Feeling a bit fed up!

Djinnie,

     I just do not know what to say anymore, except that it is time for you to have good news! You are by far one of the strongest woman I have had the pleasure of knowing.  No matter what they throw at you your kindness, strength, and most important your sense of humor never seems to leave you. I am hoping that everything will work out well for you and everything gets under control.  Please keep the faith and know you are never alone!

                               Praying for good things for you,

                                Love, Brenda  

aamdsi said:

oh dear 8-(

Am sorry for the "pickle". But love the trip to Italy idea!  Hopefully getting away will help you relax and when you get back - all will be taken care of!

You are very strong so I have a good feeling you will come out on the "good" end of all this. 

But until that time...Ciao!

Love the Italy idea also. Go for it! Let them sort it out in the meantime and I'm sure they will. It's a good thing that they're so on top of your levels and monitoring everything so carefully.'You must be so frustrated and I can really understand that and I'm keeping my fingers crossed that they'll come to some resolution on dosage levels that are effective yet not toxic to you.

Aww Djinnie, I am sorry this has not improved for you.. yet! You deserve better. Glad you informed us so all together WE can join you in spirit in sending you healing thoughts and prayers.

Its odd to say, but it was high liver enzymes that got me to an ultrasound, then got me to a CT which resulted in RCC and losing my kidney. Grateful in some way, I guess.

May this "pause" result in better solutions for you!!

Hugs to you my dear~

Jan

Your post reminded me of a friend of mine.  She has hemochromatosis.   Basically too much iron in her blood, and in her case it is thought to be a genetic condition.  She has monthly blood tests to check her ferritin levels.  If the results are high, they do phlebotomy and take a unit of blood from her.  She was told that high levels of iron will cause damage to her liver and heart.  She does not have cancer or take any medications.  (I believe our Ron has posted about getting phlebotomies too.  I'm not sure if it is related to iron or not.  Hope he sees your thread).  Best wishes Djinnie.

Jojo61 said:

Hang in there, Djinnie!

This is a pickle, but I have a feeling that it will get sorted out. You are a strong and vibrant woman who could take on the world! So I think it is quite fitting to start in Italy. Immerse yourself in the beauty and the delicious food and wine that Italy has to offer. Thinking of you lots.

Big hugs,

Jojo

XOXO

Oh Dj.. so sorry to hear this...  So, do you have a "next" treatment plan..?  Hope so.. and hope it is a good one..!!!  No one can dare say that you did not try... you do get an "A" for effort...   Hang in there, we are all behind you....  "Hugs"..

Ron

Not at all surprised you are frustrated. You are always so lovely and encouraging to everyone. You deserve a break in more ways than one. Hope you get to take a holiday. Italy sounds awesome. Praying for you.

Hugs Melissa xox 

Djinnie said:

Big Thanks!

 

A big thanks folks for all of you support! I agree with you about those demons Fox, I hope they will tire before I do! this news has been a bit of a bummer, but as they say if there's a will there's a way, and I am nothing if not wilful! I am so ready for a reason to celebrate!

a_oaklee thanks for the information about the ferritine, I am discussing that connection with my doctor later. I hope that's not the issue though, I have enough on my plate. When I think how much things can change in ones life in one year, it takes your breath away. One year ago I had a small T1b tumour situated right at the top of my kidney. It was supposedly a no brainer of a surgery, removed fully encapsulated with good clear margins. Little did I know at that time;there was a ten ton truck just around the corner with my name on it. Since then it's been like an on going train wreck. So I am hoping for something more simplistic as a causation in this case.

Skagway my husband is with you on the Borolo, it's his favourite wine. I love it too but I am not allowed to drink with the Votrient. I can just breath it in! We are hoping to leave for Lake Como this weekend for a short break. I am just running it past all my medical friends before hand so they don't get twitchy. It will take my mind off my up and coming scans and all the rest of this toot! 

Ronnie I have no idea what the game plan will be, I am sure once the Docs get their heads together they will come up with something! There has to be some wiggle room!

Thanks again:)

 

 

Djinnie x

YOu go on that trip and get your mind off some of this stuff coming up.  Inhale the wine deeply!!!  I just want you to know that I pray for you every night and everyone on this forum.  THe very last thing before sleep is to pray for my friends and that they will get better.   Have fun.!!!!