Here we go again!

Suekub said:

Hi all

scans last week again showed some minor growth in all lesions that are measured except one in the spleen which remains stable. Plan to continue Afinitor for time being but do have a referral to another onc at a different hospital to find a little more about a phase 1 trial I may be a candidate for. Onc is cannot say if the afinitor is helping to slow growth of the lesions.

So there it is! Reasonably good I guess at least nothing new although there is possibly an enlarged lymph node in supraclavicular region which will be checked next CT which will include neck as well as chest abdo and pelvis.

Sue

 

I can't believe it has been nearly 2 months since my original post. This time I had a nuclear bone scan (nothing new on this and spine lesion is OK). CT yesterday not so good. The suspected lymph node in supraclavicular region is larger - 3 cm and there appears to be a lung problem, possible early pneumonitis which is a major side effect of Afinitor. Needless to say Afinitor ceased as of today. Need to have lung function tests.

Search goes on for any suitable trials or nothing there doc will try to get me on Sutent which may be a problem due to Australia's public health system.

Feeling very deflated at the moment. Can't seem to catch a break.

Sue