janderson

Thanks for asking. I have been checking the board but been too busy to post much lately. I had my first treatment as you know a week ago. it is supposed to be XELIRI and Vectibix but I ended up only getting Irinotecan. Insurance was quetioning the other 2 drugs. I got involved and they are both now approved so I will get all 3 next friday for my second treatment. I cant tell you how nice it is not to have the pump. I hated that thing. I alo elected not to get a port either. The nurse said Irinotecan can harden your veins at the infusion site for some. So ar no problems for me.

I have been mountain biking for the past 4 days. I also road my motorcycle yesterday for a while an my ATV today. I am still living life to its fullest. I am not going to let treatment get in the way on my off weeks. In fact I actually mountain biked on the fourth day after my last infusion. 5 days was usually the earliest in the past. I would say it might be due to only one drug bur Irinotecan always hits me hard and it hit me real hard this time.

I have been spending a ton of time researching and contacting several hospitals for opinions. MD Anderson is actually getting my medicl records for me since I have had such a hard time getting them on my own. I am going to raise HELL with VCU hospital tomorrow who has most of my records.

I met with a local radiologist who said he can do SBRT on all of th spots over time but is an older system. I went to Georgetown University last week to see a radiologist and an interventional radiologist who work closely toether. They want to do a combination of Cyberkife and RFA on the liver and leave the chestwall spots alone since they pose no immediate threat and several are not well defined and may not be malignant. My wife, oncologist and myself are leaning towards this approach with chemo since chemo wont be interrupted. I had a surgical consult set up for Columbia University in NYC but am going to cancel since we feel disease management is the best approach for now. My oncologist thinks we should do Cyberkife on the couple of larger more well defined chest wall tumors so i am looking into a couple more relatively hospitals that have Cyberkife possibly Nanoknife as well.

So many decisions to make but I will keep my boxing gloves on and continue to counter punch anything that is thrown at me.

jen2012 said:

Busy is good and it sounds

Busy is good and it sounds like things are falling into place...that's great!

double wow Jeff......what a digger you are.....so tenacious.  I admire your energy and your strength......you are a fighter for sure dear Jeff......keep going.....

mags

janderson1964 said:

That is all I know is to

That is all I know is to fight. I think it is stubborness

What ever it is that keeps you fighting... we will take! Keep it up Jeff

janderson1964 said:

My wife, my faith, and my

My wife, my faith, and my general love for life and a lot of stubborness.

Keep it up!  Cancer has a real battle on its hands with you.

janderson1964 said:

Thanks for asking. I have

Thanks for asking. I have been checking the board but been too busy to post much lately. I had my first treatment as you know a week ago. it is supposed to be XELIRI and Vectibix but I ended up only getting Irinotecan. Insurance was quetioning the other 2 drugs. I got involved and they are both now approved so I will get all 3 next friday for my second treatment. I cant tell you how nice it is not to have the pump. I hated that thing. I alo elected not to get a port either. The nurse said Irinotecan can harden your veins at the infusion site for some. So ar no problems for me.

I have been mountain biking for the past 4 days. I also road my motorcycle yesterday for a while an my ATV today. I am still living life to its fullest. I am not going to let treatment get in the way on my off weeks. In fact I actually mountain biked on the fourth day after my last infusion. 5 days was usually the earliest in the past. I would say it might be due to only one drug bur Irinotecan always hits me hard and it hit me real hard this time.

I have been spending a ton of time researching and contacting several hospitals for opinions. MD Anderson is actually getting my medicl records for me since I have had such a hard time getting them on my own. I am going to raise HELL with VCU hospital tomorrow who has most of my records.

I met with a local radiologist who said he can do SBRT on all of th spots over time but is an older system. I went to Georgetown University last week to see a radiologist and an interventional radiologist who work closely toether. They want to do a combination of Cyberkife and RFA on the liver and leave the chestwall spots alone since they pose no immediate threat and several are not well defined and may not be malignant. My wife, oncologist and myself are leaning towards this approach with chemo since chemo wont be interrupted. I had a surgical consult set up for Columbia University in NYC but am going to cancel since we feel disease management is the best approach for now. My oncologist thinks we should do Cyberkife on the couple of larger more well defined chest wall tumors so i am looking into a couple more relatively hospitals that have Cyberkife possibly Nanoknife as well.

So many decisions to make but I will keep my boxing gloves on and continue to counter punch anything that is thrown at me.

God be with you Jeff! Live and Love and FIGHT! Go Jeff.

Phil64 said:

God be with you Jeff! Live

God be with you Jeff! Live and Love and FIGHT! Go Jeff.

Thanks Phil. God is with me.