Pete Lost at Sea

Helen321 said:

I think this is a very

I think this is a very healthy discussion.  We all care to check on each other, including Pete and so it is good to express thoughts and feelings about banning and posts.

I like Pete and don't think he should be banned. I admire him for focusing all his energies and efforts on survival, and trying so many new things.    I've tried to read his blog and have struggled due to his writing.  He's probably dyslexic or something.

As far as him being a shill for Hallwang, when/where did he disclose this? Not on CSN. I thought his "job" in Germany had to do with that yogurt?  Regardless, even when someone posts a link to any cure or solution, it's on us individually to do our own research.  Not everything works for everybody.  If something was really a miracle cure, I think the "marketplace" would ensure that it was available everywhere, based on the premise that "a good product sells. "  My godfather is/was German, and he went to a small clinic in Germany for treatment- not Hallwang but another one. He had prostate cancer, and I think he was like 90. It's cultural - he got mistletoe injections, hyperthermia and other therapies.  I don't know if it did him any good but he was happy, I guess, and believed in it. I've written to people about alternative treatments, even Ren and Pete, and nobody gave me a hard sell.

For those of us stage IVs, especially inoperable multiple met Stage IVs, treatment is a real long shot. I wish he weren't banned because he might stumble upon something really revolutionary, and since this is the board I check the most, I'd here about it here.

Karin

lilacbrroller said:

Pete

I like Pete and don't think he should be banned. I admire him for focusing all his energies and efforts on survival, and trying so many new things.    I've tried to read his blog and have struggled due to his writing.  He's probably dyslexic or something.

As far as him being a shill for Hallwang, when/where did he disclose this? Not on CSN. I thought his "job" in Germany had to do with that yogurt?  Regardless, even when someone posts a link to any cure or solution, it's on us individually to do our own research.  Not everything works for everybody.  If something was really a miracle cure, I think the "marketplace" would ensure that it was available everywhere, based on the premise that "a good product sells. "  My godfather is/was German, and he went to a small clinic in Germany for treatment- not Hallwang but another one. He had prostate cancer, and I think he was like 90. It's cultural - he got mistletoe injections, hyperthermia and other therapies.  I don't know if it did him any good but he was happy, I guess, and believed in it. I've written to people about alternative treatments, even Ren and Pete, and nobody gave me a hard sell.

For those of us stage IVs, especially inoperable multiple met Stage IVs, treatment is a real long shot. I wish he weren't banned because he might stumble upon something really revolutionary, and since this is the board I check the most, I'd here about it here.

Karin

and if you search his posts at the Colon Club, he disclosed this fact in one of his more recent posts there.

I don't make stuff up.

LindaK. said:

He went beyond sharing and caring

If he personally "attacked" Tina about George's treatment choices, I would say that is abuse of the rules on here.  Tina should not have to feel bad about it still.  I, for one, do not understand most of his posts and I know English is not his first language.

Linda

His posts were def hard to read, but dude is not ESL.

Nana b said:

No one has the right to ban.

No one has the right to ban other than CSN. Don't read his post If they hurt you or make you angry.    Many people left this forum due to not being able to talk about prayer, they were shoved off by members.    Despicable.   

 

Come on folks we have cancer, forgive, even if you can't forget. 

 

 

Sorry my dear but how dare you!  Pete responded to my post so how could I not read it?  Shame on you and your insensitive response. 

Tina

Trubrit said:

Don't feel bad about posting this, Jay.

I think we are all posting in an uplifting manner. Nobody has belittled Pete, in spite of our dislike for some of his attacks, rants, or questionable information. Like Helen said, we're all adutls. 

Also, Karin's post proves that there are people here who enjoy Pete's threads; and I'm sure she is not alone. 

I am still sorry that he has made personal attacks, and chosen his words unwisely, but if it is therapeutic for him to post, then maybe he should be allowed to do so. 

I am happy to hear that Pete is plodding on with his chosen treatments.  I wish him all the luck in the world.

 

 

I would rather that CSN allow pete to blog - with some disclosure about his employment at the clinic and benefits he receives - like how docs who put up research papers need disclosures about which pharma giant they are supported by financially - in which ever way they may be.....( consultant / advisor etc ) 

we all know that pete is trying some thing or another that is offered on the allternative ( not main stream NCN approved) path to recovery .... Who knows who may benefit from what ? May be his way is also some type of uncontrolled random study that we may benefit from ( many of us may be those who have been given no conventional options ).

like some persons who also may see a faith healer.

Then again if they / we may end up trying something that pete has tried. Some with success and some may be unfortunate not have any effect. Atleast we have some half baked evidence about we are  trying,  that too " human" - not something that has been successful on a rat or a pig.

 I would say please allow him again on CSN.  The newbies may also consider what he may have to suggest ( sell ? ) , and they can take their own call...maybe a disclosure by Pete can help , so that we can make informed decisions.

We all try various things - supplements based on the advise we get from fellow travellers and also " dr oz's from lala land " who only recommend ( but have never faced the disease and have no first hand experience - which certainly pete has ).  But somehow these advisors have the statistics and the science ...how do they get that and recommend? ( have they tried on themselves ? Any clinical random data over the years ? ).

then why do we all take those words as gospel and spend millions on supplements ?  We do that because we are led to believe that some mice and pigs have responded in some lab on a controlled and paid for tests .

And at the same time try and block PETE FROM HAVING HIS SAY.

PETE - Who uses his own disease and body to take the drugs and later inform the outcome ? 

How is this fair ! How are we fair to ourselves ? We Look and follow studies and take drugs which someone says works on mice. However , when pete after trying it himself .... We doubt What he has to say ? However, If we do doubt we don't need to follow it  - do we ?

 why are we all seeking clinical trials when we are given no conventional option?  When these trails are sponsored and based on animal studies etc ... Who knows what manipulation may have occurred in the data which may have led to the trial - since mice can't talk and pigs can't fly !

But , hey if pete suggests and he survives but someone else doesn't. Is that reasonable to block  pete and his meandering thoughts he wants to share ? Is there some logic to CSN ?

Will they block me if I keep referring to success  ( post links ) of xyz drugs and therapies tried on mice , pigs etc ... And which are sponsored in millions by the pharmaceuticals and they make zillions out of it ? 

then please pray explain why peter tray hurn not required to be heard ( it is our choice to listen and act ) on this forum? Maybe CSN CAN ALSO choose to make its own disclosure - about financial sources and personal tie ups within the same industry ! 

Now will CSN block me for these personal views on peter tray hurn And the views I express above ? 

Please also note. - i have been treated in Germany for past two years but not once tried any recommendation that peter has tried - doesn't mean if one day when I think something he has tried appeals to my sense and situation I may not try . Probably I may seek it out - atleast it would be a informed or calculated risk. Atleast,  when I have taken drugs which seem to have worked on pigs  and mice and I have never heard  them complain, Then what is wrong In hearing pete and why CSN thinks they should block his views on treatment - personal onslaughts by pete  may just be a result of the " chemo brain". When  we discuss that effect and try to acknowledge it exists why we can't give someone the leeway that it may have effected ! 

Disclosure - 

I think  I may have made a better case for pete than I originally cared when I started to write - pl understand I have been to germany many times - got conventional treatments - never been to hallwamg - never communicated with any of the docs there - and have no discount at present or in future towards any treatment - I would rather pay 200% on a firm treatment theN Try to take a discount on a " being tested " treatment - FOR THAT SACRIFICE I LOVE PETE ( just kidding - a chemo brain humor ! ) 

annalexandria said:

And if anyone would like to see Pete in action...

he just got done hijacking a memorial thread at the Colon Club.  A son posted there about his mother's death, and her terrible experience at the Hallwang Clinic.  Pete, who is such a lovely guy, popped on to talk about how awesome Hallwang is, and how great he personally is doing.  He didn't bother to even respond to the OP, who had this to say to Pete:

"If your experiences at that clinic were a success, good for you. You were one of the lucky ones. But here in the United States we don’t just give medicine to people that have stage 4 cancer unless they willing fully agree to be enrolled into a clinical trial with a moderate to sufficient amount of data on said medication. 

So please keep your clinic endorsements to yourself and show some respect."

This is the kind of person we want on this board?

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=46233&start=15

 

There's also a very interesting response to Pete from user Maia, in a seperate thread.  She is incredibly smart, and has been the source of the clinical trials info I've posted here.  She has an amazing overview of why Hallwang is essentially a scam.  It's a fascinating read from someone with a lot of medical expertise.  She also has the link to Pete's "financial disclosure" post.

Thank you for the link, AA. 

Poor Pete! Looks like he spreads dissention wherever he goes. 

Indeed, Maia seem like a very knowlegble person. Very interesting reading her posts. 

   If you checked the date I joined you will see it was back in 2001. There have been many emotive events happening on the board during the subsequent years. Considering the aims of this board to help and support those suffering thru cancer I can only fully support the admiinistrators in the way they run the board. Their policies have been spelled out clearly and it is fairly obvious that no correspondence will be enterred into. I can accept that. Ron.

Wow. Arguing, no, maybe different point of views anyway.  I don't follow Pete, never have never will. but I don't give my back to him. Maybe we need another board for crazy terminal cancer patient.

I just saw your response Tina, sorry you went through that, some people are very insensitive when they are dying.   When ever is there excuse for meanness, really, never.  But my point is being missed. I follow The Lord. Forgiveness. That's it.  

Done here., keep the faith...

Nana b said:

Wow. Arguing, no, maybe

Wow. Arguing, no, maybe different point of views anyway.  I don't follow Pete, never have never will. but I don't give my back to him. Maybe we need another board for crazy terminal cancer patient.

  

I just saw your response Tina, sorry you went through that, some people are very insensitive when they are dying.   When ever is there excuse for meanness, really, never.  But my point is being missed. I follow The Lord. Forgiveness. That's it.  

 

 

Done here., keep the faith...

 

 

 

Pete has a blog, so it's not like he's being denied a voice. He also posts at the CC and at Colon Chat.  And if people want to, they could comment on his blog.  I do read it (because for a long time I liked Pete and was interested in the things he was trying), and I've never seen a comment there from any of his CSN supporters.  I don't really understand that.  If people really want interaction with Pete, that is the simplest way to achieve it without inflicting him on the rest of us.

annalexandria said:

Um...

Pete has a blog, so it's not like he's being denied a voice. He also posts at the CC and at Colon Chat.  And if people want to, they could comment on his blog.  I do read it (because for a long time I liked Pete and was interested in the things he was trying), and I've never seen a comment there from any of his CSN supporters.  I don't really understand that.  If people really want interaction with Pete, that is the simplest way to achieve it without inflicting him on the rest of us.

Exacty. Quit copying and pasting his blog comments here. 

Going off CSN.