The Old, the New, and the Ugly - New Flower update

New Flower
New Flower Member Posts: 4,294
edited July 2014 in Breast Cancer #1

Hello everyone

Just a little update. The bit c h is back, while stable is gone . I always think of  BC as a sneaky a lewd, immoral woman, who seeks attention, tries stilling  our dreams, takes away our pink ssters and brothers 

I received disappointing results of my latest scan on Friday. There are 2 new FDG-avid lesions: one on the left acetabulum and the other in the L5. One of the old lesions had become active too

Honestly these news are hard to swallow  for both my husband. Questions like  "why us  again and so soon,  why being stable only for about 12 months?" have been popping up  over and over ... 

I talked to two doctors . On Friday I saw Dr Finn yesterday,  who associated with CDK 4/6 drug development and on Saturday to my oncologist of four years, who is currently on FMLA as her parent has been undergoing cancer treatment,

There is a consensus - we will try more anti-estrogen therapy to see if we can control situation 
I started Femara on Sunday 

Consultation with an orthopedic surgeon, making sure my hip is structurally sound 
Consultation with radiation oncologist after discussion with orthopedic surgeon, probably to do radiation for pain management.

 if i will be able to tolerate both continue Faslodex and Xgeva (I got injections my regular before PET results discussion)


 

Emotionally, I am much better today than I was on Saturday. I am dusting off my boxing gloves, ready for another round, back to the ring and still very hopeful

 

PS Dr Finn expects accelerated  approval for CDK 4/6 which is developed by Pfizer.

Hugs and I'll see you on July 12th

New Flower 

 

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Comments

  • lynn1950
    lynn1950 Member Posts: 2,570
    #2
    Ringside

    I'm right here ringside cheering you on.  Damn cancer.  I wish I wasn't so far away, or I would be there July 12.  I will be thinking of you.  Keeping the faith. xoxoxo Lynn

  • ladyg
    ladyg Member Posts: 1,577
    #3
    You can count on me to be in

    You can count on me to be in your corner as you fight this beast again!

    Hugs,

    Georgia

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #4
    ladyg said:

    You can count on me to be in

    You can count on me to be in your corner as you fight this beast again!

    Hugs,

    Georgia

    #!@#$%^

    I'm really really sorry to hear you're back in the ring again.  I hope the Femara will starve the cells into oblivion and you become stable once again and quickly. 

    Suzanne

  • rutzetta
    rutzetta Member Posts: 174
    #5
    Your corner

    Olga, count me in your corner. I'm so sorry to hear of this news. As sisters we all embrace you with prayers, love and support. I will see you on the 12 th to give you a big hug of warmth.

    Constance

  • cati0314
    cati0314 Member Posts: 203
    #6
    B is back

    I'm new to the boards but not new to cancer and I want you to know that I am in your corner wishing you kick this once and for all!

  • aisling8
    aisling8 Member Posts: 1,627 Member
    #7
    cati0314 said:

    B is back

    I'm new to the boards but not new to cancer and I want you to know that I am in your corner wishing you kick this once and for all!

    Grrrrrrrrr

    Nothing to say except grrrr. And I care and I'm sorry and I'm sending the biggest hug I know how to send.

    xoxo

    Victoria

  • New Flower
    New Flower Member Posts: 4,294
    #8
    aisling8 said:

    Grrrrrrrrr

    Nothing to say except grrrr. And I care and I'm sorry and I'm sending the biggest hug I know how to send.

    xoxo

    Victoria

    Thank you all

    Thank you for your support and encouragement. Both my husbans and I need need hugs and prayers as we have been trying to move on. Fighting is not easy hoping to overcome this new bump

    Love

    Olga 

  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    #9
    New Flower said:

    Thank you all

    Thank you for your support and encouragement. Both my husbans and I need need hugs and prayers as we have been trying to move on. Fighting is not easy hoping to overcome this new bump

    Love

    Olga 

    Ugly, indeed...

    Damned cancer!!! Dammit, dammit, dammit... :-(

    I, too, am steadfastly in your corner, Olga. Cheering you on while also cursing cancer.

    Sending sincerely hopeful & heartfelt wishes your way. With (((big hugs))).

    Kind regards, Susan

  • Jean 0609
    Jean 0609 Member Posts: 2,462
    #10
    Dear Olga,

    i am sending positive thoughts, prayers, and hugs your way my friend.

    xoxo

    Jean

     

  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    #11
    (( HUGS))

    So sorry to hear the news...  It's good to hear your doctor has a game plan set to fight off this cowardly beast.  My thoughts and prayers are with you and your family.

     

  • camul
    camul Member Posts: 2,537
    #12
    Olga,
    The BI t ch may be back, but keep hoping only for a short visit. Hoping that Femara works well for you and the little beast is gone for a lot longer this time. Sometimes it is really hard to keep HOPE and Faith but in reality, it is prayer, faith and hope that keeps me going. It is always easier when the pain is managed.... and radiation therapy has really helped me for periods of time with the pain.
    Looking forward to meeting you on the 12th
    Hugs,
    Carol
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #13
    Oh s#@t!!!!! This sucks. But

    Oh s#@t!!!!! This sucks. But I love your attitude (perhaps because it is shared by me.. lol).  Give yourself a day or so to bawl your eyes out and then, get back in the ring, and give the B a beating!  Sending hugs and prayers and lots and lots of love!  PM me if I can do anything!!! 

  • JuJuBeez
    JuJuBeez Member Posts: 332
    #14
    Thinking of you... sending

    Thinking of you... sending you good juju. Polish off your fightin' gloves. Show that B who is boss! The PINKS have your back! <3

  • SIROD
    SIROD Member Posts: 2,194 Member
    #15
    Know That I'm in Your Corner

    Dear Olga,

    I certainly understand how you feel in receiving the news and in the length of time.  Taxol only lasted 12 months with me and before that Faslodex only last 12 months.  I wanted longer, like you.  

    Excited that the CDK 4/6 might be escalated.  

    In the meantime, dust those boxing gloves and fight back.

    Best to you,

    Doris

  • New Flower
    New Flower Member Posts: 4,294
    #16
    SIROD said:

    Know That I'm in Your Corner

    Dear Olga,

    I certainly understand how you feel in receiving the news and in the length of time.  Taxol only lasted 12 months with me and before that Faslodex only last 12 months.  I wanted longer, like you.  

    Excited that the CDK 4/6 might be escalated.  

    In the meantime, dust those boxing gloves and fight back.

    Best to you,

    Doris

    Thank you thank you thank you for your support

    Being at my corner giving a hand cheering for me.

    cancer is sucks, its never easy, weather first, second, third ...always hoping to knockdown cancer forever

    thank you an inspiration I learnt so much from all of you.

    i got two doctor's opinions. They both similar - stay with anti estrogen therapy for now. Sometime I feel Femara is too weak.

    i wish I could take a tape recorder to my doctor,s office. I need to listen doctor's comments Every day. I have to use pain patches.

    My husband is feeling better, my son is cluelessly optimistic, eventually My vegetable plants are growing, I am going to dye my hair and looking forward to a long weekend.

    Happy 4th of July everyone

     

  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
    #17
    New Flower said:

    Thank you thank you thank you for your support

    Being at my corner giving a hand cheering for me.

    cancer is sucks, its never easy, weather first, second, third ...always hoping to knockdown cancer forever

    thank you an inspiration I learnt so much from all of you.

    i got two doctor's opinions. They both similar - stay with anti estrogen therapy for now. Sometime I feel Femara is too weak.

    i wish I could take a tape recorder to my doctor,s office. I need to listen doctor's comments Every day. I have to use pain patches.

    My husband is feeling better, my son is cluelessly optimistic, eventually My vegetable plants are growing, I am going to dye my hair and looking forward to a long weekend.

    Happy 4th of July everyone

     

    Let those little vegetable plants give you hope!

    Дорогая Олга,

    While none of this is news you want to, or should, have to deal with yet again, and I'm so sorry you're in pain on top of everything else...I was happy to hear you have a vegetable garden.  

    Gardens are such symbols of hope and renewal and looking toward the future.  There's something inspiring about watching a new seedling poke out of the ground, or coming outside in the morning to find the first zucchini blossoms of the summer.

    There's a hymn we sing at church about saying "yes to life" -- I think a garden helps you do that.

    So enjoy yours, and let it give you hope and courage!

    Big hug to you (sorry to get you a little dirty, but I've been out in my garden!) Smile

    Traci

  • debi.18
    debi.18 Member Posts: 850 Member
    #18
    TraciInLA said:

    Let those little vegetable plants give you hope!

    Дорогая Олга,

    While none of this is news you want to, or should, have to deal with yet again, and I'm so sorry you're in pain on top of everything else...I was happy to hear you have a vegetable garden.  

    Gardens are such symbols of hope and renewal and looking toward the future.  There's something inspiring about watching a new seedling poke out of the ground, or coming outside in the morning to find the first zucchini blossoms of the summer.

    There's a hymn we sing at church about saying "yes to life" -- I think a garden helps you do that.

    So enjoy yours, and let it give you hope and courage!

    Big hug to you (sorry to get you a little dirty, but I've been out in my garden!) Smile

    Traci

    Hugs

    I love what Traci said about gardens.  They do symbol hope and renewal.  I hate knowing you are in pain and going through this crap once again!  I'll be praying for you and we know the power of pink prayer!   Keep on fighting, don't let that bit c h stay, kick her **** out!

    Love & Hugs,

    Debi

  • carkris
    carkris Member Posts: 4,553 Member
    #19
    debi.18 said:

    Hugs

    I love what Traci said about gardens.  They do symbol hope and renewal.  I hate knowing you are in pain and going through this crap once again!  I'll be praying for you and we know the power of pink prayer!   Keep on fighting, don't let that bit c h stay, kick her **** out!

    Love & Hugs,

    Debi

    not the news I was looking

    not the news I was looking for. I know you will kick it bak into remission. you are more stubborn than it is.

  • New Flower
    New Flower Member Posts: 4,294
    #20
    carkris said:

    not the news I was looking

    not the news I was looking for. I know you will kick it bak into remission. you are more stubborn than it is.

    Belive

    Thank you for believing in and supporting me.My doctors said that we caught bit**  early and have good chances of success.

    Tomatos, cucumbers, pea have been blooming and SoCal lunch was great.Smile

     

  • Pixie Dust
    Pixie Dust Member Posts: 424 Member
    #21
    New Flower said:

    Belive

    Thank you for believing in and supporting me.My doctors said that we caught bit**  early and have good chances of success.

    Tomatos, cucumbers, pea have been blooming and SoCal lunch was great.Smile

     

    Hearing good news !!!!!!!!

    New Flower, just could not hear any better news about your test. Hopefully your next treatments will take care of all.  Hugs

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