Leaving Soon

wolfen
wolfen Member Posts: 1,324 Member
in Head and Neck Cancer #1

Hello All,

Please forgive me if I have posted any of this before. My mind remains in a whirlwind.

I am leaving in a couple of weeks to stay with my daughter for a month or more. I have sadly completed the sale of our cabin and after taking care of major financial issues here, will be on my way. She is not doing well. She's in "screaming" pain as she describes it and has seen a pain mgmt. specialist. More pain meds and a new fentanyl patch have been added to no avail. She and her hubby have decided to meet with a hospice rep next week. She had resisted this idea as we all know that the word "hospice" has always had a certain stigma attached to it. I have finally gotten her to understand that it does not signify the end, only a means to get additional assistance and meds in a more timely fashion. I hope this works out well for her. She has had the wound vac removed as it was contributing to the pain. She still has an open wound which we hope will heal, in time.

Please save some prayers for Johnnybegood. She has been through so much.

Luv,

Wolfen

Comments

  • phrannie51
    phrannie51 Member Posts: 4,716
    #2
    As I've said many times

    I'm so glad for JBG, that her mom can be with her.....and glad that you are finally able to get away and be with her, too.....you two need to be around each other.  Mother's comfort goes a long way.

    It makes me sad that she is in so much pain....I'm sending prayers that they can get this under control with the pain management team.....Gawd knows she's been through hell and back a half dozen times......she's way tougher than I am.

    p

  • Sara1234
    Sara1234 Member Posts: 121
    #3
    Sooooo Sorry

    Soooo sorry to hear of all your strugles was reading your profile wow ...........Hang in there Not sure what to say to you Only thing is I am here if you want to chat or pm me I can give you my e mail..........................

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #4
    T&P

    Wolfen,

    I am glad you are able to be there; sometimes a Mom is all we want.

    I hope the pain can be quelled for JBG.

    Thoughts and prayers are with you both.

    Matt

  • KTeacher
    KTeacher Member Posts: 1,103 Member
    #5
    So sorry

    So  sorry to hear this news.  JBG has had a long, hard fight.  So glad to hear that you will be able to go to her.  Mom's are the best medicine.  Prayers that the pain can be controlled.

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #6
    oh, wolfen, i'm so sorry jbg

    oh, wolfen, i'm so sorry jbg is in so much pain.  like p said, jbg has been to hell and back a few times.  i'm praying the pain comes under control and that she can start to feel decent.  what a blessing that you get to go be with her.  there's no care like our mother's care.  being cared for by mom is the best meds.  please let us know how she does once hospice arrives and can do more for the pain.  saying prayers for all of you.  i'm sorry you had to sell your cabin, that must have been hard on you.  i wish i could be there for both of you.  sending you both some really big and tight hugs (((((  0  ))))), i hope you can feel them. 

    God bless you,

    dj

  • wmc
    wmc Member Posts: 1,804
    #7
    Very sorry to hear...

    So sorry to hear JBG is in so much pain. I'll add you and your daughter to my prayer list. 

    wmc

  • Ladylacy
    Ladylacy Member Posts: 773 Member
    #8
    Your daughter

    I'm so sorry to hear about your daughter but know she will be glad to see you.  Please tell her hospice does not necessary mean the end is near.   My husband has been on in-home hospice since September 2013 and have been told they could possibly discharge him, which I don't see because he is slowing going downhill.  I know how hard this past year or two has been for you and hope that you are taking care of yourself.

    Wishing you and your family peace and comfort -- Sharon

  • katenorwood
    katenorwood Member Posts: 1,912
    #9
    Wolfen

    Safe travels my friend !  I'll be praying for JBG.  Hugs sent !  Katie

  • hwt
    hwt Member Posts: 2,328 Member
    #10
    katenorwood said:

    Wolfen

    Safe travels my friend !  I'll be praying for JBG.  Hugs sent !  Katie

    Wolfen

    Sending prayers for you and your daughter. No matter how old we get, having your mother by your side when you are sick always makes things better.

  • donfoo
    donfoo Member Posts: 1,773 Member
    #11
    Goodspeed on your new journey

    Thank you for the update. I only wish it was better news but it is great you can journey to be with her and offer support and comfort during her battle. I too wish her only the best outcomes. As you say hospice does NOT mean the end, just extra support. There are many who have benefited from that extra help and living well again.  Best to you all, Don

  • Hondo
    Hondo Member Posts: 6,636 Member
    #12
    Hi Wolfen

    As always you can count on the prayer for both you and your loving daughter. With all my heart and soul my love and sympathy goes with you.

    May our Father God watch over you both.

    Tim

  • jim and i
    jim and i Member Posts: 1,788 Member
    #13
    Wolfen,
    Sorry to hear your

    Wolfen,

    Sorry to hear your daughter is in so much pain. I will keep you both in prayer. Have a safe trip. I am sure your presence will help her a lot.

    Debbie

  • Goyca
    Goyca Member Posts: 220
    #14
    my prayers with your

    my prayers with your daughter. May God help her in everything she is going through. Its good that you r going to see her, she will get some positiveness from you.

    I pray for her pains to decrease or go away.

    Goodluck wolfen.

     

     

    Goyca.

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