Training the NeoBladder

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  • mac65
    mac65 Member Posts: 3
    #22
    DavidL said:

    Managing my new Neo Bladder
    So, I had my surgery on Dec. 1, 2009 and by and large I'm doing pretty well. I had a great deal of difficulty with diarrhea post surgery, but I seem to be getting a handle on that now. (Made me weak and couldn't keep any weight on) I still have diarretic moments and I wonder if it could somehow be related to the mucus production of the new bladder? Anyone else had this difficulty?

    I tend to be an overachiever, so I'm not too patient about getting control of my continencey. I sort of get it, but there are times when mucus is coming out and I have no control. I still leak quite a bit and I'm thinking it's because I became so complacent with a catheter for that period. I walk and exercise as much as possible, but that's when I seem to have less control. As it stands, I almost need to go pee every 20 or 30 minutes. What's everyone else's experience? Trying to learn. David

    managing my new bladder

    i had my neo bladder surgery in dec. 2012 I had stage three cancer they removed the bladder prostate and lymph nodes. I have had 15 uti's and I have had to use a catheter 2/3 times a day because of the mucus build up I drink plenty of water and void about 10 to 14 oz. Each time but I have to strain to go so I decided to use a size 18 french to void and flush.

        

  • mac65
    mac65 Member Posts: 3
    #23
    Roderick said:

    how long did it taqke to
    how long did it taqke to keep the bladder from vdraining on its own

    not long

    I healed in a month and had all bags and tubes removed in 6 weeks and no leaking followed 

  • willie m
    willie m Member Posts: 1
    #24
    mac65 said:

    not long

    I healed in a month and had all bags and tubes removed in 6 weeks and no leaking followed 

    neobladder leaking

    I had my neobladder surgery on 12/05/13 , All went well. I had my catheder out on 12/26/13 and I am leaking when ever I stand up , But if I hold myself until I get to a toilet I can void in the toilet. Has anyone else experienced this ? If I am up standing or walking around the urine may just run right out . I keep reading that it will eventually not leak. At night I wake up often because I have to go , so I hold myself and head to the bathroom. Does any of this sound familier ?

  • Kim_P
    Kim_P Member Posts: 2
    #25
    willie m said:

    neobladder leaking

    I had my neobladder surgery on 12/05/13 , All went well. I had my catheder out on 12/26/13 and I am leaking when ever I stand up , But if I hold myself until I get to a toilet I can void in the toilet. Has anyone else experienced this ? If I am up standing or walking around the urine may just run right out . I keep reading that it will eventually not leak. At night I wake up often because I have to go , so I hold myself and head to the bathroom. Does any of this sound familier ?

    Stomach Pains

    willie,

      I myself went thru the neobladder replacement on 12/10/2013 around the same time you had your surgery. I also have lymphoma and had it since 2001. I had some issues with restrictions in my uters tubes from the kindeny's to the bladder. this caused my creataten levels to go up, and spend another week in the hospital while the ran tubes from the kindeny's out into 2 bage to allow for draniage. I have sence had the tubes removed and now I have stents from the kindeny's to the new neobladder, which seem to help. I also have trouble right now holding urine in during the day going every 1-2 hrs. At night i wear a diper which helps alot to stay dry, however i'm going every 1 1/2 to 3 hrs. I have termendious stomach pains gas..maybee, but they seem to get worse after eating. Bowel movements are spradic, which also might be causing the stomach pains. Can anyone shed some light on this subject. My doctor says it's normal becausing I'm still healing, but to me this just doen't feel right to have this pain on and off for days now. Tynol seems to relive it for the most part, but I have taking the pain pills or any other medication if I don't need to.

  • rlc67
    rlc67 Member Posts: 1
    #26
    Neobladder control

    It' been three months since my surgery. Even though continuing the kegel exercises, I have no control. It is constant leakage.  To empty the bladder, I've been told to relax and I've been told to push.  Neither offer results and then away from the toilet comes a flood along with the mucas.  When I cath, mucas and very little urine but a short time later a flood so I know the bladder is not emptying.  Anyone else experience this?

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