I still can't get back on my feet after two and a half years??

Marcia527 said:

Ask your doc

Have you talked to your doctor about this? The least he could do is stear you to a specialist. Hope you feel better soon.

it sounds like you have other side effects or new problems. Marcia is right you should go to the doctor and explain everything that is going on. I hope you get some answers.

whle I dont feel normal i would say I am vastly improved and chemo did not go well for me, so demand some attention, and tell your family to walk a mile in your shoes

Sorry you are going through this..thinking of you..

Denise

Hi,

A cpap device does take a while to become accustom to it.  Please give it a try.  Perhaps you could ask for a different mask.

I don't know how I would without mine.  It helps me so much.  My fatigue also is from ongoing chemotherapy but without the cpap device, I know I would be so much worse.

Make another appointment to visit your specialist in cpap devices and try for another mask.  I was determine it would work for me.  So I didn't give up without trying for months.  It's not easy trying to sleep with some noise and a hose in a mask.  I dropped the device on the floor the first week I had it.  You have to learn to sleep in the same spot.  No more tossing and moving around during the night.

Give it another chance.

Best,

Doris

Nearly four years after cancer here.  I still feel it takes a huge effort to do things, anything.  House hold chores, getting dressed, getting up.  Yoga and Pilates has taken care of arthritis in my neck and shoulders.  I have had a few episodes of pain in my feet, toes, hands, elbows and ribs, terrible spasms in the back left and right.  Anti inflammatories handle those after about three days, then stop taking them.  I am sure something is wrong but until anti inflams don't work then I will check it out deeper.  I truly believe the hormonal side of cancer and chemo cause or worsen health problems.  I copped out of taking anti estrogens after three years in order to sort out things I thought were not right.  Had jaw bone disease and a polyps no one found until I got proactive, both caused probably by treatment.  The weight then fell off and I now love feeling lighter and happier.  I eat healthy and exercise.  I also feel people who suffer from depression (I have done so all my life) handle things differently.  For instance when the joint pain strikes I get the most horrific night terrors at the same time.  It is all to do with who you are, your actual nerves, and how one part of the brain affects another part of the brain in each person.  Then my jaw bone specialist made an off the cuff remark that people like me get night terrors when something flares up, the pain part of the brain sets off other parts into reacting.  Very interesting and everything I knew but felt stupid voicing to doctors who can only treat patients by the book instead of thinking out of the box.  Tiredness.  Sometimes the urge to sleep is overpowering and seems rather dangerous while driving.  I used to think it was because I have low blood pressure, but I know it is not normal.  That is for another day, the more you dig the more some of us find.  

Please find someone who will listen to what you are saying.  There has to be something going on and at least some of your symptoms can be helped.  You are aware and asking us for help, thats the first step.  Keep pushing because you are completely right.  Re approach the thyroid problem, get checked for any deficiencies, even mets just to put your mind at rest.  Perhaps a bone scan.  Do you have a good friend or a member of family that could go with you and get things started.  Ignor those who don't understand, in fact I think I would have called them out.  You need understanding.  Plus Cymbalta antI depressant helps aches and pains as well as depression.  It was a complete fluke that I was on it when diagnosed and had no pains.  When I thought it was time to come of it, whoa the pains hit hard.  I could barely get out of a chair.  This drug is given to people just for joint pain but for you it could have a dual purpose like me.  Good luck.  Don't despair.  Sorry I have rambled.  

sweetvickid said:

3 years out for me

I know what you are talking about.  Found a great accupuncturist and chinese medice Dr.  The muslce spasm are happening less.  I can actualy sleep for 3 hours at a stretch insteadof just one hour.  I am feeling some energy and interest coming back in things instead of making myself do things.

Sounds like a potassium deficiency to me.  Hope you are feeling better soon.

(((hugs)))

Jenn

RozHopkins said:

Hi there

Nearly four years after cancer here.  I still feel it takes a huge effort to do things, anything.  House hold chores, getting dressed, getting up.  Yoga and Pilates has taken care of arthritis in my neck and shoulders.  I have had a few episodes of pain in my feet, toes, hands, elbows and ribs, terrible spasms in the back left and right.  Anti inflammatories handle those after about three days, then stop taking them.  I am sure something is wrong but until anti inflams don't work then I will check it out deeper.  I truly believe the hormonal side of cancer and chemo cause or worsen health problems.  I copped out of taking anti estrogens after three years in order to sort out things I thought were not right.  Had jaw bone disease and a polyps no one found until I got proactive, both caused probably by treatment.  The weight then fell off and I now love feeling lighter and happier.  I eat healthy and exercise.  I also feel people who suffer from depression (I have done so all my life) handle things differently.  For instance when the joint pain strikes I get the most horrific night terrors at the same time.  It is all to do with who you are, your actual nerves, and how one part of the brain affects another part of the brain in each person.  Then my jaw bone specialist made an off the cuff remark that people like me get night terrors when something flares up, the pain part of the brain sets off other parts into reacting.  Very interesting and everything I knew but felt stupid voicing to doctors who can only treat patients by the book instead of thinking out of the box.  Tiredness.  Sometimes the urge to sleep is overpowering and seems rather dangerous while driving.  I used to think it was because I have low blood pressure, but I know it is not normal.  That is for another day, the more you dig the more some of us find.  

 

Please find someone who will listen to what you are saying.  There has to be something going on and at least some of your symptoms can be helped.  You are aware and asking us for help, thats the first step.  Keep pushing because you are completely right.  Re approach the thyroid problem, get checked for any deficiencies, even mets just to put your mind at rest.  Perhaps a bone scan.  Do you have a good friend or a member of family that could go with you and get things started.  Ignor those who don't understand, in fact I think I would have called them out.  You need understanding.  Plus Cymbalta antI depressant helps aches and pains as well as depression.  It was a complete fluke that I was on it when diagnosed and had no pains.  When I thought it was time to come of it, whoa the pains hit hard.  I could barely get out of a chair.  This drug is given to people just for joint pain but for you it could have a dual purpose like me.  Good luck.  Don't despair.  Sorry I have rambled.  

Hi im kelly. I have a similar story to yours. I too have suffered from depression since I was a child. My cancer caused my depression to worsen, anxiety and heart palpitations,  sciatica, bone pain, and muscle aches. My dr switched me to cymbalta for the same reason. To help with the pain and the depression. A medication called nabumetone, an NSAID, helps massively with the bone pain. Thank u for the information u have shared. I too feel like I am not alone anymore. Glad to know someone else is like me.