One major battle ahead!!

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  • Djinnie
    Djinnie Member Posts: 945 Member
    #22
    Suekub said:

    Doing OK

    i am doing alright on Afinitor very few notiicable side effects. Initially had problems with low platelet count but now back to normal. Last blood test this week showed am slightly anaemic but not too much to be concerned about.

    I have recently made an enquiry to the Christie in the UK about IL2 which is not available in Australia. Prof Hawkins responded within about an hour of my email to one of the secretaries which impressed me. Gave me a heads up on IL2 but did tell me it would mean up to 12 months in the UK which is not really an option at this point in time. I would need someone to be with me and with my daughter completing her final year of high school cannot rely on her and I think it would not be fair on a 17 year old. Couldn't rely on my mother either who is elderly and in the early stages of dementia.

    anyway further scan on April 3 which I am hoping will not reveal any further nasties or growth in existing lesions.

    Otherwise I have continued to feel and look really well that no one believes I am suffering from stage 4 cancer. I am convinced that the scans they show me are someone else's!!! (I wish).

    take care

    Sue

     

     

     

    Christie!

    Sue, I am glad to hear you are doing well! It's funny you should mention Christie, I phoned them along with The Royal Marsdon to get second opinions, also to ask about the possibly of going back for treatment. I haven't quite ruled that out yet. They are both very good cancer treatment centres. Its a pity I no longer live in the UK you could have stayed with me.

    I can imagine you have a lot to deal with in taking care of your Mother right now though. I looked after my Mum for 12years, she had dementia and then sadly cancer. It was very difficult, fortunately I lived in a tiny village where we all new each other. My Mum used to go walk about on a regular basis, I was always getting phone calls to come and get her. I am sure she only did it for the free cup of tea and biscuits. Everyone loved her though!

    I hope your scan goes well next month, I will be thinking of you:)

     

    Djinnie x

  • Djinnie
    Djinnie Member Posts: 945 Member
    #23
    Djinnie said:

    Christie!

    Sue, I am glad to hear you are doing well! It's funny you should mention Christie, I phoned them along with The Royal Marsdon to get second opinions, also to ask about the possibly of going back for treatment. I haven't quite ruled that out yet. They are both very good cancer treatment centres. Its a pity I no longer live in the UK you could have stayed with me.

    I can imagine you have a lot to deal with in taking care of your Mother right now though. I looked after my Mum for 12years, she had dementia and then sadly cancer. It was very difficult, fortunately I lived in a tiny village where we all new each other. My Mum used to go walk about on a regular basis, I was always getting phone calls to come and get her. I am sure she only did it for the free cup of tea and biscuits. Everyone loved her though!

    I hope your scan goes well next month, I will be thinking of you:)

     

    Djinnie x

    Shuffled!!

    What's going on with these postings? Totally askew!

  • danbren2
    danbren2 Member Posts: 311
    #24
    Djinnie said:

    Shuffled!!

    What's going on with these postings? Totally askew!

    Speechless!!

    Djinnie,

         I don't know what to say, but to remind you that you have always been a great inspiriation to me and always there to make things look brighter.  You are in for a fight, but I have no doubt you will be able to win this! I have lost a Kidney, lower portion of right lung, and plucked a piece out of my brain, if I can deal with that, I know you will be just fine, cause your words of wisdom and encouragement got me through all of those surgeries! We will always be here for you and I will put in extra prayers for you and the Doctors!

                                                                Love and lots of prayers for your good health!!

                                                                 Brenda

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #25
    Oh dear, I too have wondered

    Oh dear, I too have wondered how you are doing!

     

     

    {{{  HUGS  }}}

     

    Yes, this sucks!! Geez louize! Now have you gotten a 2nd opinion from the surgery happy oncologist? There must be other things to do. But coughing must be so annoying. Can you eat and sleep ok? Oh how I FEEL for you!

    I can provide you with my email address if you DM me. I have nothing but time and love to offer with an abundance of HOPE!!!!!

    Thank you for coming here and letting us know. We're here for you and will walk along side you on this journey no matter what ok hon?

    Warmly, Jan

     

     

     

  • donna_lee
    donna_lee Member Posts: 1,045 Member
    #26
    Jan4you said:

    Oh dear, I too have wondered

    Oh dear, I too have wondered how you are doing!

     

     

    {{{  HUGS  }}}

     

    Yes, this sucks!! Geez louize! Now have you gotten a 2nd opinion from the surgery happy oncologist? There must be other things to do. But coughing must be so annoying. Can you eat and sleep ok? Oh how I FEEL for you!

    I can provide you with my email address if you DM me. I have nothing but time and love to offer with an abundance of HOPE!!!!!

    Thank you for coming here and letting us know. We're here for you and will walk along side you on this journey no matter what ok hon?

    Warmly, Jan

     

     

     

    Awwww. Crud

    What can I say, but I'm so sorry to hear your crappy news.

    Love your reference to one brain cell, and the revenge and poison pen letters about medical care. When it makes you feel better to vent, YOU GO GIRL!  We'll be here to listen.

    I'm in your corner sending thoughts your direction.  Hope the Votrient has results, soon.

    Love ya...

    Donna

     

  • cran1
    cran1 Member Posts: 139
    #27
    My thoughts are with you D.

    My thoughts are with you D.

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