Craig (Sundanceh) update

2

Comments

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    #22
    Keeping my fingers crossed and hoping the clinical trial works.

    I'll be thinking of you.

    Lin

  • Sandi1
    Sandi1 Member Posts: 277
    #23
    Miss him

    I so miss Craig on here and his insight. There were many times that his words pulled me through a rough patch. I sure could use his wisdom right now.  Feel Better Soon !!

    You are in my thoughts and prayers.

    Sandi

     

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #24
    Sandi1 said:

    Miss him

    I so miss Craig on here and his insight. There were many times that his words pulled me through a rough patch. I sure could use his wisdom right now.  Feel Better Soon !!

    You are in my thoughts and prayers.

    Sandi

     

    We all could use his wisdom.

    We all could use his wisdom. I so looked forward to ready his posts and stories and getting advice and encouragement from him. Now we all have to pull together and keep him in our thoughts and prayers and return the favor.

  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #25
    Greg

    Hang in there buddy. Last one out has to turn off the lights

    Cool
    Love ya!
    Ralph

     

  • geotina
    geotina Member Posts: 2,111 Member
    #26
    Craig and Kim:

    Hugs from Michigan!  

    Love - Tina

  • relaxoutdoors08
    relaxoutdoors08 Member Posts: 521 Member
    #27
    Sending prayers for you

    Craig,

    sending prayerful thoughts for you. Miss your supportive writings.

    NB

  • TheLadySkye
    TheLadySkye Member Posts: 203 Member
    #28
    Sending much love and wishing

    Sending much love and wishing you a speedy recovery from surgery!

  • fedester
    fedester Member Posts: 753 Member
    #29
    craig

    all the best

     

  • Phil64
    Phil64 Member Posts: 838 Member
    #30
    Thoughts and prayers

    Craig, you are in my thoughts and prayers. Love to you today.

    Phil

  • jen2012
    jen2012 Member Posts: 1,607 Member
    #31
    Be well Craig...we miss you

    Be well Craig...we miss you around here!

  • jane283
    jane283 Member Posts: 39
    #32
    get well soon

    Get well soon craig...we miss you already...

    hope the trials are going fine.

  • danker
    danker Member Posts: 1,276 Member
    #33
    jane283 said:

    get well soon

    Get well soon craig...we miss you already...

    hope the trials are going fine.

    craig

    Hang in there man!!  Hope all is going well.

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #34
    Hi Cyn, do you have any more

    Hi Cyn, do you have any more updates on how Craig is doing.

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #35
    janderson1964 said:

    Hi Cyn, do you have any more

    Hi Cyn, do you have any more updates on how Craig is doing.

    How about an update from me?:)
    Thank you so much for the warmth sent. Much needed. Trial is going well, paperwork tedious. After just two weeks I've cut back the dilaudid by 75% at least. Not paralyzed either-----whew!

    Still 6 weks to go. I might do this again while trials are on. I did dosage of 4....would try the 16 in hopes of wiping it out permanently.

    So there is hope here a d I hope folks wil benefit from it. It's a real life leap of faith but you have to take calculated risks along the way. We have to.

    I'm also eligible for two cancer clinical trials. One looks bette and more promising. I'm gonna be busy for awhile.

    We stopped the oxy due to 3 in a row allergic reactions...so right now just folfiri minus that is what I'm doing now. Not great but options are limited now....holding the line so far.

    I'm about to lose my job this week. Automatic termination after 1 year. I'm sad I can't make it back: did not want it to end like this.... After 25 years of dedicated service this gels funny. Nothing I can do about it. They are probably relieved I'm gone now.

    Went thru all the SSDI paperwork runaround and got it taken care of.

    Well that's the highlights:).

    Hanging in there....still with you.

    Typing on old iphone3... Other pc just keeps having problems constantly. That also prevents good posting from me just one pecking here. Maybe save up for Microsoft Surface w/keyboard....don't know.

    Anyway hang in there with me. I was saddened to hear of JGB,s and ****,s passing...that hurt.

    I'll try to be here as long as I can...love to all!

    - Craig
  • Semira
    Semira Member Posts: 381 Member
    #36
    Sundanceh said:

    How about an update from me?:)
    Thank you so much for the warmth sent. Much needed. Trial is going well, paperwork tedious. After just two weeks I've cut back the dilaudid by 75% at least. Not paralyzed either-----whew!

    Still 6 weks to go. I might do this again while trials are on. I did dosage of 4....would try the 16 in hopes of wiping it out permanently.

    So there is hope here a d I hope folks wil benefit from it. It's a real life leap of faith but you have to take calculated risks along the way. We have to.

    I'm also eligible for two cancer clinical trials. One looks bette and more promising. I'm gonna be busy for awhile.

    We stopped the oxy due to 3 in a row allergic reactions...so right now just folfiri minus that is what I'm doing now. Not great but options are limited now....holding the line so far.

    I'm about to lose my job this week. Automatic termination after 1 year. I'm sad I can't make it back: did not want it to end like this.... After 25 years of dedicated service this gels funny. Nothing I can do about it. They are probably relieved I'm gone now.

    Went thru all the SSDI paperwork runaround and got it taken care of.

    Well that's the highlights:).

    Hanging in there....still with you.

    Typing on old iphone3... Other pc just keeps having problems constantly. That also prevents good posting from me just one pecking here. Maybe save up for Microsoft Surface w/keyboard....don't know.

    Anyway hang in there with me. I was saddened to hear of JGB,s and ****,s passing...that hurt.

    I'll try to be here as long as I can...love to all!

    - Craig

    Oh, how I love...

    ... to see that picture and read your post(s).

    Glad you are doing good / ok / so-so (depends on the point of view I think)

    Take care!

    A big hug from Germany

    Petra

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #37
    Sundanceh said:

    How about an update from me?:)
    Thank you so much for the warmth sent. Much needed. Trial is going well, paperwork tedious. After just two weeks I've cut back the dilaudid by 75% at least. Not paralyzed either-----whew!

    Still 6 weks to go. I might do this again while trials are on. I did dosage of 4....would try the 16 in hopes of wiping it out permanently.

    So there is hope here a d I hope folks wil benefit from it. It's a real life leap of faith but you have to take calculated risks along the way. We have to.

    I'm also eligible for two cancer clinical trials. One looks bette and more promising. I'm gonna be busy for awhile.

    We stopped the oxy due to 3 in a row allergic reactions...so right now just folfiri minus that is what I'm doing now. Not great but options are limited now....holding the line so far.

    I'm about to lose my job this week. Automatic termination after 1 year. I'm sad I can't make it back: did not want it to end like this.... After 25 years of dedicated service this gels funny. Nothing I can do about it. They are probably relieved I'm gone now.

    Went thru all the SSDI paperwork runaround and got it taken care of.

    Well that's the highlights:).

    Hanging in there....still with you.

    Typing on old iphone3... Other pc just keeps having problems constantly. That also prevents good posting from me just one pecking here. Maybe save up for Microsoft Surface w/keyboard....don't know.

    Anyway hang in there with me. I was saddened to hear of JGB,s and ****,s passing...that hurt.

    I'll try to be here as long as I can...love to all!

    - Craig

    I am so glad to hear from you

    I am so glad to hear from you Craig. You are a true warrior.

  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    #38
    Sundanceh said:

    How about an update from me?:)
    Thank you so much for the warmth sent. Much needed. Trial is going well, paperwork tedious. After just two weeks I've cut back the dilaudid by 75% at least. Not paralyzed either-----whew!

    Still 6 weks to go. I might do this again while trials are on. I did dosage of 4....would try the 16 in hopes of wiping it out permanently.

    So there is hope here a d I hope folks wil benefit from it. It's a real life leap of faith but you have to take calculated risks along the way. We have to.

    I'm also eligible for two cancer clinical trials. One looks bette and more promising. I'm gonna be busy for awhile.

    We stopped the oxy due to 3 in a row allergic reactions...so right now just folfiri minus that is what I'm doing now. Not great but options are limited now....holding the line so far.

    I'm about to lose my job this week. Automatic termination after 1 year. I'm sad I can't make it back: did not want it to end like this.... After 25 years of dedicated service this gels funny. Nothing I can do about it. They are probably relieved I'm gone now.

    Went thru all the SSDI paperwork runaround and got it taken care of.

    Well that's the highlights:).

    Hanging in there....still with you.

    Typing on old iphone3... Other pc just keeps having problems constantly. That also prevents good posting from me just one pecking here. Maybe save up for Microsoft Surface w/keyboard....don't know.

    Anyway hang in there with me. I was saddened to hear of JGB,s and ****,s passing...that hurt.

    I'll try to be here as long as I can...love to all!

    - Craig

    Hey Craig, 
    So glad that you

    Hey Craig, 

    So glad that you were feeling well enough to respond to everyone, big hugs buddy!!!!  I simply love seeing that lion picture pop up!

    :)

     

  • LindaK.
    LindaK. Member Posts: 506 Member
    #39
    Sundanceh said:

    How about an update from me?:)
    Thank you so much for the warmth sent. Much needed. Trial is going well, paperwork tedious. After just two weeks I've cut back the dilaudid by 75% at least. Not paralyzed either-----whew!

    Still 6 weks to go. I might do this again while trials are on. I did dosage of 4....would try the 16 in hopes of wiping it out permanently.

    So there is hope here a d I hope folks wil benefit from it. It's a real life leap of faith but you have to take calculated risks along the way. We have to.

    I'm also eligible for two cancer clinical trials. One looks bette and more promising. I'm gonna be busy for awhile.

    We stopped the oxy due to 3 in a row allergic reactions...so right now just folfiri minus that is what I'm doing now. Not great but options are limited now....holding the line so far.

    I'm about to lose my job this week. Automatic termination after 1 year. I'm sad I can't make it back: did not want it to end like this.... After 25 years of dedicated service this gels funny. Nothing I can do about it. They are probably relieved I'm gone now.

    Went thru all the SSDI paperwork runaround and got it taken care of.

    Well that's the highlights:).

    Hanging in there....still with you.

    Typing on old iphone3... Other pc just keeps having problems constantly. That also prevents good posting from me just one pecking here. Maybe save up for Microsoft Surface w/keyboard....don't know.

    Anyway hang in there with me. I was saddened to hear of JGB,s and ****,s passing...that hurt.

    I'll try to be here as long as I can...love to all!

    - Craig

    Hang in there

    So great to hear from you!  I'm glad you have some good news to share with all of us.  Keep up the good work.  My husband got SSD quickly after the Stage IV diagnosis so I hope it wasn't too difficult for you.

    Linda

  • Yolllmbs
    Yolllmbs Member Posts: 360 Member
    #40
    LindaK. said:

    Hang in there

    So great to hear from you!  I'm glad you have some good news to share with all of us.  Keep up the good work.  My husband got SSD quickly after the Stage IV diagnosis so I hope it wasn't too difficult for you.

    Linda

    Progress

    It sounds like you're making progress. My hopes and prayers for all good things 

  • Nana b
    Nana b Member Posts: 3,030 Member
    #41
    Sundanceh said:

    How about an update from me?:)
    Thank you so much for the warmth sent. Much needed. Trial is going well, paperwork tedious. After just two weeks I've cut back the dilaudid by 75% at least. Not paralyzed either-----whew!

    Still 6 weks to go. I might do this again while trials are on. I did dosage of 4....would try the 16 in hopes of wiping it out permanently.

    So there is hope here a d I hope folks wil benefit from it. It's a real life leap of faith but you have to take calculated risks along the way. We have to.

    I'm also eligible for two cancer clinical trials. One looks bette and more promising. I'm gonna be busy for awhile.

    We stopped the oxy due to 3 in a row allergic reactions...so right now just folfiri minus that is what I'm doing now. Not great but options are limited now....holding the line so far.

    I'm about to lose my job this week. Automatic termination after 1 year. I'm sad I can't make it back: did not want it to end like this.... After 25 years of dedicated service this gels funny. Nothing I can do about it. They are probably relieved I'm gone now.

    Went thru all the SSDI paperwork runaround and got it taken care of.

    Well that's the highlights:).

    Hanging in there....still with you.

    Typing on old iphone3... Other pc just keeps having problems constantly. That also prevents good posting from me just one pecking here. Maybe save up for Microsoft Surface w/keyboard....don't know.

    Anyway hang in there with me. I was saddened to hear of JGB,s and ****,s passing...that hurt.

    I'll try to be here as long as I can...love to all!

    - Craig

    Craig did you get your life

    Craig did you get your life insurance through accelerated benefit, if you have one?    I got mine, if you are on LTD, your life insurance premium should have been waived. 

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