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harleywiz
harleywiz Member Posts: 50 Member
in Colorectal Cancer #1

Hello im new to the group stage 4 colon cancer with mets to liver nd groin  finshed my first round of chemo in nov 2013 had 2 tumors in my colon and spots in my groin and liver recived  ostomy and and the chemo took care of the spots  had my 3rd pet scan wed found it back in my groin nodes had surgy and they removed 3 nodes waiting for results but allready know what there going to say so dont know whats next more chemo or what still cant belive i have cancer dont feel any diffrent and all my blood work comes back good thought i had a chance till i got a bump in my groin and were back to start all over again

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Comments

  • lp1964
    lp1964 Member Posts: 1,239 Member
    #2
    Dear Friend,

    I don't have any experience with Stage 4 and i am sorry to hear that news. There are many people here that will give you good advise and getting a second opinion doesn't hurt either.

    I wish you good luch with the treatment.

    Laz

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #3
    Welcome to the forum

    I am sorry that you have the dreaded Cancer, but now you have it, and have found this forum, you will find much support and information. 

    I started my journey Stage III and then after only a few months NED, they found a met in the liver, so up I go to Stage IV. 

    There are many here that are 3 & 4 and we all have experience across the board, so we can usually help. Although, at the end of the day, your oncologist is the you  turn to. 

    Stay as strong as you can. A positive outlook can take you a long, long way and get you through some real tough times. 

    I look forward to getting to know you here on the forum. 

     

  • Nana b
    Nana b Member Posts: 3,030 Member
    #4
    Trubrit said:

    Welcome to the forum

    I am sorry that you have the dreaded Cancer, but now you have it, and have found this forum, you will find much support and information. 

    I started my journey Stage III and then after only a few months NED, they found a met in the liver, so up I go to Stage IV. 

    There are many here that are 3 & 4 and we all have experience across the board, so we can usually help. Although, at the end of the day, your oncologist is the you  turn to. 

    Stay as strong as you can. A positive outlook can take you a long, long way and get you through some real tough times. 

    I look forward to getting to know you here on the forum. 

     

    Welcome and sorry that you

    Welcome and sorry that you are here.  I'm also Stage 4, diagnosed Nov 2008.  I was in remission for 2.5 years, then a met surfaced on my liver, and now I have two mets on my lungs and two on my chest lymph nodes.   Staying positive, staying strong, and doing all I can to stay healthy As possible. 

    We we are here for each other, so any questions ask away. 

     

    Raquel 

     

  • Yolllmbs
    Yolllmbs Member Posts: 360 Member
    #5
    Sorry

    It came back. The forum is a great place to meet people in the same situation.  I will add you to the prayer list.  i was given the advice to keep paper and pen handy. Write all your questions down and ask ask ask until you get answers you understand and accept. 

     

    Yolanda

  • Phil64
    Phil64 Member Posts: 838 Member
    #6
    wishing you strength

    There are all too many people on this forum that know exactly what you are saying. I thank God that I'm feeling great today.  And I try to live in the moement... But it is very challenging knowing that the cancer is there.  Blessings to you.  Praying for strength and faith as we face today and tomorrow. Good luck my friend.

    Philip

  • fatbob2010
    fatbob2010 Member Posts: 467 Member
    #7
    Welcome

    Glad you found us, sorry to see you here.  This is a great place to ask questions and just vent from time to time.

    Hoping for great news following the groin surgery.

    Art

  • harleywiz
    harleywiz Member Posts: 50 Member
    #8
    thursday

    well i guess thursday i'll know were we go from here let you know what they want to do

  • Easyflip
    Easyflip Member Posts: 588 Member
    #9
    Hey Harley

    Sorry to hear the news, I finished chemo November 2013 too, I was stage 3 and had a lymph node light up and then mysteriously disappear and now there's a spot in my liver. This is a marathon and we will be living with cancer in some way or another the rest of our lives. The trick is to not let it rule your life, listen to the docs and be proactive but try to be happy.  Be grateful for the care and support you're receiving, try to live in the moment and a little humor now and then helps. Welcome to the forum and good luck!

  • Helen321
    Helen321 Member Posts: 1,460 Member
    #10
    Hey Harley, Let us know. 

    Hey Harley, Let us know.  Let's just let this be it.  There are quite a few people who are stage IV and in remission on here.

  • thingy45
    thingy45 Member Posts: 632 Member
    #11
    Helen321 said:

    Hey Harley, Let us know. 

    Hey Harley, Let us know.  Let's just let this be it.  There are quite a few people who are stage IV and in remission on here.

    Good luck

    Good luck in your treatment Harley, take it one day at a time.

  • harleywiz
    harleywiz Member Posts: 50 Member
    #12
    surgy visit

    doc says removed 3 lymp nodes two with cancer one with out same cancer i have so at least it not somthing new cancer doc on monday guess he will let me know what he wants to do

    keep ya updated later

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #13
    harleywiz said:

    surgy visit

    doc says removed 3 lymp nodes two with cancer one with out same cancer i have so at least it not somthing new cancer doc on monday guess he will let me know what he wants to do

    keep ya updated later

    Good to hear from you...

    and nice to see you on your feet and not in the hospital bed. Here's hoping you stay on your feet and out of the hospital. 

    Hope they are able to take care of your lymph nodes in good order and have you back to being NED. 

    Thinking of you!

    SUE/TRU

  • harleywiz
    harleywiz Member Posts: 50 Member
    #14
    cancer doc today

    so he seen the report 3 nodes removed 2 winth cancer i asked whats next  and he said one of two things 1. can start chemo or @. wait 3 months and do pet scan

    he suggest the wait 3 months becuse cancer nodes were cut out instead of suffering throught chemo again any thoughts on what way to go? thanks in advance

  • Easyflip
    Easyflip Member Posts: 588 Member
    #15
    harleywiz said:

    cancer doc today

    so he seen the report 3 nodes removed 2 winth cancer i asked whats next  and he said one of two things 1. can start chemo or @. wait 3 months and do pet scan

    he suggest the wait 3 months becuse cancer nodes were cut out instead of suffering throught chemo again any thoughts on what way to go? thanks in advance

    There's a big debate

    On the chemo no chemo question. Personally if the doc is giving you the option I would go no chemo but do everything I could to boost my immune system. Check out the book radical remission, learn about supplements, exercise, get your mind right, maybe cannabis oil. Follow your gut. I worry that chemo destroys your immune system, the one thing you really need to fight off cancer. Just my opinion- not telling you what to do.

    Good Luck!

  • harleywiz
    harleywiz Member Posts: 50 Member
    #16
    Trubrit said:

    Good to hear from you...

    and nice to see you on your feet and not in the hospital bed. Here's hoping you stay on your feet and out of the hospital. 

    Hope they are able to take care of your lymph nodes in good order and have you back to being NED. 

    Thinking of you!

    SUE/TRU

    just wondering

    it seems when i go in to the discusion it will now only let me reply to some one in the post and not let me post in the dicussion would you know why thanks

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #17
    harleywiz said:

    just wondering

    it seems when i go in to the discusion it will now only let me reply to some one in the post and not let me post in the dicussion would you know why thanks

    Are you wanting to edit/add to what you originally wrote?

    If you want to edit/add to what you originally posted you can.

    Go to that post at the top of the string of replies.

    Just over top of that box, in blue I believe, you will see the word edit.  Click here and it will put that post in the same type of window you first wrote it in.  You can also change the title.

    When done with your changes, go to the bottom and click cubmit.

     

    Marie who loves kitties

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #18
    harleywiz said:

    just wondering

    it seems when i go in to the discusion it will now only let me reply to some one in the post and not let me post in the dicussion would you know why thanks

    Edit

    And if you want to edit a post you added to a thread, you can only do it if that post has not been replied to. Like now, you can't edit your post asking this question. But if nobody has answered, then you will see an edit button onthe bottom right if your post.  

    Your initial post you can edit, as said above. You can even edit the subject line, which I find very helpful. 

    Hope this helps. 

  • harleywiz
    harleywiz Member Posts: 50 Member
    #19
    chemo on hold scan in nov

    so i decided to hold on 2nd round of chemo and wait for my pet scan in nov but i found out thats theres some no helth law only 3 pet scans in your life time this will be my 4th i dont know if it will be approved or not any thoughts also i stoped useing suger best i can does any one know if splenda is a good opition also i see alot of people useing honey but from what i can tell thats still sugar in your body 

  • Helen321
    Helen321 Member Posts: 1,460 Member
    #20
    harleywiz said:

    cancer doc today

    so he seen the report 3 nodes removed 2 winth cancer i asked whats next  and he said one of two things 1. can start chemo or @. wait 3 months and do pet scan

    he suggest the wait 3 months becuse cancer nodes were cut out instead of suffering throught chemo again any thoughts on what way to go? thanks in advance

    I opted for chemo and a

    I opted for chemo and a healthier lifestyle.  I haven't given up sugar but I no longer eat junk.  I've gone all organic.  You have to go with your gut and what feels right for you.  Also I never heard of the PET scan limitation.  That seems harsh considering so many people with illnesses need them.  I could see limiting to 3 scans a year but not in a lifetime.  My doctor won't scan me often, she says the stuff you have to drink alone will kill you.  

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #21
    harleywiz said:

    chemo on hold scan in nov

    so i decided to hold on 2nd round of chemo and wait for my pet scan in nov but i found out thats theres some no helth law only 3 pet scans in your life time this will be my 4th i dont know if it will be approved or not any thoughts also i stoped useing suger best i can does any one know if splenda is a good opition also i see alot of people useing honey but from what i can tell thats still sugar in your body 

    Double check

    I hope that information is incorrect. PET scans will definitely be a part of my future and I've already had two. 

     

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