Please Help I am So Scared!!

Endogrl81 said:

Thank you so much Kim !

Thank you so much Kim !

Hi & welcome to the best ov ca suppoirt site there is

Like you - I was pretty sure I had something bad going on & prob OV CA  I just wanted to know & start fighting the beast.

" no amount of worry will change anything

the fluid in your abdomen is called ascites & somehow a by product of the cancer in the pelvic cavity  - you can& should have it drained "Paracentheses"

My first drain yielded 8 liters -  6-8 qts& a sample was sent to pathology to confirm cancer cells OF COURSE - word "cancer" sends a message of doom -  OVCA is treatable  the chemo is hard but  doable reading on this site was reassuring - to see my treatment was like everyone's - so mygyne/onc must be doing the proper protocol.

at this point in the journey you do have a right to be worreied & scared --  just don't make yourself sick over it - it is what it is & you can't change it.

Once you know what is going on so you can at least deal with it  head oin  it's the doing nothuing that is the worst.

Learn what you can - ask docs questions.

CAUTION:  when googleing for info - don't believe all you read.  use it to learn enough to ask questions come back here & read & read - we aren't medical people - just a groiup of women whi have been on the same journey.

Best wishes & sending concern your way

Susan P from Alberta Canada&TX& WY

PS  keep us updated so we can get to know you!

Endogrl81 said:

I also wanted to add that the

I also wanted to add that the large mass contains a blood supply as well, four years ago I had a laporscopy for the endo and that is when I found out that the disease was so severe at stage 4 endo and pelvic adhesion had incased my uterus , tubes , ovaries and had then attached them all to my pelvic wall, both my tubes are clubbed/closed and fill with endo and adhesion and has also spread to my bladder and part of intestines. Although the surgeon during the procedure tried to "clean up" and detach what he could for whatever reason he left alot of things "undone" due to how much adhesion was in there. Also the mass I that was found in ct scan was actually found back then during procedure at the time it was only about 2.5cm and they didn't even take a biopsy, they left it in there , I was told to remove it would have meant remove most of or most likely all of my reproductive organs and he was not comfortable doing that without me having knowledge of it as well as the fact that I don't have any children and he wanted me to be able to go to a fertility specialist and see what my options were before he removed everything . I was told that under any other circumstance an emergency hysto would have been done due to the severity of the disease and damage it has cause. So long story short that mass has now grown to 7cm and radiologist and doctor now is concerned of it being ovarian cancer with the recent ct scan and ultrasound findings and symptoms. I am quite upset that if this turns out to be the "c" word that the doctors left that mass in me without even testing it back then! It would take me weeks to go through the roller coaster I have been through when it comes to my disease and I fertility problems ive been suffering from since I was a teenager.

My sister had the same symptoms, except the fluid build-up, and it turned out to be a complex cyst causing all of her problems.  I know it's easier said than done, but don't claim this disease until you have to.  Can you go to another doctor sooner for diagnosis and then transfer to your doctor of choice if needed?

Hope this all ends well for you.

Endogrl81 said:

Thank you for your response ,

Thank you for your response , yes I am staying positive and hoping that this all just has to do with the endo I have although still a big problem that has to be addressed definitely easier to swallow than a cancer diagnoses. I think anytime the "c" word is a probability it is a very scary thing to go through. Regardless whatever is going on it has to come out for sure and a long needed hystorectomy is in my future. This has been such a tough year as my best friend was diagnosed with cervical cancer and has had a very difficult time, I have been so consumed with being there with her every step of her journey and fight I never ever thought about the possibility that I would be facing something like this now. so right now I am especially sensitive to this and very scared. Since I have yet to hear back from my gyn ( hoping to today), I  am going to look into finding another doc in the mean time:)

Hi Friend, I'm not cancer doctor, but I can share my views as I have seen many cases. So staying positive and maintaing a healthy lifestyles are the main things which can help you. Till you get another best doctor try to increase immunity power of your body by eating fruits and foods which contain anti-oxidants in rich amount. It will keep you healthy.

Endogrl81 said:

Thank you

Thank you:) luckily i have always lived a healthy lifestyle and it is very important to me. Exercise and a healthy organic/natural eating regimen is a daily must for myself and hoping that it is reflective in a positive outcome of

all this. That also poses a question I have about how do some people in this forum feel about holistic treatment as opposed to traditional if this were to turn out to be the "c" word .... I have always said that if faced with something like this I would never do radiation and chemo, I am open minded to everyone's personal choice only we can decide what is right for us:) 

I agree with all the other laides - don't panic.  Speaking from personal experience, I also had endometriosis, and it is such an invasive disease that can certainly mimic cancer or other conditions.  Having said that, given your family history it is best to seek out a gynecologic oncologist.  There certainly is no way to determine malignancy without surgery and pathology.  And a gyn/onc tends to be much more thorough, at least mine was extraordinarily thorough, and for that I am eternally grateful.

I applaud you for your continued healthy approach.  We have always been holistically-minded as well.  While it doesn't mean nothing will ever happen to you, I firmly believe it minimizes your chances, and gives you a much better chance in the presence of disease.  My dear, sweet husband searched high and low for wheat grass when I first had to go through chemotherapy (which I chose because the tumor had ruptured during removal and spilled into my system).  This was in 2000, and wheat grass was not as easy to find.  We juiced it, along with other ingredients, and I drank it daily.  Sure tasted like I was drinking my front yard!   But I believe it was instrumental in getting me through it all, as well as the other part of my regimine.  

So, let us know what you find out.  Either way, I'd love to share our routines, as I'm always open to learning more - there's always so much to learn!  Till then, sending lots of prayers your way.  Continue your exercise when possible, it will help relieve stress and keep you strong, no matter what lies ahead.

(((HUGS)))

Monika