Stage IIIC2 endometriosis

2

Comments

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    #22
    StrongerthanIthought said:

    I have Stage3C grade 2 also

    Hi Debra, Seems you and I have some things in common.  I also have Endometroioid Adenocaarcinoma Stage 3C grade 2.  I have had the hysterectomy, 6 rounds of chemo and 22 of the planned 28 rounds of radiation.  Drs are also thinking mine may be hereditary - my tumor has been tested and I am missing some protiens, will have DNA tests next month.  I am on state disability but haven't applied for anything else.  Praying for a cure and to not be disabled.  Best wishes to you, Barb

    Hi Barb,  yes we do, I had a

    Hi Barb,  yes we do, I had a complete radical hysterctomy nov 2013.  Mine is also hereditary, my cancer  spread up to my spine and several lymph nodes were removed etc..  I have applied for social security disability still waiting to here,  i also have sever back pain which goes down to my knees.  I see my oncologist this Thursday.   i had 6 rounds of chemo 25 exterior radiation and 3 of internal radiation hoping to get my date for the pet scan to see have my treatments went.  Wishing you well!!  Deb

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    #23
    Debra Lagrone said:

    Hi Barb,  yes we do, I had a

    Hi Barb,  yes we do, I had a complete radical hysterctomy nov 2013.  Mine is also hereditary, my cancer  spread up to my spine and several lymph nodes were removed etc..  I have applied for social security disability still waiting to here,  i also have sever back pain which goes down to my knees.  I see my oncologist this Thursday.   i had 6 rounds of chemo 25 exterior radiation and 3 of internal radiation hoping to get my date for the pet scan to see have my treatments went.  Wishing you well!!  Deb

    Stage IIIc2T1bN2M0 meaning for Deb L.

     

    Good Morning, Deb,

     

    I found information regarding your specific diagnosis. I tried to cut and paste it, but it didn't work. So this is what I learned:

    Endometrial cancer is classified according to the tumor, node, metastasis (TNM) system developed by the American Joint Committee on Cancer (AJCC). The tumor is categorized according to its size and location (T), whether cancer cells are found in nearby lymph nodes (N), and whether cancer has metastasized or spread to other parts of the body (M).

    Stage IIIC2 refers to the TNM classification system of T1 to T3, N2, MO with T=Tumor; N=Nodes and M=Metastasis.

    T1b definition: Tumor has spread more than halfway through the myometrium; tumor has not spread beyond the body of the uterus.

    N2 definition: Cancer has spread to the lymph nodes along the aorta (para-aortic lymph nodes), which are located in the middle and upper portions of the abdomen; there may or may not be cancer in the nearby lymph nodes (those closest to the uterus).

    MO definition: No distant metastasis.  If it was M1 that means distant metastasis. 

    I hope this helps!

    Have a great day,

    Cathy

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    #24
    Abbycat2 said:

    Stage IIIc2T1bN2M0 meaning for Deb L.

     

    Good Morning, Deb,

     

    I found information regarding your specific diagnosis. I tried to cut and paste it, but it didn't work. So this is what I learned:

    Endometrial cancer is classified according to the tumor, node, metastasis (TNM) system developed by the American Joint Committee on Cancer (AJCC). The tumor is categorized according to its size and location (T), whether cancer cells are found in nearby lymph nodes (N), and whether cancer has metastasized or spread to other parts of the body (M).

    Stage IIIC2 refers to the TNM classification system of T1 to T3, N2, MO with T=Tumor; N=Nodes and M=Metastasis.

    T1b definition: Tumor has spread more than halfway through the myometrium; tumor has not spread beyond the body of the uterus.

    N2 definition: Cancer has spread to the lymph nodes along the aorta (para-aortic lymph nodes), which are located in the middle and upper portions of the abdomen; there may or may not be cancer in the nearby lymph nodes (those closest to the uterus).

    MO definition: No distant metastasis.  If it was M1 that means distant metastasis. 

    I hope this helps!

    Have a great day,

    Cathy

    Good Morning another great day to be alive

    Hi Cathy,  thank you so much, that does help me to understand, I do know my radiation oncologist did say it spread to my spine, is that still correct?  And with this explanation do you still think I will qualify for disability?  Please advise..  Thank you again

     Note:  my doctor did say it spread to lymph nodes and they we're remove however, she only went so far to remove the lymph nodes by my spine because it would affect my legs

    Deb

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    #25
    Doctor appointment!

    We'll today I see my oncologist, this will be the first time I have seen her since chemo.  I hope to get a date for my pet scan!

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #26
    Debra Lagrone said:

    Doctor appointment!

    We'll today I see my oncologist, this will be the first time I have seen her since chemo.  I hope to get a date for my pet scan!

    How was the appointment

    Hi Debra:

    How did your appointment go?   I have you had a good appointment and was able to get a date for your PET scan.   

    Thinking of you.

     

    Kathay

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    #27
    Debra Lagrone said:

    Good Morning another great day to be alive

    Hi Cathy,  thank you so much, that does help me to understand, I do know my radiation oncologist did say it spread to my spine, is that still correct?  And with this explanation do you still think I will qualify for disability?  Please advise..  Thank you again

     Note:  my doctor did say it spread to lymph nodes and they we're remove however, she only went so far to remove the lymph nodes by my spine because it would affect my legs

    Deb

    Social Security Disability

    Hi, Debra,

    I've been reading about SSDI and cancer on the internet and there are so many variables that the Social Security Administration looks at when deciding whether an individual receives SSDI or not.   Not to frighten you, but I was shocked to learn that SSA denies 70% of all first time applications, forcing many people to either hire a lawyer to represent them or to reapply later.  Some of the information that SSA will gather includes:  Can you work or is your condition and/or treatment so severe that you are unable to maintain employment?  We all know how awful it is to be treated for this type of cancer, what with the nausea, fatigue, weakness and neuropathy just to name a few side effects. Many women here did not work during their chemo and radiation treatment.  What your doctor tells SSA is very important and I suggest that you talk to him about your efforts to receive SSDI benefits. You want to have him advocate on your behalf.  SSA also looks at whether or not the cancer has spread further away from the original site of the cancer.  I am not certain, but I think that the para-aorta lymph nodes would be considered more distant rather than regional.  Perhaps someone here knows the answer to that?   Then, SSA also looks at the cancer treatment that you are receiving and how you are responding to it.  

    I am hoping that you receive SSDI as soon as possible, Deb.  Please keep us informed.

    Take Care,

    Cathy

         

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    #28
    Kaleena said:

    How was the appointment

    Hi Debra:

    How did your appointment go?   I have you had a good appointment and was able to get a date for your PET scan.   

    Thinking of you.

     

    Kathay

    Appt

    Hi Kathy,  my appointment went good, waiting on insurance to approve my pet scan and then I will receive my date.  I will keep you posted.   Thank you!!!

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    #29
    Abbycat2 said:

    Social Security Disability

    Hi, Debra,

    I've been reading about SSDI and cancer on the internet and there are so many variables that the Social Security Administration looks at when deciding whether an individual receives SSDI or not.   Not to frighten you, but I was shocked to learn that SSA denies 70% of all first time applications, forcing many people to either hire a lawyer to represent them or to reapply later.  Some of the information that SSA will gather includes:  Can you work or is your condition and/or treatment so severe that you are unable to maintain employment?  We all know how awful it is to be treated for this type of cancer, what with the nausea, fatigue, weakness and neuropathy just to name a few side effects. Many women here did not work during their chemo and radiation treatment.  What your doctor tells SSA is very important and I suggest that you talk to him about your efforts to receive SSDI benefits. You want to have him advocate on your behalf.  SSA also looks at whether or not the cancer has spread further away from the original site of the cancer.  I am not certain, but I think that the para-aorta lymph nodes would be considered more distant rather than regional.  Perhaps someone here knows the answer to that?   Then, SSA also looks at the cancer treatment that you are receiving and how you are responding to it.  

    I am hoping that you receive SSDI as soon as possible, Deb.  Please keep us informed.

    Take Care,

    Cathy

         

    SSDI

    Hi Cathy,  I saw my oncologist today and told her all my problems and pain I am experiencing and she said it is no wonder because I was given the most aggressive treatment because of my Condition but she said it would be at least 6 mos before I start feeling normal again.  She does not support disability so I will probably have to get a lawyer if they turn me down.  My ssdi case worker told me yesterday that she has submittied my health records for review and it can take another 30 to 60 days before a decision is made.  It has already been 5 months so we will see.  Waiting on my pet scan approval and then i will get a date for it and find out if the treatment worked..

    I will keep you posted!!!  Thank you for all your research

     

    Deb

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    #30
    Abbycat2 said:

    Social Security Disability

    Hi, Debra,

    I've been reading about SSDI and cancer on the internet and there are so many variables that the Social Security Administration looks at when deciding whether an individual receives SSDI or not.   Not to frighten you, but I was shocked to learn that SSA denies 70% of all first time applications, forcing many people to either hire a lawyer to represent them or to reapply later.  Some of the information that SSA will gather includes:  Can you work or is your condition and/or treatment so severe that you are unable to maintain employment?  We all know how awful it is to be treated for this type of cancer, what with the nausea, fatigue, weakness and neuropathy just to name a few side effects. Many women here did not work during their chemo and radiation treatment.  What your doctor tells SSA is very important and I suggest that you talk to him about your efforts to receive SSDI benefits. You want to have him advocate on your behalf.  SSA also looks at whether or not the cancer has spread further away from the original site of the cancer.  I am not certain, but I think that the para-aorta lymph nodes would be considered more distant rather than regional.  Perhaps someone here knows the answer to that?   Then, SSA also looks at the cancer treatment that you are receiving and how you are responding to it.  

    I am hoping that you receive SSDI as soon as possible, Deb.  Please keep us informed.

    Take Care,

    Cathy

         

    Stage and grade

    Hi Cathy,   I wanted to let you know that I got a copy of my records from my radiation oncologist and I am a stage III grade 3..

    i have requested all of my records from my oncologist as we'll to include hospital, surgery, pathology along with all doctors notes. I am 

    gathering everything just in case.  I have also requested a letter supporting my disability from my radiation oncologist! Hope she agree's.  I will be calling my primary next week to request a letter from her as  well!  

    Thanks again for all your help

     

    Deb

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    #31
    Cancer Spreading

    Hi,  I have a question.  Can anyone tell me if my cancer has spread to my lymph nodes on my aorta, is that considered spreading to other organs??

     

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #32
    Debra Lagrone said:

    Cancer Spreading

    Hi,  I have a question.  Can anyone tell me if my cancer has spread to my lymph nodes on my aorta, is that considered spreading to other organs??

     

    Debra:
    I believe that is just

    Debra:

    I believe that is just considered lymph node involvement, but I am not certain.

    Kathy

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    #33
    Kaleena said:

    Debra:
    I believe that is just

    Debra:

    I believe that is just considered lymph node involvement, but I am not certain.

    Kathy

    Thank you!
    Deb

    Thank you!

    Deb

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    #34
    Debra Lagrone said:

    Thank you!
    Deb

    Thank you!

    Deb

    Lymph node involvement

    Hi, Deb,

    I am glad to hear that your appt went well with the radiologist and I hope that you get approved for the PET Scan. When cancer spreads from the uterus to the lymph nodes it is considered to be metastatic . I had metastatic disease as my cancer spread to my ovary and I had cancer in my pelvic wash in the peritoneal cavity. Like you , I have a stage 3 cancer that is a grade 3. I look forward to hearing that your PET Scan has been approved.

    Warm Wishes,

    Cathy

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    #35
    Abbycat2 said:

    Lymph node involvement

    Hi, Deb,

    I am glad to hear that your appt went well with the radiologist and I hope that you get approved for the PET Scan. When cancer spreads from the uterus to the lymph nodes it is considered to be metastatic . I had metastatic disease as my cancer spread to my ovary and I had cancer in my pelvic wash in the peritoneal cavity. Like you , I have a stage 3 cancer that is a grade 3. I look forward to hearing that your PET Scan has been approved.

    Warm Wishes,

    Cathy

    Hi Cathy,  thank you for the

    Hi Cathy,  thank you for the info, I have been researching my cancer and now I realize it did spread to other areas and organs .  Being that the aorta is considered another organ which it had spread to the lymph nodes.  I was reading some notes in my case and several lymph nodes had been removed during surgery and I believe my oncologist stated she removed some of my cervix, vagina and pelvis  during the radiical hyst.  I requested a copy of my pathology and records from the hospital to review everything.  Thank you again I will keep in touch.

     

    Deb

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    #36
    Debra Lagrone said:

    Hi Cathy,  thank you for the

    Hi Cathy,  thank you for the info, I have been researching my cancer and now I realize it did spread to other areas and organs .  Being that the aorta is considered another organ which it had spread to the lymph nodes.  I was reading some notes in my case and several lymph nodes had been removed during surgery and I believe my oncologist stated she removed some of my cervix, vagina and pelvis  during the radiical hyst.  I requested a copy of my pathology and records from the hospital to review everything.  Thank you again I will keep in touch.

     

    Deb

    Pathology report

    Hi, Deb,

    I studied both my opertive report from my hysterectomy and the subsequent pathology report.  Both were very informative.  My cancer had spread outside the uterus to my fallopian tube and ovary.  I had positive pelvic washes.  Were your pelvic washes negative (I hope)?  Have you heard when you will have the PET Scan?

    Please keep in touch!

    Cathy 

     

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    #37
    Abbycat2 said:

    Pathology report

    Hi, Deb,

    I studied both my opertive report from my hysterectomy and the subsequent pathology report.  Both were very informative.  My cancer had spread outside the uterus to my fallopian tube and ovary.  I had positive pelvic washes.  Were your pelvic washes negative (I hope)?  Have you heard when you will have the PET Scan?

    Please keep in touch!

    Cathy 

     

    Pathology report

    Hi Cathy,  I will write a few lines from my report.  It says " High grade adenocarcinoma of endometrium ( figo grade 3), sharing features of both endometrioid And serous carcinoma, with extensive tumor necrosis.  The tumor deeply infiltrates the monetarism the maximal thickness of myometrium invasion is 2.2 cm; the thickness of the endometrium in the area of maximal tumor invasion is 2.5 cm".  And the stage is T1b N2 MX. Stage III C2.  Right pelvic lymph nodes, lymphadenectomy metastatic adenocarcinoma, one out of nine.  Right adnexum, salpingo- oophorectomy:  ovary with endometriosis and stromal hyperplasia.  Atrophic Fallopian tube.  Left pelvic lymph nodes, lymphsadenectomy:  metastatic adenocarcinoma in four out of fifteen lymph nodes.  Right para- aortic lymph nodes, metastatic adenocarcinoma in two out of three lymph nodes. Left para-aortic lymph nodes, metastatic adenocarcinoma in six out of 7 lymph nodes.  The noneoplastic uterus shows:  adenomyosis, endocervical squamous meta plasma,  chronic active cervicitis, with extensive epithelial erosion ulceration.  Please let me know what you think.

     

    Thank you

    Deb

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    #38
    Debra Lagrone said:

    Pathology report

    Hi Cathy,  I will write a few lines from my report.  It says " High grade adenocarcinoma of endometrium ( figo grade 3), sharing features of both endometrioid And serous carcinoma, with extensive tumor necrosis.  The tumor deeply infiltrates the monetarism the maximal thickness of myometrium invasion is 2.2 cm; the thickness of the endometrium in the area of maximal tumor invasion is 2.5 cm".  And the stage is T1b N2 MX. Stage III C2.  Right pelvic lymph nodes, lymphadenectomy metastatic adenocarcinoma, one out of nine.  Right adnexum, salpingo- oophorectomy:  ovary with endometriosis and stromal hyperplasia.  Atrophic Fallopian tube.  Left pelvic lymph nodes, lymphsadenectomy:  metastatic adenocarcinoma in four out of fifteen lymph nodes.  Right para- aortic lymph nodes, metastatic adenocarcinoma in two out of three lymph nodes. Left para-aortic lymph nodes, metastatic adenocarcinoma in six out of 7 lymph nodes.  The noneoplastic uterus shows:  adenomyosis, endocervical squamous meta plasma,  chronic active cervicitis, with extensive epithelial erosion ulceration.  Please let me know what you think.

     

    Thank you

    Deb

    Hi, Deb

    I hope that you are feeling better with your back pain. Your report is quite complicated with words I've never heard before! I am afraid that I can't be much help with interpreting the medical jargon. I know that some of your conditions, such as the Atrophic Fallopian tube, is not cancer. Atrophic means that the tissue has wasted away. Your report indicates that the cancer has spread to both local lymph nodes and to those more distant close to the aorta.  I think your doctor would explain your report if you ask. What little I know about uterine cancer I learned since my diagnosis 10 months ago.  

    Hope you are doing better, Cathy

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    #39
    Abbycat2 said:

    Hi, Deb

    I hope that you are feeling better with your back pain. Your report is quite complicated with words I've never heard before! I am afraid that I can't be much help with interpreting the medical jargon. I know that some of your conditions, such as the Atrophic Fallopian tube, is not cancer. Atrophic means that the tissue has wasted away. Your report indicates that the cancer has spread to both local lymph nodes and to those more distant close to the aorta.  I think your doctor would explain your report if you ask. What little I know about uterine cancer I learned since my diagnosis 10 months ago.  

    Hope you are doing better, Cathy

    Pathology

    Hi Cathy,  you have help more than you know and I appreciate it so much, who knows all the knowledge we learn from our cancer problems makes me feel like we are doctors lol

    i am going to send a copy of my report to my niece who happens to be an RN in icu, don't know why I didn't think about that sooner, I seem to brain fart a lot.....  Lol. Hope you have a blessed day,  talk to you soon!!

    Deb

  • Debra Lagrone
    Debra Lagrone Member Posts: 37
    #40
    Pet scan report

    Hi everyone,  I had my pet scan done on Tuesday last week, I went to pick up a copy of the final report and was so scared about the out come that a lady in the office read it to me, her response was,  " you are in remission". I am so afraid to believe it until I see my oncologist in 2 weeks, but a part of me is so happy and at peace.  Thank you Jesus

    Also it did say I need an ultrasound on my thriod but she said it could just be from treatment not to worry..  But of course I will worry until it is ruled out.  Lol

     

    Best to everyone,  I pray and think of all of you who are fighting and the families.

     

    Deb

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,515 Member
    #41
    Debra Lagrone said:

    Pet scan report

    Hi everyone,  I had my pet scan done on Tuesday last week, I went to pick up a copy of the final report and was so scared about the out come that a lady in the office read it to me, her response was,  " you are in remission". I am so afraid to believe it until I see my oncologist in 2 weeks, but a part of me is so happy and at peace.  Thank you Jesus

    Also it did say I need an ultrasound on my thriod but she said it could just be from treatment not to worry..  But of course I will worry until it is ruled out.  Lol

     

    Best to everyone,  I pray and think of all of you who are fighting and the families.

     

    Deb

    Deb that is FANTASTIC news

    Deb that is FANTASTIC news and I hope you celebrate it!

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