denise05121953 said:

I am sorry about your

I am sorry about your daughter ....i lost my daughter in July of this year at 33 to cancer (mmmt) and nothing is worse than losing a child. I hope things go well for you and that you go into remission.

There are no adequate words.  I am so sorry.  I can't begin to imagine what you are going through.  

Debra Lagrone said:

Uterine cancer

Hello, my name is Debra I am 60 years old and I was told I had uterine cancer Sept 2013, had a radical hyst. Nov.19, 2013.   I was told I am stage III C2 grade 3.  I had 6 rounds of chem 25 external radiation and 3 internal radiation completed all treatments at the end of July 2014.

Had my first follow up last week and just waiting for the approval for the pet scan.  Problems I am experiencing now is sever back, hip and leg pain, I can't stand, sit or walk for any length of time and my oncologist has told me that it is long term effect from the agressive treatment of chemo and radiation that I was given.  I am staying positive about the up and coming results of my pet scan and very happy to have found this website..  I pray for everyone to succeed with this monster and I know we can beat it with time.

 

take care. Deb

For starting this thread, as it has given me hope that UPSC is treatable and beatable, to coin a new word.  Also, I appreciate your responsiveness to the women on this board and how supportive and kind you are with your words. 

Best Wishes,

Cathy