I abosolutely hate this disease

You vent all you want, pound the keys a bit harder if you need too. We are hear to listen and let you release some pent up frustration. This beast wears on the patient and the caregiver as well. You are doing the best you can by yourself.

My Best to Both of You. Prayers sent out, hope you both have a peaceful night.

This is about the hardest thing to do in life, and like you said it is not the kind loving Jim you know. I know when I was so deep in pain that I said a lot of things to my wife that I so deeply regret, because it was not me. I pray that God will give you the strength you need day by day to take care of Jim. Remember His words Psalm 46 Be still and know that I am God. No matter how strong the Wind will blow or how high the Sea may be in this life. Your anchor will hold because you are anchored on the Rock of salvation. We don’t understand why in this life but someday we will, we will understand everything with Jesus by our side.

I pray that God will continue to give you strength to endure the trials ahead of you.

Tim Hondo

Debbie, if it helps you to write down what you're feeling then by all means do it.  I know it must be very difficult watching Jim go through the changes that he has been dealing with and you have been a real trooper to do all that you can for him at this point in his life.    Just be there for him and do what you can and remember the Jim you've known the past 20-30 years and remember him that way.  I'm sure that's what he wants.   I remember my Dad in hospice towards the end as he was in so much pain but trying to be strong.   It was really tough on my Mom just like it is on you now.

You two are in my thoughts every day.

Keith

katenorwood said:

Hello Debbie

I'm so sorry things are the way they are for Jim and yourself.  The hospice team seams to be helping you understand what Jim is going through.  Do they offer any kind of respite care so that you can get some inbetween much needed breaks ?  (other than the care unit Jim was in)  We survivors don't say it enough.....you our caregivers walk a very hard and frustrating walk.  Know that Jim does need you, know that Jim loves you, know that if he could take this away from you he absolutely would.  You are amazing Debbie !   When things get too hard to handle, please, please don't try to shoulder this on your own.   Keeping you both in our prayers,

                                                                                                   Katie and Rolie 

Please don't take to heart any negative things Jim may say to you. It is not your Jim. It is the illness, pain, & medications talking. I relate to some of what you are experiencing. During Ron's short time home between hospitals, I could not move him without help from our son. If Hospice isn't able to help, are there others nearby who might? I know it is extremely difficult to do this by yourself.

Keeping you both in my thoughts & prayers.

Luv,

Wolfen

debbiejeanne said:

debbie, saying prayers for

debbie, saying prayers for peace and calm for jim.   you are welcome to say whatever you are feeling here!  we understand.  praying for you both.

God bless you,

dj

Your love for Jim is amazing.

Hi Debbie, I am sorry that you and Jim are going through this. It is so difficult for both of you, and you are entitled to vent, scream, and stamp your feet! I want you to know you are in my prayers as such a dedicated caregiver to the man you love. Sending healing prayers to take Jim's pain away, and give him strength to want to fight. May the Lord wrap Jim in His loving arms and comfort him, and give him peace.

Love & Prayers

Pattyanny