Ca125 has doubled

Susan, Im sorry to hear you are starting into a reoccurrance,,,,now is the time to take one day at a time....take it easy and get a massage or facial to relax and give yourself a treat. One day at a time when dealing with starting treatment again. Kim

I am so sorry you have been thrown into cancer again.  Go ahead and cry.  Get it all out tonight, because tomorrow you need to get up and breathe and get ready to battle.  Do not give into panic.  You need a clear head.  One day at a time, with the same determination you smacked it down before.  Wish I was there to give you a hug!

Cafewoman53 said:

You have an excellent chance of another long remission

 Because you have had a long remission your chances are good to have another one. There are tons of chemos out there. I know this is a shock but you will get through this.

Cancer sucks and this particular one sucks *********!(a very bad word )

Colleen

Susan I am so sorry to hear this.  Are you having any symptons?  I hate that dam ca125 test.....  You are in my thoughts and prayers....  You have cancer.....Cancer does not have you.  Put on your fighting tights and let's get started.....  Stay tough my friend.  You can do this...  In case you ever feel like you can't, you have all of us behind you fighting with you...  We got your back...  We will do this together.

childofthestars said:

Susan

I am truly p***d off to hear about your recurrence - you are allowed to feel sorry for yourself but not for long!  Now is the time to fiight like a girl! Who knows how much time ANY of us have so all I can say is laugh, cry, be sad, be happy, be weak, be strong but live for the now. We are all routing for you & each other.

Michelle xxx 

so sorry you may have to deal with this beast again. 44 is still a good number. Dealing with one cancer is enough...but two! I know you can beat this and have a very long remission again. Let yourself cry and then take a deep breath..look up and say I can do this...God is watching you..stay strong..Val 

scatsm said:

Thanks everyone....

Just knowing you all are there helps to get me through this. Thank you for your kind thoughts and encouraging comments.

I had the ct scan today. My PCP called me and told me that the nodules on my omentum have grown in 2 months. Some of the nodules are 4 cm in size. They are consistent with ovarian cancer. Nothing on the lymph nodes or any organs. So I am wondering, will I start treatment? Any thoughts?

Susan

The standard practice is to wait with active treatment until symptoms start appearing (3-4 months from now). In my opinion PARP trial is a better option for you than chemo. Susan, I don't remember if you had preventative mastectomy or curative mastectomy for diagnosed breast cancer. Breast cancer history < 3 years ago may exclude you. If you're at all interested in the Rucaparib (ARIEL2) trial call contact below and ask who the trial NCT01891344 investigator is in your area. Spaces for BRCA+ women are very limited, in a couple of weeks they will stop enrollment. If you want PM me and I will send you detailed description.

Sanjay Shetty, Sr. Clinical Operations Manager

Clovis Oncology, Inc. 

Direct: +1.415.409.5447 

Mobile: +1.415.694.0517 

sshetty@clovisoncology.com

scatsm said:

Thanks everyone....

Just knowing you all are there helps to get me through this. Thank you for your kind thoughts and encouraging comments.

I had the ct scan today. My PCP called me and told me that the nodules on my omentum have grown in 2 months. Some of the nodules are 4 cm in size. They are consistent with ovarian cancer. Nothing on the lymph nodes or any organs. So I am wondering, will I start treatment? Any thoughts?

Susan

YOU HAVE evidence of disease and seological elevation (CA125increase). I think you will be looking at options to slow the growth of the cancer. That could be chemo, but you could look at clinical trials witH PARP inhibitors either single therapy or in conjunction with chemo. I just talked with my oncologist and he feels the PARP inhibitors look more promising in ovca than breast cancer. Start taling with your doctors about options. Kim

mopar said:

THINKING OF YOU, SUSAN

What can I say, it stinks, doesn't it?  But you're a 'seasoned' survivor, so you know the ropes.  So, hang in there.  Sending lots of hugs and prayers today to you, Susan.

 

Monika

 

There is a new 10 year study out of md anderson that shows targeted radiation to be very effective in recurrent ovca. I finished radiation in January and have had no side effects. Most gyn onc are against it, including mine. I found an amazing rad onc in Seattle who gave me a copy of the study and even said he may be able to cure me. My onc was out of suggestions since I've had so much chemo. It might be worth a conversation with your onc but be prepared for him/her trying to talk you out of it.

Marnel said:

radiation

There is a new 10 year study out of md anderson that shows targeted radiation to be very effective in recurrent ovca. I finished radiation in January and have had no side effects. Most gyn onc are against it, including mine. I found an amazing rad onc in Seattle who gave me a copy of the study and even said he may be able to cure me. My onc was out of suggestions since I've had so much chemo. It might be worth a conversation with your onc but be prepared for him/her trying to talk you out of it.

Marnel

im so glad you are doing so well! Would you mind telling me if the cancer was in your lymph nodes?

thanks so much.

scatsm said:

It was fine...

 

 

I thought the chemo was in the chip bag, but I was wrong and had to have it the regular way. So far so good...have held the chips down...we'll see!

You're munching on one of my favorite snack foods!  Glad things went well today.  Sending lots of positive thoughts and prayers your way that you experience minimal side effects throughout this treatment.

Kelly