Neuropathy

I am 10 months out of FOLFOX and 9 months out of 5FU and still have neuropathy, thuogh it has improved emmensly this past month. 

Even though my hands and feet were totally numb, my feet feeling like a block of cement, I was not in any pain, so did not take medication. 

I know there are people who have posted that still have neuropathy years later, and those who say it took a few years to go away. I hope your wife is one of the lucky ones whose neuropathy disappears, and soon. 

I have found that cutting down on my salt intake makes a difference. Other than that, I have little to offer in advice but good wishes for a full recovery. 

   It does not even have to be the platinum drugs that cause it. I am over 15 years out from treatment. Last year I was sent to a neurologist. His dx was moderate to very severe motor-sensori peripheral neuropathy of both legs and left hand. Told me he did not know what caused it and cannot help me with it. I have tried neurontin,lyrica and endep. All caused more problems than they solved.Now I inspect the numb bits to make sure they are not damaged and just get on with life. It is amazing how much you can ignore when you put your mind to it.. Ron.

I had a full course of Folfox and erbitux - approx 8 cycles prior to my resection and balance later - on two occasions the oncologist reduced oxaliplatin dosage because of my neuropathy and cold tolrance symptoms - 

i had read that taking r-alpha lipoic acid and L glutamine helps . I did take it but I came to know about it after 3 cycles.

well, the symptoms disappeared after I stopped the chemo and I hardly feel them now - once In a while I take r alpha  lipoic acid and rarely the L glutamine now a days.

i would suggest u read up on this by doing a search in the various help sites and forums and talk to ur oncologist and see whether he suggestsbu can take it and what dosage.

i am sure this helps and has helped several people in the past. The search would bring it up. So, pl,try this at the earliest as it is most effective when u r on the chemo which may be causing it.

all the best

My dad just ended his chemo treatments about three weeks ago. He is on a medication, but I cannot, for the life of me remember what it is! He's not sure if it is helping, but he says moving around a lot helps with the numbness. His feet do feel like blocks of cement, but he's been working out in the yard a lot the last two weeks since it's been a bit warmer out. He built a grill the other day and says it was much harder than it used to be, but he was determined to finish. He actually felt pain in his finger tips this morning and thought that was good considering they are usually completely numb. 

His doctor is estimating about 6 months before he really feels a difference, which he says he can tolerate. Obviously that is an estimate, as he is "fresh" off of the chemo train, but his life is pretty normal for now.