Please interped this

Debrajo, is this your pathology report?  Did you just get it?  I am not sure what this is we are looking at?  Help!

I know it's hard but try to stop worrying. Worrying doesn't prevent or fix anything. It just causes more problems. 

When I was going through my radiation, i asked my doctor why 3 and not 5 like you. I wanted to be sure I wasn't getting short changed. She wasn't sure but told me the dosage is standard and maybe they just spread yours out because of other health issues. 

debrajo said:

Path

Thanks Alexandra...would you hazzard a guess as to staging?  No Time, it's my old path report in '09. there has been some discussion with a new bone dr. as to why I wasn't staged during surgery as to determine why I needed five internal radiation.  Seems my pelvic bone is very thin, I go back to Houstion May 14th for  checkup and will be taking a new bone scan.  He is wanting to do either the iv osteproses meds or to "fill up the bone cracks" with somekind of injectable medication.  I don't want to do either. So I went back to the reports and the only refference to staging is that this is 1a.  As far as I know, I am o k.  My doc, does not do scans.  I've has 2 in five years, both in 09. Just trying to refreash my memory and maybe learn something since I didn't find y'll till 2011.  To me it sounds worse than 1a, but I don't know.  The bone doc does know UPSC is a "c"" agression.  Thanks all of you for answering and caring!  Prayers Pleaae!  Debra

Yes, the bone thinness is something else to think about.  I finally had a bone density this year and it was thinning and dx as osteopenia and they want me to take the drugs.  Like you, I don't want to do it, and am holding off.  No doubt the radiation didn't help, but I try not to worry too much and get my calcium, etc...

I have never been a fan of taking drugs just to take them.  In 2009 the breast surgeon wanted me to take tamoxifen even though the lump was BENIGN!!!  I said, "no thanks" and walked out, but considering tamoxifen can cause uterine cancer I can only imagine how that would have effected my UPSC in 2012.  

Once you make your decision, stick to it and be open to the future.  As Alexandra said, even with a 1A you get the full monty. 

BTW, I had on my teal blue, silk jacket on May 8 and when people commented on how pretty it was I told them it was World Ovarian Cancer awareness day!  Any chance to spread the word for our fellow warriors.

You ladies are always in my prayers. 

My bone density scan showed osteopenia when I was 52. I had to ask for the scan myself. The technician said 90% of male doctors don't do it for women under 60 even if you have a family history.  I took Evista because my sister had started to get dead jawbone syndrome from Fosomax. Evista works like hormone replacement for osteoporosis and yet like Tamoxifen for breast cancer. When I was diagnosed with UPSC, I developed an irrational belief that somehow the Evista had caused my cancer and stopped taking it. Now I just take calcium citrate and 2,000 units of Vitamin D. I also have MS so vitamin D is an issue for me. 

I had blood work done recently because I have IBS like symptoms so the gastroenterologist ran just about every lab test that exists. My blood calcium level was very slightly high. I googled and see that this could mean calcium is leaking from my bones into my blood. My primary care physician said it is only .1 above the normal so she is not very concerned. I don't plan to take osteoporosis meds again. I hiked 11 miles with a backpack today and am going to do another 8 tomorrow. I also spent the morning looking for my Skeletal Fitness DVD.  Time to get back to it. They say weight bearing exercise is the best thing for osteoporosis. I have a fear of becoming like my mother and grandmother, stooped over shrunken ladies who have a hard time walking.

Next stop is the  endocrinologist to figure out if I should be worried about the hypodense nodules on my thyroid. They were on my pre-chemo CT scan and no one at Kaiser ever evaluated them. When I switched to USCF, the new Gyn/Onc wanted me to have an ultrasound. So now on to an endocrinologist. 

I told  my PCP that I don't think I am any less healthy than anyone else my age. But folks my age don't have anywhere near the level of testing that I have. She said Yes, the more you look, the more you find.