2 weeks in Ipilimimab and Nivolumab Trial

dancnbear1 said:

Well, had my blood work up

Well, had my blood work up done today, met with the endocronologist, and had an ultra sound of my thyroid. Unfortunately for me my thyroid levels are extremely high and I heard for the first time something called "Thyroid Storm" which I am supposedly very close to. I was reasured that this is a common side effect (Hyperthyroidism not Thyroid Storm) of this treatment and as fast as I went into Hyperthyroidism I should move just as fast out of and then into hypothyroidism. Body aches are starting to go away but nausea is coming on along with the sweats. Was told that I have now lost almost 30 pounds (thats ok because if you look at me you would think I could be an offensive lineman) but should put that back on once I go into hypothyroidism (I hope not). Finally, because my thyroid levels aree so high I was not able to get my second infusion. I go back next week so I keep my positive thoughts up and hope I get my next infusion then.

 

DB

Hang in there....remember that the original Nivolumab trials were only 4 infusions. If you have to fight for every one, fight for every one. The combo is potent.

Hey DB,

Sorry to hear that. Makes me nervous for tomorrow. I will let you know what happens. Feel well!!

Cate

dancnbear1 said:

Well tomorrow is the day. We

Well tomorrow is the day. We will see if the side effects have worn off and I am ready for my 2nd infusion. Right now I have only a few side effects that I am aware of. Still get tired and still losing weight but otherwise I think I am ready! Bring it on baby.

I am ready for the infusion and my dance with the drugs. Going to win and work my way through the physical issues that come with the fight. Going to be cancer free soon and will shortly thereafter buy t-shirts for my friends and family that says:

Cancer Sucks

Dancnbear 4, Cancer 0

Felling Good and ready to kick some ****!

Great attitude, stay strong!

Good Luck DB. I couldn't have my infusion last Thursday for the same reason as you. I hope you are good for tomorrow so you can continue the good fight. I go back Thursday and I have some side effects I need to work through. Praying for you!

Cate