Oral cancer Tongue

Bunnymom,

Welcome to the H&N forum, so sorry you find yourself here.

I was stage IVa, scc, bot, 1 lymph node, hpv+ and I had surgery, radiation and Erbitux as treatments.  You did not say, but I assumed you are about 5 to 6 months out from treatments (rads & chemo).  If I am wrong, I am sorry for guessing.

If you had rads, then finding a hot spot on your first scans would not have been unusual.  For myself, I felt no pain where my tongue or neck were operated on.  Neither are there any lumps.  My mouth does feel funky, but I thought that was from the rads.

Maybe, you need a second opinion on your issues.  If you received a full course of treatments I would expect you to start feeling better.  It does take some people much longer than others.  As long as you are under the care of a reliable physician, you most likely are in good hands and these issues will be nothing, but stay on top until you know.

Good luck,

Matt

Hopefully it is not cancer however if it is than you have more treatment options since you never had radiation or chemo. Radiation is hard but doable. Radiation should take care of whatever is there. Good luck and keep us posted.

Welcome Bunnymom. So sorry you find yourself here. It is hard enough to be a single mom without delaing with cancer. I have no answers for you but I offer my prayers for it to be something other than cancer.

Blessings,

Debbie

Hi Bunnymom,

It surely seems that you have gone through a number of hard and scary times and I like so many of our brothers and sisters here  can relate. As a 22 year plus survivor I can tell you how grateful I am to still be here, but I need to tell you that there have been, and hopefully will be more scary times that I am "concerned" about a pain, cough, lump, bruise  or just not feeling good because that is the nature of "The Beast"to hold on to us. As with most things that we fear they rarely come to fruition and we move on. If they do happen to be real challenges, we face them as you have and give it all the fight that you can and know that you have caring brrothers and sisters that will strand by you. God bless, josh r.

Bunnymom said:

Biopsy positive: Cancer

Saw my doctor today. I had a needle biopsy And it came back positive for cancer. I am having it excised next Wednesday. Then meet with radiation doctor and medical oncologist on May 6th. I'm sure I will start rad and chemo once I am sufficiently healed from the surgery. I want it out today!! knowing I have this cancer and ha paving to wait for surgery is hard. This will be my fourth surgery. 

I know rad and chemo will be hard. Very hard. The prospect of rad and chemo is quite frightening. But, I am begining to realize that this is my very best course of action to kill the cancer. I am lucky (if you can call it that) that it is localized in one area. 

Right now, I feel sick and tired. I just want to be well again and feel that my team of excellent doctors will help me through this. I know I have to walk through hell to get to the other side. 

thank you all for your kind and encouraging replies. please keep me in your prayers as I navigate this difficult time. 

 

Bunny

bunnymom, you have every right to be sick, tired and scared.  you've just been hit with a boulder.  all of us felt that way when we got the news.  and it being a second time, makes that boulder even bigger than the first.  please just know that you will come thru just as many before you have.  we will be here for you to help you along the way.  you will never be alone!

Go bless you,

dj