Every woman should know

ConnieSW
ConnieSW Member Posts: 1,688 Member
in Uterine/Endometrial Cancer #1

I just read an article in the July issue of Prevention entitled When Cutting Edge Kills.  I'm sorry, I don't know how to create a link but if you google the title, it comes up on line.  We cancer survivors need to help educate our sisters about this procedure.  I know many women on this site were unaware they had cancer until their pathology reports came back.  I recall Liz Grrrrr 's uterus was morcellated causing the need for more extensive postoperative treatment.  I was appalled when I read her story.

Comments

  • nempark
    nempark Member Posts: 681
    #2
    Thank you!!!good article

    Thank you I read the article.  It's just so scary.  I had the lap surgery for stage 1a grade 3 MMMT in November, 2009, I still have belly pains, especially when I sleep on my stomach.  Told Doc and he did a ct but nothing showed according to him.  Still having pains mostly when I lie down it goes when I get active during the day.  Strange though in January of 2010 when I went to the Chemo Doc she said to me that this is a rare cancer and if just one cell escapes it will surely spread.  These are her next words "I wish he had done open surgery" Wow almost five years later to learn of this.  I hope other women will learn from this article.  Thanks Connie 

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #3
    Thanks for the article

    Thanks for the article Connie.

    Wow.  Who knew.   Such scary stuff.  Although I did have the traditional hysterectomy surgery and was told  that I did not have cancer, even though my gyne had his oncologist friend attend the surgery in case there had to be repairs, my pathology report came back with cancer in both my uterus and left ovary.   Even with having two experienced surgeons there, they still couldn't tell I had cancer and were "surprised" to find out I did.   I ended up having to have an additional staging surgery.   (Stage 3a, Grade 2 diagnosis)

    All this tells me is that there is so much more to learn and the rest is just a guessing game, unless of course it is very very obvious.  But most of us don't exhibit the signs and symptoms or other signs and symptoms are not taken seriously by the health care system.    That is why we have to be our own advocate in our medical care.

     

  • laura25
    laura25 Member Posts: 181 Member
    #4
    It happened to me

    When I read the article it was like reading about myself.  That's how my cancer was found... after the morcellation was done. 

  • Judemo
    Judemo Member Posts: 172 Member
    #5
    Kaleena said:

    Thanks for the article

    Thanks for the article Connie.

    Wow.  Who knew.   Such scary stuff.  Although I did have the traditional hysterectomy surgery and was told  that I did not have cancer, even though my gyne had his oncologist friend attend the surgery in case there had to be repairs, my pathology report came back with cancer in both my uterus and left ovary.   Even with having two experienced surgeons there, they still couldn't tell I had cancer and were "surprised" to find out I did.   I ended up having to have an additional staging surgery.   (Stage 3a, Grade 2 diagnosis)

    All this tells me is that there is so much more to learn and the rest is just a guessing game, unless of course it is very very obvious.  But most of us don't exhibit the signs and symptoms or other signs and symptoms are not taken seriously by the health care system.    That is why we have to be our own advocate in our medical care.

     

    Got a question Kathy,

    Hi Kathy! How are you feeling? You mean you had to have another surgery to stage you AFTER your hysterectomy? how did that surgery go for you & what was that like? Wow, that was a lot to go through after already going through a hyst!

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #6
    Judemo said:

    Got a question Kathy,

    Hi Kathy! How are you feeling? You mean you had to have another surgery to stage you AFTER your hysterectomy? how did that surgery go for you & what was that like? Wow, that was a lot to go through after already going through a hyst!

    Yes.  They gave me about 4

    Yes.  They gave me about 4 weeks to heal from the hysterectomy surgery (at which my bladder was knicked) and then did the staging surgery.  At the staging surgery, they of course did the washing and also removed my appendix and omentum along with 25 lymph nodes.   The second surgery went well except the day after I was released I had developed an infection in the incision which was svery deep and took months to heal.

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