Scans Again

good luck tomorrow!  Try to find your happy place.  I had my CT today, and interestingly, they never asked about my GFR.  It was 84 in early April, and hasnt been checked since. 

Not sure what to tell you about your level, but it's not unexpected to be low since you only have one kidney.  Dehydration certainly has an effect on it.  May drink some Electrolyte or Gatorade or something to help balance your fluid levels? 

Skagway Jack said:

The Wait

Apointment went well yesterday.  The XRay tech was kind enough to fix me a cup of coffee after the procedure.  This was from a Kurig machine and really hit the spot.  As a old Navy guy, coffee pretty much runs in my veins.  Thanks for the encouragement Dhin.  I, like so many fighting this disease, have a lot riding on NED.  I continue to make plans for life at All Ahead Flank speed all the while realizing that my visability dosent extend to the horizon anymore.  A busy week ahead to keep my mind off matters. 

To all the surviovrs of this esteemed Forum: hoping everyone has an exceptional Memorial Day weekend!

Hope all goes well with the results and hopefully, you won't have to wait too long before you get them. 

Keep us posted.

Sindy

safado said:

NED?

Newbie here - not familiar with the acronyms.

I'm getting the idea that NED is one of the better ones!

Safado, I am sorry you have had to join us, but you can be sure to get a lot of support from members here. It might be an idea to start a fresh post with regards to your cancer experience. It is a little lost posted under the older posts.

Djinnie x

GSRon said:

Safado, in the same area as

Safado, in the same area as you put in your picture you can put in your Cancer info so it will not have to be repeated each time.  OK, NED or more correct (to me) is NVED, for No Visible Evidence of Disease.   Some lessor Doctors tell their patients "they got it all" thus implying they are cured.  Sadly this is not always correct.  They got all they saw, but...  So NED or NVED is a persons status if they are Stage 3 or less, post surgery.  Suggest you stay away from "prognosis" internet sites... some give some pretty bad info, like when it comes to prognosis.  

Feel free to as questions.. but a couple of the other posts you replied to were many years old.  People from 2009 may no longer be active on this site.  And sadly a couple are now gone..   Sometimes people get over the major fear of having Cancer and move on living.. a great idea, especially for the early stage people.  People like me with Mets tend to hang around more often..

Good Luck

Ron

Thanks Ron, et al.

Part of being a noob is learning my way around this site and how it works.  I appreciate the pointers.  I've created a profile to go with the picture.

Looking forward to the two-way support street with new friends!

Skagway Jack said:

NED

Well the good news is "without evidence of nodal or bony metastasis".  Much relieved of course to have confirmed what I had every  reason suspect would be the case.  All my plans for changes in career and future remain "a go".. Good news for sure but it was delievered as a prelude to a discussion that has me somewhat disappointed. 

It was suggested that I would not need further scans. When I mentioned that RCC was known for being tricky, the Onc looked up the standard of care online and of course it said twice yearly for the first two years and annually for five years for Stage I with clear margins.  The onc was concerned about the toll the contrast was taking on my remaining kidney.  Yearly scans from this point were suggested by my Onc.  My surgery was 8 months ago. I am good with starting the yearly scan protocol early, but my concern at the end was that Onc just dos'nt seem to have the grasp on kidney cancer that I would expect.  Additionally, when we discussed the scans it was apparent to me that the Onc was depending solely on the interpretation of the radiologist.  I did not get the sense that he had even looked at the scans.  Up shot is that I will be looking for a new Onc due to lack of confidence.

On a side note: the radiologist mentioned the presence of diverticulitis without the presence of diverticulosis on the report.  Has anyone seen this comment on there own CTs?

Thanks, for every ones concern.  Jack

Glad to hear your scans were good. Are you sure you don't have it reversed? It should be diverticulosis wihtout the presence of diverticulitis. Diverticulosis is pretty common. It's little pockets or pouches on your colon. Most of the time you don't even know they're there. If they become infected, then it's diverticulitis. So what I think your scan is saying that they saw the pockets (diverticula) but without any infection (diverticulitis).  My husband had to have surgery because his became infected three times within a year or two so they removed the part of the colon that had all these pockets, then reattached the colon.

Skagway Jack said:

Apny,  You are correct I got it backwards.  I have diverticulosis wihtout the presence of diverticulitis.  I looked it up and I have had no symptoms but I guess I need to watch my diet as a precaution.  I have a coworker who has had this condition seriously so I know its not something you want to have occur.  I just wondered if all the movement of ones bowel during the operation could have an impact? I had always been known for my ability to eat almost anything without effect. This attribute has served well in eating spicy foods. 

Regards the Onc,  I know this guy is busy with patients that are really sick, but I just get the feeling that he doesnt see a reason to invest time in my case becuse he expects there to be no mets.  I hope he is right, but I know what "assume" spells.  I am going to find an onc that is more interested in my case until time proves there is no need.

Glad you changed docs, and have good scans. I know this is a process and journey, but if it weren't for this site, not sure what to do sometimes.

Hope you get a doc who will listen and follow you with the care you deserve!

Warmly, Jan