Nervous, 1-year follow up approaching

KCFighter
KCFighter Member Posts: 50
edited March 2014 in Kidney Cancer #1
I was diagnosed with Stage I RCC and had a full nephrectomy in March, 2006. I have my 1-year follow up in 2 weeks and am getting nervous. I came here to read postings but the 1st one I read was another stage I survivoring talking about a recurrence. YIKES! Anyway, I am hoping for good results.

I have some pain where my kidney used to be though it's minimal. I read another posting where someone talked about also having ovarian cysts. If you're still on this site, let me know what happened when they removed them. I too have ovarian cysts but they are not recommending removal, just monitoring.

Comments

  • NoSurrender
    NoSurrender Member Posts: 3
    #2
    I was told by my husband's surgeon that the recurrence of kidney cancer in the other kidney ws less than 1 percent. However, it could migrate to another part of the body such as the lung but this was less than 25 percent possibility. Best wishes.
  • Sherry1
    Sherry1 Member Posts: 1
    #3
    let me know how you make out with your tests? i am a 6 month kidney cancer survior
  • zoey
    zoey Member Posts: 4
    #4
    Hi KCFighter, I will be a Kidney Cancer Survivor for 8 years in April!!! I still have some discomfort on that side but attribute it to scar tissue. I too have ovarian cysts and cysts on either side of my spine. So far they have been no cause for concern. I am in the process of setting up an appointment for a ct scan for peace of mind,but feel I'm fine. I will be back to tell you how the ct scan came out...I'm pretty sure it will be good and add to your hope that 7years from now you will be writting the same thing to someone that is worried. Take care, and let me know how your tests came out.
    Zoey
  • abestbarbara
    abestbarbara Member Posts: 18
    #5
    zoey said:

    Hi KCFighter, I will be a Kidney Cancer Survivor for 8 years in April!!! I still have some discomfort on that side but attribute it to scar tissue. I too have ovarian cysts and cysts on either side of my spine. So far they have been no cause for concern. I am in the process of setting up an appointment for a ct scan for peace of mind,but feel I'm fine. I will be back to tell you how the ct scan came out...I'm pretty sure it will be good and add to your hope that 7years from now you will be writting the same thing to someone that is worried. Take care, and let me know how your tests came out.
    Zoey

    I am coming up on my 3 year anni and am glad to hear of your 8 years. I have pain still, but they say it is scar tissue also. They are watching mets to lungs, but like I said, they are WATCHING. Hugs
  • zoey
    zoey Member Posts: 4
    #6
    Hi KCFighter,

    Just checking in with you. How did that follow up go?? Worried since we haven't heard from you. Praying all is well.

    Zoey
  • lbinmsp
    lbinmsp Member Posts: 266
    #7
    Hi. I might be that Stage 1 survivor you mentioned who had the recurrence. My recurrence occurred nearly 5 years after the initial diagnosis/surgery and it really came out of the blue. The odds of someone with Stage I having a recurrence at all, much less so many years later, are really low. For me it's been a year since the recurrence (partial lung removal) and so far so good. So YOU hang in there! Let us know how your checkup came out.
  • kathleen123
    kathleen123 Member Posts: 2
    #8
    lbinmsp said:

    Hi. I might be that Stage 1 survivor you mentioned who had the recurrence. My recurrence occurred nearly 5 years after the initial diagnosis/surgery and it really came out of the blue. The odds of someone with Stage I having a recurrence at all, much less so many years later, are really low. For me it's been a year since the recurrence (partial lung removal) and so far so good. So YOU hang in there! Let us know how your checkup came out.

    What type of cancer have you?I was dianosed with stage1 Chromophobe 1/2 18 months ago. I had my Chest X-Ray and Abdominal ultra sound in May.all clear and I go for my C.T in October
  • KCFighter
    KCFighter Member Posts: 50
    #9
    lbinmsp said:

    Hi. I might be that Stage 1 survivor you mentioned who had the recurrence. My recurrence occurred nearly 5 years after the initial diagnosis/surgery and it really came out of the blue. The odds of someone with Stage I having a recurrence at all, much less so many years later, are really low. For me it's been a year since the recurrence (partial lung removal) and so far so good. So YOU hang in there! Let us know how your checkup came out.

    Now approaching 3 years
    Hi Ibinsmp - I've been away from this site for a while. Guess that's a good sign in a way. I was wondering how you are doing? It is unusual that you would have a recurrence with a stage 1 RCC. Do you know your sub-type (Clear cell, chromophobe, etc.). I understand the sub-type plays a role in recurrence rates as well. Also, the nuclear grade (1, 2...)?? I've been clear for 2-1/2 years. I go in for my 3 year in March. After my 2 year, my doc moved to checking me just once a year. I have to admit, now that I'm 6 months out from my last check...I've started thinking about it. I'd normally be heading in for my scans & blood work about now. I'm holding hope that all will turn out well. Let me know how you are doing.
  • imsure32
    imsure32 Member Posts: 11
    #10
    KCFighter said:

    Now approaching 3 years
    Hi Ibinsmp - I've been away from this site for a while. Guess that's a good sign in a way. I was wondering how you are doing? It is unusual that you would have a recurrence with a stage 1 RCC. Do you know your sub-type (Clear cell, chromophobe, etc.). I understand the sub-type plays a role in recurrence rates as well. Also, the nuclear grade (1, 2...)?? I've been clear for 2-1/2 years. I go in for my 3 year in March. After my 2 year, my doc moved to checking me just once a year. I have to admit, now that I'm 6 months out from my last check...I've started thinking about it. I'd normally be heading in for my scans & blood work about now. I'm holding hope that all will turn out well. Let me know how you are doing.

    I have a busy week! I am an 8 year renal cell carcinoma survivor with recurrence.  I had a partial nephrectomy in 2006 when I was 33 and was told since it was so small and the chance of it coming back was virtually nonexistent that I wouldn't need a radical nephrectomy or any more than 3 years of follow up scans so I listened to the doctor.  Well I learned my lesson!  So last January I had a radical nephrectomy and this will be my 6 month check and I start with a full body bone scan tomorrow. . Then a full body ct scan on Tuesday... and ending with a barium swallow on Thursday! I could use the prayers, thoughts, and/or support... I'm new to the site. .. :)  thanks

  • Galrim
    Galrim Member Posts: 315 Member
    #11
    imsure32 said:

    I have a busy week! I am an 8 year renal cell carcinoma survivor with recurrence.  I had a partial nephrectomy in 2006 when I was 33 and was told since it was so small and the chance of it coming back was virtually nonexistent that I wouldn't need a radical nephrectomy or any more than 3 years of follow up scans so I listened to the doctor.  Well I learned my lesson!  So last January I had a radical nephrectomy and this will be my 6 month check and I start with a full body bone scan tomorrow. . Then a full body ct scan on Tuesday... and ending with a barium swallow on Thursday! I could use the prayers, thoughts, and/or support... I'm new to the site. .. :)  thanks

    Hi imsure

    Welcome to the site. I hopw you will find it useful. You may however get more feedback by starting a new thread about your situation. This one is 6 years old...

    /G

  • imsure32
    imsure32 Member Posts: 11
    #12
    Galrim said:

    Hi imsure

    Welcome to the site. I hopw you will find it useful. You may however get more feedback by starting a new thread about your situation. This one is 6 years old...

    /G

    wow

    Well I'm dumb! Haha guess it's best to look at the date huh! Haha! Thank you VERY much for replying,  I may have never used the site again... :)  hope all is well with you and yours. ..

  • adman
    adman Member Posts: 336
    #13
    imsure32 said:

    wow

    Well I'm dumb! Haha guess it's best to look at the date huh! Haha! Thank you VERY much for replying,  I may have never used the site again... :)  hope all is well with you and yours. ..

    May God Bless you....

     

    I'm very sorry you are having to go through all of this again. 

    Can you please provide us with some details about your specifics....Type with any variations, size, grade - had it approached any blood supplies?

    Maybe we need to start a new thread - "Recurrance after being told you are cured"

     

    Thank you.  

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