Doing it again.

Hos
Hos Member Posts: 3
in Head and Neck Cancer #1

I just want to say i found this sight in nov-2012 when i was first told i had stage 4 BOT cancer

it was very helpful reading what  everyone had to say about the different opportunities experienced.

As everyone told there stories so far i was able to relate to eerything said and i would like to say thank you.

during my treatment i went threw 36 rads and 8 chemos thought i was well done (cooked) when it was over

it was a challenge for my caregivers it was very hard for me to let my lovedones help i wanted to do everything my self

i only took a cupple weeks off work at one given time, hard headed i guess. So as of 1-1-14 we found out it was back

i was told that sugery was my only option so i went in on 2-27-14 and had 14 iynpthnodes removed 4 were positive

right side of my BOT an tonsil removed they said they had clean margine all bad tissue the only problem is the nerve endings

still show positive now they are trying to figure out what to do one is say i cant have any more radiation and the other doctor is

say that might be the only option.

I am sure i am not the only one that has been faced with this would love to hear your thoughts.

Thanks

Mike & Colleen

 

Comments

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #2
    rads again

    Mike & Colleen,

    Welcome to the H&N forum or welcome back as the case may be.  I am sorry you are facing treatments a second time.

    There are a number of members who have successfully received radiation a second time.  I believe the doctors are following protocol and trying to be conservatively careful about how much to give, but they have ways to plan a second rad application safely.

    Hopefully someone who has more experience than I do will chime in.

    I wish you the best.

    Matt

  • KTeacher
    KTeacher Member Posts: 1,103 Member
    #3
    Cyberknife

    I had Cyberknife the last time (after 3 full treatments of radiation since 2010.  Did the doctors say anything about perineural involvement?

  • Hondo
    Hondo Member Posts: 6,636 Member
    #4
    Hi Mike & Colleen

    Welcome to the family, as you know there are many of us here who been through this more than once some more than twice, and we are still here. Just remember if you beat it once you can beat it again, but you must stay positive and focus on the fact that you are going to get better. I hope you plan on coming here more and posting, that way we can share with you what we know and if you like even pray for you .

     

    Hondo

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #5
    mike and colleen, i'm so

    mike and colleen, i'm so sorry you have to go thru it again.  there are several here who have done it 2 or 3 times and they made it thru and so can you.  i am one of those who had a recurrence.  first time had 35 rads, second time had total laryngectomy.  today, 2 yrs post and doing well.  want you to know that we will all be here for you encouraging you along the way.  damn, i hate this disease.  saying prayers for all to go well for you.  stay positive and be strong.

    God bless you,

    dj

  • hwt
    hwt Member Posts: 2,328 Member
    #6
    debbiejeanne said:

    mike and colleen, i'm so

    mike and colleen, i'm so sorry you have to go thru it again.  there are several here who have done it 2 or 3 times and they made it thru and so can you.  i am one of those who had a recurrence.  first time had 35 rads, second time had total laryngectomy.  today, 2 yrs post and doing well.  want you to know that we will all be here for you encouraging you along the way.  damn, i hate this disease.  saying prayers for all to go well for you.  stay positive and be strong.

    God bless you,

    dj

    Radiated more than once

    Sorry for your situation. I was treated in STL early 2012 for SCC lower jaw. Surgery, chemo and rads. August 2013 spotted around carotid artery. My brother's doctor at Mayo said "don't let anyone tell her she can't be radiated twice". I went to Mayo and successfully had 5 days of SBRT radiation. Unfortunately, I then had another spot on opposite side. I am currently undergoing chemo because there are apparently microscopic cells and then will go to Mayo for more radiaition. I have to say, chemo (Taxol and Erbitux) alone is nothing compared to my tx in 2012 and I had virtually no side effects from the SBRT. 

    Prayers sent your way

    Candi

  • jim and i
    jim and i Member Posts: 1,788 Member
    #7
    So sorry you find yourself

    So sorry you find yourself back here. I can't add anything else to those who already posted, but I can pray for you and I am right now.

    May God give you, strength, co9urage and healing.

    Debbie

  • Hos
    Hos Member Posts: 3
    #8
    CivilMatt said:

    rads again

    Mike & Colleen,

    Welcome to the H&N forum or welcome back as the case may be.  I am sorry you are facing treatments a second time.

    There are a number of members who have successfully received radiation a second time.  I believe the doctors are following protocol and trying to be conservatively careful about how much to give, but they have ways to plan a second rad application safely.

    Hopefully someone who has more experience than I do will chime in.

    I wish you the best.

    Matt

    rads again

    I have very much appreciated over the last year reading everyones comments, experiences and prayers. I have found all every helpful in my endearor.  Some comments made me stop and think or even look up more information about what was said, every sitution is unique in its own way and was very helpful!

     

     

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